{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,27]],"date-time":"2026-06-27T06:39:29Z","timestamp":1782542369334,"version":"3.54.5"},"reference-count":37,"publisher":"MDPI AG","issue":"19","license":[{"start":{"date-parts":[[2024,9,29]],"date-time":"2024-09-29T00:00:00Z","timestamp":1727568000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JCM"],"abstract":"<jats:p>Background: Post COVID-19 syndrome or long COVID (LC) is a novel fluctuating condition with a protracted course in some patients. Specialist LC services have been operational in the UK since 2020 and deal with a high caseload of patients. Aims: To evaluate long-term outcomes in patients discharged from a community-based LC specialist service. Methods: A service evaluation study that included patients who were well engaged in the services [completed the standard Patient Reported Outcome Measures (PROMs) and received intervention from clinician(s)] and had been discharged for at least 3 months from the service. They consented to the study and completed standard PROMs: COVID-19 Yorkshire Rehabilitation Scale (C19-YRS), EQ-5D-5L and National Institute for Health and Care Excellence (NICE) criteria for myalgia encephalomyelitis\/chronic fatigue syndrome (ME\/CFS). Results: Out of 460 patients contacted, 112 (average of 37.6 months since infection and 9.8 months post-discharge) completed the PROMs. Of these, 90.2% patients continued to experience LC symptoms and disability and had not returned to their pre-COVID-19 health status. The average EQ-5D-5L index score was 0.53 (SD 0.29), highlighting a significant disability and that LC had become a long-term condition (LTC) in the majority of patients who responded to the survey. Of these patients, 43% met the criteria for suspected ME\/CFS. Conclusions: A proportion of LC patients develop persistent long COVID (PLC) consistent with a LTC and had a significant overlap with ME\/CFS.<\/jats:p>","DOI":"10.3390\/jcm13195817","type":"journal-article","created":{"date-parts":[[2024,9,30]],"date-time":"2024-09-30T06:39:35Z","timestamp":1727678375000},"page":"5817","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["How Long Is Long COVID? Evaluation of Long-Term Health Status in Individuals Discharged from a Specialist Community Long COVID Service"],"prefix":"10.3390","volume":"13","author":[{"given":"Rochelle","family":"Bodey","sequence":"first","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jennifer","family":"Grimaldi","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hannah","family":"Tait","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Belinda","family":"Godfrey","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon","family":"Witton","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenna","family":"Shardha","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Tarrant","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0334-2968","authenticated-orcid":false,"given":"Manoj","family":"Sivan","sequence":"additional","affiliation":[{"name":"Leeds Long COVID Community Rehabilitation Service, Leeds Community Healthcare NHS Trust, Leeds LS11 0DL, UK"},{"name":"National Demonstration Centre of Rehabilitation Medicine, Leeds Teaching Hospitals NHS Trust, Leeds LS7 4SA, UK"},{"name":"Academic Department of Rehabilitation Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Martin Wing, Leeds General Infirmary, Leeds LS1 3EX, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2024,9,29]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"e102","DOI":"10.1016\/S1473-3099(21)00703-9","article-title":"A clinical case definition of post-COVID-19 condition by a Delphi consensus","volume":"22","author":"Soriano","year":"2022","journal-title":"Lancet Infect. 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