{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,22]],"date-time":"2026-10-22T03:26:50Z","timestamp":1792639610345,"version":"4.5.0"},"reference-count":19,"publisher":"MDPI AG","issue":"9","license":[{"start":{"date-parts":[[2015,9,22]],"date-time":"2015-09-22T00:00:00Z","timestamp":1442880000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JCM"],"abstract":"<jats:p>To determine the perceived relevance and value of an individualized measure of the impact of macular degeneration on quality of life (QoL) for elderly people with Age-Related Macular Degeneration (AMD) in the USA, through the assessment of the suitability of the measure\u2019s domains and by gaining a deeper insight into the impact of AMD on patients\u2019 QoL vis-\u00e1-vis these domains, community-dwelling older adults in the metropolitan Salt Lake City, Utah area were interviewed using the macular degeneration on quality of life (MacDQoL) instrument. Participants felt that the MacDQoL was a relevant instrument for use in this US study population, though it could be improved by adding items pertaining to transportation, and independent driving, in particular, as an important QoL indicator. The emerging theme from analysis of the respondent\u2019s commentary was that, in spite of AMD, these respondents were committed to engage in, and enjoy life. This is an important concept for clinicians and those who offer support programs to integrate into their care planning and reinforce in messaging to patients with the condition.<\/jats:p>","DOI":"10.3390\/jcm4091841","type":"journal-article","created":{"date-parts":[[2015,9,22]],"date-time":"2015-09-22T15:36:54Z","timestamp":1442936214000},"page":"1841-1852","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Quality of Life with Macular Degeneration Is Not as Dark as It May Seem: Patients\u2019 Perceptions of the MacDQoL Questionnaire"],"prefix":"10.3390","volume":"4","author":[{"given":"Lisa","family":"Ord","sequence":"first","affiliation":[{"name":"School of Medicine, University of Utah, John A. Moran Eye Center, Salt Lake City,  UT 84132, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"JoAnne","family":"Wright","sequence":"additional","affiliation":[{"name":"Division of Occupational Therapy, College of Health, University of Utah, Salt Lake City,  UT 84108, USA"},{"name":"School of Health Sciences, Salt Lake Community College, West Jordan, UT 84088, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Margaret","family":"DeAngelis","sequence":"additional","affiliation":[{"name":"School of Medicine, University of Utah, John A. Moran Eye Center, Salt Lake City,  UT 84132, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3921-1089","authenticated-orcid":false,"given":"Michael","family":"Feehan","sequence":"additional","affiliation":[{"name":"College of Pharmacy, University of Utah, Salt Lake City, UT 84112, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2015,9,22]]},"reference":[{"key":"ref_1","unstructured":"National Eye Institute Age-Related Macular Degeneration, Available online: https:\/\/www.nei.nih.gov\/eyedata\/amd.asp."},{"key":"ref_2","unstructured":"World Health Organization Global Data on Visual Impairments 2010. Available online: http:\/\/www.who.int\/blindness\/GLOBALDATAFINALforweb.pdf?ua=1."},{"key":"ref_3","doi-asserted-by":"crossref","unstructured":"Yonekawa, Y., and Kim, I.K. (2015). Clinical characteristics and current treatment of age-related macular degeneration. Cold Spring Harbor Perspect. Med., 5.","DOI":"10.1101\/cshperspect.a017178"},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"1640","DOI":"10.1001\/archopht.1984.01040031330019","article-title":"Age-related macular degeneration and blindness due to neovascular maculopathy","volume":"102","author":"Ferris","year":"1984","journal-title":"Arch. Ophthalmol."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"343","DOI":"10.3390\/jcm4020343","article-title":"Age-related macular degeneration: Advances in management and diagnosis","volume":"4","author":"Yonekawa","year":"2015","journal-title":"J. Clin. Med."},{"key":"ref_6","unstructured":"Leonard, R. Statistics on vision impairment: a resource manual. Arlene R. Gordon Research Institute of Lighthouse International. Available online: http:\/\/www.gesta.org\/estudos\/statistics0402.pdf."},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"178","DOI":"10.1097\/01.opx.0000204510.08026.7f","article-title":"Visual function in patients with choroidal neovascularization resulting from age-related macular degeneration: The importance of looking beyond visual acuity","volume":"83","author":"Fletcher","year":"2006","journal-title":"Optom. Vis. Sci."},{"key":"ref_8","first-page":"11","article-title":"Predicting reading fluency in patients with macular disease","volume":"82","author":"Crossland","year":"2005","journal-title":"Optom. Vis. Sci."},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1034\/j.1600-0528.2000.280305.x","article-title":"Development of a condition-specific quality of life measure for patients with dentofacial deformity: I. Reliability of the instrument","volume":"28","author":"Cunningham","year":"2000","journal-title":"Community Dent. Oral Epidemiol."},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"54","DOI":"10.1016\/S0002-9394(99)00108-7","article-title":"Quality of life of low-vision patients and the impact of low-vision services","volume":"128","author":"Scott","year":"1999","journal-title":"Am. J. Ophthalmol."},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3310\/hta18090","article-title":"Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: A systematic review, statistical modelling and survey","volume":"18","author":"Longworth","year":"2014","journal-title":"Health Technol. Assessment"},{"key":"ref_12","doi-asserted-by":"crossref","first-page":"118","DOI":"10.1016\/j.jval.2011.08.002","article-title":"A review of generic preference-based measures of health-related quality of life in visual disorders","volume":"15","author":"Tosh","year":"2012","journal-title":"Value Health"},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"1325","DOI":"10.2147\/OPTH.S45248","article-title":"Assessing quality of life in the treatment of patients with age-related macular degeneration: Clinical research findings and recommendations for clinical practice","volume":"7","author":"Yuzawa","year":"2013","journal-title":"Clin. Ophthalmol."},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"1163","DOI":"10.1023\/B:QURE.0000031348.51292.4a","article-title":"Design of an individualized measure of the impact of macular disease on quality of life (the MacDQoL)","volume":"13","author":"Mitchell","year":"2004","journal-title":"Qual. Life Res."},{"key":"ref_15","doi-asserted-by":"crossref","unstructured":"Mitchell, J., Wolffsohn, J.S., Woodcock, A., Anderson, S.J., McMillan, C.V., Ffytche, T., Rubinstein, M., Amoaku, W., and Bradley, C. (2005). Psychometric evaluation of the MacDQoL individualised measure of the impact of macular degeneration on quality of life. Health Qual. Life Outcomes, 3.","DOI":"10.1186\/1477-7525-3-25"},{"key":"ref_16","unstructured":"Fletcher, D.C., Nair, U., MacKeben, M., Schuchard, R.A., Schneck, M.E., and Watson, G. (2008). Smith-Kettlewell Reading Test (SK Read), Mattingly Low Vision, Inc."},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual. Res. Psychol."},{"key":"ref_18","unstructured":"Seiler, C. (2008). University of Chicago Press."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"2351","DOI":"10.1016\/j.ophtha.2012.05.031","article-title":"Rasch analysis reveals problems with the multiplicative scoring in the Macular Disease Quality of Life Questionnaire","volume":"119","author":"Finger","year":"2012","journal-title":"Ophthalmology"}],"container-title":["Journal of Clinical Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/2077-0383\/4\/9\/1841\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T20:49:03Z","timestamp":1760215743000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/2077-0383\/4\/9\/1841"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,9,22]]},"references-count":19,"journal-issue":{"issue":"9","published-online":{"date-parts":[[2015,9]]}},"alternative-id":["jcm4091841"],"URL":"https:\/\/doi.org\/10.3390\/jcm4091841","relation":{},"ISSN":["2077-0383"],"issn-type":[{"value":"2077-0383","type":"electronic"}],"subject":[],"published":{"date-parts":[[2015,9,22]]}}}