{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,31]],"date-time":"2026-01-31T05:10:47Z","timestamp":1769836247316,"version":"3.49.0"},"reference-count":58,"publisher":"MDPI AG","issue":"11","license":[{"start":{"date-parts":[[2021,11,12]],"date-time":"2021-11-12T00:00:00Z","timestamp":1636675200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100006636","name":"Swedish Research Council for Health Working Life and Welfare","doi-asserted-by":"publisher","award":["2018-00964"],"award-info":[{"award-number":["2018-00964"]}],"id":[{"id":"10.13039\/501100006636","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Regional Agreement between Ume\u00e5 University and Region V\u00e4sterbotten (ALF)","award":["928271"],"award-info":[{"award-number":["928271"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["JPM"],"abstract":"<jats:p>This study explores perceptions and preferences on receiving genetic risk information about hereditary cancer risk in members of the Swedish public. We conducted qualitative content analysis of five focus group discussions with participants (n = 18) aged between 24 and 71 years, recruited from various social contexts. Two prominent phenomena surfaced around the interplay between the three stakeholders involved in risk disclosure: the individual, healthcare, and the relative at risk. First, there is a genuine will to share risk information that can benefit others, even if this is difficult and causes discomfort. Second, when the duty to inform becomes overwhelming, compromises are made, such as limiting one\u2019s own responsibility of disclosure or projecting the main responsibility onto another party. In conclusion, our results reveal a discrepancy between public expectations and the actual services offered by clinical genetics. These expectations paired with desire for a more personalized process and shared decision-making highlight a missing link in today\u2019s risk communication and suggest a need for developed clinical routines with stronger healthcare\u2013patient collaboration. Future research needs to investigate the views of genetic professionals on how to address these expectations to co-create a transparent risk disclosure process which can realize the full potential of personalized prevention.<\/jats:p>","DOI":"10.3390\/jpm11111191","type":"journal-article","created":{"date-parts":[[2021,11,12]],"date-time":"2021-11-12T08:10:22Z","timestamp":1636704622000},"page":"1191","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["A Focus Group Study of Perceptions of Genetic Risk Disclosure in Members of the Public in Sweden: \u201cI\u2019ll Phone the Five Closest Ones, but What Happens to the Other Ten?\u201d"],"prefix":"10.3390","volume":"11","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2218-6881","authenticated-orcid":false,"given":"Carolina","family":"Hawranek","sequence":"first","affiliation":[{"name":"Department of Radiation Sciences, Oncology, Ume\u00e5 University, 901 87 Ume\u00e5, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0661-8269","authenticated-orcid":false,"given":"Senada","family":"Hajdarevic","sequence":"additional","affiliation":[{"name":"Department of Nursing, Ume\u00e5 University, 901 87 Ume\u00e5, Sweden"},{"name":"Department of Public Health and Clinical Medicine, Family Medicine, Ume\u00e5 University, 901 87 Ume\u00e5, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2441-2395","authenticated-orcid":false,"given":"Anna","family":"Ros\u00e9n","sequence":"additional","affiliation":[{"name":"Department of Radiation Sciences, Oncology, Ume\u00e5 University, 901 87 Ume\u00e5, Sweden"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"1968","published-online":{"date-parts":[[2021,11,12]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","unstructured":"Brennan, P., and Wild, C.P. 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