{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T05:00:15Z","timestamp":1787029215105,"version":"build-2736575974"},"reference-count":39,"publisher":"MDPI AG","issue":"4","license":[{"start":{"date-parts":[[2023,12,4]],"date-time":"2023-12-04T00:00:00Z","timestamp":1701648000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Nursing Reports"],"abstract":"<jats:p>The value of families and professionals in mental health care is well understood. Patient perspectives appear to have gotten less attention to date. This study investigated the perspectives of hospitalized mental health care users on the involvement of family members in their care using a qualitative phenomenological design. The participants with lived experience of family members being involved in their care were chosen using non-probability, purposive sampling. Individual interviews were carried out with the assistance of a voice recorder and observation notes. Because of data saturation, only fifteen people were interviewed. The interviews were transcribed verbatim and analyzed using Colaizzi\u2019s method. It started with reading and reviewing the transcript to extract key statements about the phenomenon. The meaning was then determined by carefully studying the primary significant statements and phrases. The established meanings were then organized into themes and subthemes. The three themes that emerged from the data analysis are as follows: a wide variation in patients\u2019 perspectives when family members remind them of their medicine, unpredictable visitation by family members, and a lack of support from family members. There were also the following five sub-themes: not visiting mental health care users in the hospital causes uncertainty about their future, mental health care users were concerned by fewer visits from relatives, friends were perceived as a contributory factor to no or limited visitation by family members, disappointment by a lack of financial support, and perceived lack of emotional support from family members. There is a need for family members to visit mental health care users to remove uncertainty about their future. Healthcare providers should listen to mental health care users to identify the challenges they are faced with, and hospital policies tailored to enhancing the involvement of family members should be formulated.<\/jats:p>","DOI":"10.3390\/nursrep13040139","type":"journal-article","created":{"date-parts":[[2023,12,4]],"date-time":"2023-12-04T12:15:14Z","timestamp":1701692114000},"page":"1684-1694","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Perspectives of Hospitalized Mental Health Care Users Concerning the Involvement of Family Members in Their Care: A Qualitative Study"],"prefix":"10.3390","volume":"13","author":[{"given":"Mihloti E.","family":"Shimange","sequence":"first","affiliation":[{"name":"Department of Advanced Nursing Science, Faculty of Health Sciences, University of Venda, Thohoyandou 0950, South Africa"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6121-0488","authenticated-orcid":false,"given":"Hilda N.","family":"Shilubane","sequence":"additional","affiliation":[{"name":"Department of Advanced Nursing Science, Faculty of Health Sciences, University of Venda, Thohoyandou 0950, South Africa"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1968","published-online":{"date-parts":[[2023,12,4]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"100","DOI":"10.1136\/ebnurs-2020-103322","article-title":"Nurses consider family involvement as an important element of patient care","volume":"24","author":"Alcindor","year":"2021","journal-title":"Evid. Based Nurs."},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"995863","DOI":"10.3389\/fpsyt.2022.995863","article-title":"Barriers to family involvement in the care of patients with chronic mental illnesses: A qualitative study","volume":"13","author":"Dehbozorgi","year":"2022","journal-title":"Front. Psychiatry"},{"key":"ref_3","doi-asserted-by":"crossref","unstructured":"Mabunda, N.F., Mangena-Netshikweta, M.L., Lebese, R.T., and Olaniyi, F.C. (2022). Family Perspectives Related to Caring for Mental Health Care Users: A Case Study in the Long-Term Mental Health Institutions of Limpopo Province, South Africa. Int. J. Environ. Res. Public Health, 19.","DOI":"10.3390\/ijerph191710511"},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"268","DOI":"10.1016\/j.pec.2006.05.002","article-title":"Patient involvement in treatment decision-making: The case for a broader conceptual framework","volume":"63","author":"Entwistle","year":"2006","journal-title":"Patient Educ. Couns."},{"key":"ref_5","doi-asserted-by":"crossref","first-page":"1183","DOI":"10.1111\/hex.12402","article-title":"Patient and family involvement in adult critical and intensive care settings: A scoping review","volume":"19","author":"Olding","year":"2016","journal-title":"Health Expect."},{"key":"ref_6","doi-asserted-by":"crossref","first-page":"203","DOI":"10.1111\/j.1365-2850.2007.01213.x","article-title":"Family and carer participation in mental health care: Perspectives of consumers and carers in hospital and home care settings","volume":"15","author":"Lakeman","year":"2008","journal-title":"J. Psychiatr. Ment. Health Nurs."},{"key":"ref_7","doi-asserted-by":"crossref","first-page":"706","DOI":"10.1093\/heapol\/czz085","article-title":"Mental health system costs, resources and constraints in South Africa: A national survey","volume":"34","author":"Docrat","year":"2019","journal-title":"Health Policy Plan."},{"key":"ref_8","doi-asserted-by":"crossref","first-page":"e017680","DOI":"10.1136\/bmjopen-2017-017680","article-title":"Why involve families in acute mental healthcare? A collaborative conceptual review","volume":"7","author":"Dirik","year":"2017","journal-title":"BMJ Open"},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"935","DOI":"10.1111\/jocn.15948","article-title":"Family support and quality of community mental health care: Perspectives from families living with mental illness","volume":"31","author":"Aass","year":"2021","journal-title":"J. Clin. Nurs."},{"key":"ref_10","doi-asserted-by":"crossref","first-page":"872","DOI":"10.1177\/0004867417717798","article-title":"Personality disorder: A mental health priority area","volume":"51","author":"Grenyer","year":"2017","journal-title":"Aust. N. Z. J. Psychiatry"},{"key":"ref_11","doi-asserted-by":"crossref","first-page":"490","DOI":"10.1111\/scs.12531","article-title":"Patient participation in mental health care\u2014Perspectives of healthcare professionals: An integrative review","volume":"32","author":"Rendtorff","year":"2018","journal-title":"Scand. J. Caring Sci."},{"key":"ref_12","doi-asserted-by":"crossref","first-page":"459","DOI":"10.1007\/s10597-014-9761-4","article-title":"A Qualitative Exploration of Service Users\u2019 Information Needs and Preferences When Receiving a Serious Mental Health Diagnosis","volume":"51","author":"Milton","year":"2015","journal-title":"Community Ment. Health J."},{"key":"ref_13","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1186\/s13033-017-0174-y","article-title":"Participation in mental healthcare: A qualitative meta-synthesis","volume":"11","author":"Stomski","year":"2017","journal-title":"Int. J. Ment. Health Syst."},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"568","DOI":"10.1007\/s10597-017-0092-0","article-title":"What is the lived experience of being discharged from a psychiatric inpatient stay?","volume":"53","author":"Redding","year":"2017","journal-title":"Community Ment. Health J."},{"key":"ref_15","doi-asserted-by":"crossref","unstructured":"Raluthaga, N., Shilubane, H.N., and Lowane, M.P. (2023). Relapse among MHCUs after a Short-Term Admission in an Acute Psychiatric Unit: Primary Caregivers\u2019 Perspective. Int. J. Environ. Res. Public Health, 20.","DOI":"10.3390\/ijerph20021384"},{"key":"ref_16","doi-asserted-by":"crossref","first-page":"131","DOI":"10.25159\/2520-5293\/910","article-title":"Registered Nurses Experiences about Family Involvement in the Care of Hospitalised Children at a Tertiary Government Hospital in Malawi","volume":"19","author":"Phiri","year":"2017","journal-title":"Afr. J. Nurs. Midwifery"},{"key":"ref_17","doi-asserted-by":"crossref","first-page":"2333","DOI":"10.1111\/jocn.14337","article-title":"Relatives\u2019 involvement in the care of patients in acute medical wards in two different countries\u2014An ethnographic study","volume":"27","author":"Alshahrani","year":"2018","journal-title":"J. Clin. Nurs."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"237796082210895","DOI":"10.1177\/23779608221089541","article-title":"Family Involvement in Caring for Inpatients in Acute Care Hospital Settings: A Systematic Review of Literature","volume":"8","author":"Gwaza","year":"2022","journal-title":"SAGE Open Nurs."},{"key":"ref_19","unstructured":"Department of Health (2023, August 30). National Mental Health Policy Framework and Strategic Plan 2023\u20132030. 2023. Available online: spotlightnsp.co.za\/wp-content\/uploads\/2023\/04\/NMHP-FINAL-APPROVED-ON-30.04.2023.pdf."},{"key":"ref_20","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s12913-017-2213-4","article-title":"Worlds apart? A scoping review addressing different stakeholder perspectives on barriers to family involvement in the care for persons with severe mental illness","volume":"17","author":"Landeweer","year":"2017","journal-title":"BMC Health Serv. Res."},{"key":"ref_21","unstructured":"Bouverie Centre (2023, August 30). From Individuals to Families: A Client-Centered Framework for Involving Families. Available online: https:\/\/www.latrobe.edu.au\/__data\/assets\/pdf_file\/0006\/1153923\/From-Individual-to-Families-A-client-centred-framework-for-involving-families.pdf."},{"key":"ref_22","doi-asserted-by":"crossref","unstructured":"Maybery, D., Jaffe, I.C., Cuff, R., Duncan, Z., Grant, A., Kennelly, M., Ruud, T., Skogoy, B.E., Weimand, B., and Reupert, A. (2021). Mental health service engagement with family and carers: What practices are fundamental?. BMC Health Serv. Res., 21.","DOI":"10.1186\/s12913-021-07104-w"},{"key":"ref_23","unstructured":"Gray, J.R., and Grove, S.K. (2020). Burns and Grove\u2019s The Practice of Nursing Research: Appraisal, Synthesis, and Generation of Evidence, Elsevier. [9th ed.]."},{"key":"ref_24","first-page":"643","article-title":"Colaizzi\u2019s descriptive phenomenological method","volume":"28","author":"Morrow","year":"2015","journal-title":"Psychologist"},{"key":"ref_25","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1177\/17449871221079175","article-title":"Nurses\u2019 lived experiences of caring for patients with COVID-19: A phenomenological study","volume":"27","author":"Heydarikhayat","year":"2022","journal-title":"J. Res. Nurs."},{"key":"ref_26","unstructured":"Babbie, E., and Mouton, J. (2011). The Practice of Social Research. South African Edition, Oxford University Press."},{"key":"ref_27","unstructured":"De Vos, A.S., Fouch\u00e9, C.B., Strydom, H., and Delport, C.S.L. (2011). Research at Grass Roots for the Social Sciences and Human Science Professions, Van Schaik."},{"key":"ref_28","doi-asserted-by":"crossref","first-page":"33","DOI":"10.4103\/JQSH.JQSH_3_18","article-title":"Involving the family in patient care: A culturally tailored communication model","volume":"1","author":"Jazieh","year":"2018","journal-title":"Glob. J. Qual. Saf. Healthc."},{"key":"ref_29","doi-asserted-by":"crossref","first-page":"551","DOI":"10.1080\/08039488.2017.1352024","article-title":"Risk of violence among patients in psychiatric treatment: Results from a national census","volume":"71","author":"Ose","year":"2017","journal-title":"Nord. J. Psychiatry"},{"key":"ref_30","doi-asserted-by":"crossref","first-page":"561","DOI":"10.1080\/08039488.2018.1497199","article-title":"A review of factors associated with severe violence in schizophrenia","volume":"72","author":"Rund","year":"2018","journal-title":"Nord. J. Psychiatry"},{"key":"ref_31","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1080\/00221309.2019.1640657","article-title":"Jon stress and suicidal ideation among Chinese clinicians: The moderating role of social support","volume":"147","author":"Nie","year":"2019","journal-title":"J. Gen. Psychol."},{"key":"ref_32","doi-asserted-by":"crossref","first-page":"984","DOI":"10.1007\/s11896-022-09556-0","article-title":"How Do Police Officers Cope with Stress? A Qualitative Study","volume":"37","author":"Singo","year":"2022","journal-title":"J. Police Crim. Psychol."},{"key":"ref_33","doi-asserted-by":"crossref","unstructured":"Hojjat, M., and Moyer, A. (2016). The Psychology of Friendship, Oxford Academic.","DOI":"10.1093\/acprof:oso\/9780190222024.001.0001"},{"key":"ref_34","doi-asserted-by":"crossref","first-page":"213","DOI":"10.11622\/smedj.2021057","article-title":"Family engagement as part of managing patients with mental illness in primary care","volume":"62","author":"Ong","year":"2021","journal-title":"Singap. Med. J."},{"key":"ref_35","doi-asserted-by":"crossref","first-page":"58","DOI":"10.1016\/j.paid.2016.07.024","article-title":"PID-5 trait mediation of childhood maltreatment effects","volume":"104","author":"Veith","year":"2017","journal-title":"Pers. Individ. Differ."},{"key":"ref_36","doi-asserted-by":"crossref","unstructured":"Doherr, H., Christalle, E., Kriston, L., H\u00e4rter, M., and Scholl, I. (2017). Use of the 9-item Shared Decision Making Questionnaire (SDM-Q-9 and SDM-Q-Doc) in intervention studies\u2014A systematic review. PLoS ONE, 12.","DOI":"10.1371\/journal.pone.0173904"},{"key":"ref_37","doi-asserted-by":"crossref","unstructured":"Wollburg, C., Steinert, J.I., Reeves, A., and Nye, E. (2023). Do cash transfers alleviate common mental disorders in low- and middle-income countries? A systematic review and meta-analysis. PLoS ONE, 18.","DOI":"10.1371\/journal.pone.0281283"},{"key":"ref_38","first-page":"a929","article-title":"Male partners\u2019 views of involvement in maternal healthcare services at Makhado Municipality clinics, Limpopo Province, South Africa","volume":"8","author":"Nesane","year":"2016","journal-title":"Afr. J. Prm. Health Care Fam. Med."},{"key":"ref_39","doi-asserted-by":"crossref","first-page":"e187494452301230","DOI":"10.2174\/18749445-v16-e230124-2022-179","article-title":"What Support do Family Caregivers For Mental Health Care Users Receive From Healthcare Professionals And Family Members? A Qualitative Study","volume":"16","author":"Raluthaga","year":"2023","journal-title":"Open Public Health J."}],"container-title":["Nursing Reports"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/2039-4403\/13\/4\/139\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T21:37:43Z","timestamp":1760132263000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/2039-4403\/13\/4\/139"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,12,4]]},"references-count":39,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2023,12]]}},"alternative-id":["nursrep13040139"],"URL":"https:\/\/doi.org\/10.3390\/nursrep13040139","relation":{},"ISSN":["2039-4403"],"issn-type":[{"value":"2039-4403","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,12,4]]}}}