{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T14:13:12Z","timestamp":1760105592204,"version":"build-2065373602"},"reference-count":39,"publisher":"MDPI AG","issue":"1","license":[{"start":{"date-parts":[[2024,1,4]],"date-time":"2024-01-04T00:00:00Z","timestamp":1704326400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100001871","name":"Ph.D. Scholarship of Alexandra J\u00f3ni Nogueira","doi-asserted-by":"publisher","award":["SFRH\/BD\/146826\/2019","LISBOA2020","UIDB\/04527\/2020","UIDP\/04527\/2020"],"award-info":[{"award-number":["SFRH\/BD\/146826\/2019","LISBOA2020","UIDB\/04527\/2020","UIDP\/04527\/2020"]}],"id":[{"id":"10.13039\/501100001871","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Fundo Social Europeu (FSE), Programa Operacional Regional de Lisboa","award":["SFRH\/BD\/146826\/2019","LISBOA2020","UIDB\/04527\/2020","UIDP\/04527\/2020"],"award-info":[{"award-number":["SFRH\/BD\/146826\/2019","LISBOA2020","UIDB\/04527\/2020","UIDP\/04527\/2020"]}]},{"name":"the Faculty of Psychology, University of Lisbon","award":["SFRH\/BD\/146826\/2019","LISBOA2020","UIDB\/04527\/2020","UIDP\/04527\/2020"],"award-info":[{"award-number":["SFRH\/BD\/146826\/2019","LISBOA2020","UIDB\/04527\/2020","UIDP\/04527\/2020"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Clinics and Practice"],"abstract":"<jats:p>In Portugal, there are over 7800 children with life-limiting conditions. The context of pediatric palliative care represents a complex and distressing experience for families. Compared to parental caregivers and healthy siblings, grandparents are underexplored in the literature and clinical practice. The aim of the present study is to propose a psychological experience assessment tool of grandparents in this context. It consists of a sociodemographic and clinical data sheet and a semi-structured interview based on sharing a testimony with other grandparents. On the basis of the latter, 10 dimensions were explored through the grandparents\u2019 own perspective: representation of the illness; representation of the sick grandchild; changes in routine and life; family impact; grandparents\u2019 contributions to the family system; social support and coping strategies; emotional impact; triple concern; needs identification; and post-traumatic growth. The tool can be used in person or remotely and may be combined with other instruments. Its application enables a personalized identification of needs and challenges for each family, promoting the adjustment of the clinical intervention to their wellbeing and resilience from an eco-systemic perspective. The clinical tool is presented in detail and its importance in the context of research and systemic intervention is discussed.<\/jats:p>","DOI":"10.3390\/clinpract14010010","type":"journal-article","created":{"date-parts":[[2024,1,4]],"date-time":"2024-01-04T05:23:30Z","timestamp":1704345810000},"page":"122-131","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["The Psychological Experience of Grandparents: Proposal of a Qualitative Clinical Assessment Tool in Pediatric Palliative Care"],"prefix":"10.3390","volume":"14","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2151-7848","authenticated-orcid":false,"given":"Alexandra J\u00f3ni","family":"Nogueira","sequence":"first","affiliation":[{"name":"CICPSI, Faculty of Psychology, University of Lisbon, Alameda da Universidade, 1649-013 Lisbon, Portugal"}]},{"given":"Maria Teresa","family":"Ribeiro","sequence":"additional","affiliation":[{"name":"CICPSI, Faculty of Psychology, University of Lisbon, Alameda da Universidade, 1649-013 Lisbon, Portugal"}]}],"member":"1968","published-online":{"date-parts":[[2024,1,4]]},"reference":[{"key":"ref_1","unstructured":"(2023, January 05). 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