{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,6]],"date-time":"2026-01-06T05:25:06Z","timestamp":1767677106281,"version":"build-2065373602"},"reference-count":81,"publisher":"MDPI AG","issue":"17","license":[{"start":{"date-parts":[[2024,9,4]],"date-time":"2024-09-04T00:00:00Z","timestamp":1725408000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"FCT\u2014Funda\u00e7\u00e3o para a Ci\u00eancia e a Tecnologia","award":["UIDB\/05704\/2020","UIDP\/05704\/2020"],"award-info":[{"award-number":["UIDB\/05704\/2020","UIDP\/05704\/2020"]}]},{"name":"Scientific Employment Stimulus-Institutional Call","award":["UIDB\/05704\/2020","UIDP\/05704\/2020"],"award-info":[{"award-number":["UIDB\/05704\/2020","UIDP\/05704\/2020"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Healthcare"],"abstract":"<jats:p>The COVID-19 pandemic significantly interrupted the grieving experiences of bereaved families and drastically changed their ways of dealing with loss. Our study aims to gain an in-depth understanding of the experience of bereaved relatives of patients who died in palliative care units during the COVID-19 pandemic. The phenomenological research design included sixteen family members of hospitalized palliative patients who died from November 2021 to June 2022. The study involved conducting qualitative in-depth semi-structured interviews with family members 12\u201324 months after the death of their loved ones. The interviews aimed to gather information about the experiences of the families both before and after the death. The COREQ guidelines were applied in the study. Participants were mainly female (n = 13) with a mean age of 47.25 (SD = 12.58). Data were analysed using the Interpretative Phenomenology Analysis (IPA). The following three categories were identified: (1) navigating loved ones\u2019 final weeks and days (troubled deaths); (2) the last farewell was robbed; (3) looking for adjustment after loss. One overall main theme emerged, which was as follows: \u201cStruggling between stolen moments and painful losses to get back into the flow of life\u201d. This study provides novel insights into end-of-life care and bereavement from the perspectives of family. Our findings suggest that developing and promoting family-centred culture can lead to compassionate palliative care focused on a myriad ways of affirming that their loved one matters.<\/jats:p>","DOI":"10.3390\/healthcare12171763","type":"journal-article","created":{"date-parts":[[2024,9,4]],"date-time":"2024-09-04T04:28:28Z","timestamp":1725424108000},"page":"1763","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Family Experiences of Loss and Bereavement in Palliative Care Units during the COVID-19 Pandemic: An Interpretative Phenomenological Study"],"prefix":"10.3390","volume":"12","author":[{"given":"Maria Jo\u00e3o","family":"Mateus","sequence":"first","affiliation":[{"name":"School of Health Sciences, Polytechnic University of Leiria, Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria, Portugal"},{"name":"Palliative Care Inpatient Unit, Local Health Unit of the Aveiro Region, Visconde Salreu Hospital, Rua da Agra 23, 3865-206 Salreu, Portugal"}]},{"given":"Lu\u00eds","family":"Sim\u00f5es","sequence":"additional","affiliation":[{"name":"Department of Psychology, Local Health Unit of Coimbra, Praceta Professor Mota Pinto, 3004-561 Coimbra, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6448-8282","authenticated-orcid":false,"given":"Amira Mohammed","family":"Ali","sequence":"additional","affiliation":[{"name":"Department of Psychiatric Nursing and Mental Health, Faculty of Nursing, Alexandria University, Smouha, Alexandria 21527, Egypt"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1080-9535","authenticated-orcid":false,"given":"Carlos","family":"Laranjeira","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Polytechnic University of Leiria, Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria, Portugal"},{"name":"Centre for Innovative Care and Health Technology (ciTechCare), Polytechnic University of Leiria, Campus 5, Rua das Olhalvas, 2414-016 Leiria, Portugal"},{"name":"Comprehensive Health Research Centre (CHRC), University of \u00c9vora, 7000-801 \u00c9vora, Portugal"}]}],"member":"1968","published-online":{"date-parts":[[2024,9,4]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1136\/bmjspcare-2021-002973","article-title":"End-of-life care in natural disasters including epidemics and pandemics: A systematic review","volume":"13","author":"Kelly","year":"2023","journal-title":"BMJ Support. 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