{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,25]],"date-time":"2026-01-25T02:28:02Z","timestamp":1769308082311,"version":"3.49.0"},"reference-count":101,"publisher":"MDPI AG","issue":"14","license":[{"start":{"date-parts":[[2025,7,15]],"date-time":"2025-07-15T00:00:00Z","timestamp":1752537600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Foundation for Science and Technology","award":["UID\/04923"],"award-info":[{"award-number":["UID\/04923"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Healthcare"],"abstract":"<jats:p>Background\/Objectives: Family self-care (FSC) is increasingly recognized as a vital aspect of caregiving in pediatric chronic conditions. However, its development in families of children with intellectual disabilities (IDs) remains underexplored. This study aimed to examine how families construct and sustain FSC, and to identify factors that shape its development across four domains: physical, cognitive, psychosocial, and behavioral. Methods: A qualitative study was conducted using an abductive approach, combining inductive thematic analysis with a deductively applied theoretical framework. Semi-structured interviews were carried out with nine families of children with ID in southern Portugal. The children ranged in age from 4 to 15 years, and the parents were aged between 29 and 53 years. The data was analyzed using Bardin\u2019s content analysis, supported by NVivo software, and organized according to the FSC framework. This study followed COREQ guidelines. Results: The families described a range of self-care strategies, including environmental adaptations, experiential learning, emotional regulation, and long-term planning. These practices were shaped by contextual factors such as access to healthcare, relationships with professionals, emotional support networks, and socioeconomic conditions. Four emergent conclusions illustrate how structural and relational dynamics influence FSC in daily caregiving. Conclusions: FSC is a dynamic, multidimensional process shaped by lived experience, family interactions, and systemic support. The findings support inclusive, family-centered care models and inform clinical practice, training, and policy in pediatric IDs.<\/jats:p>","DOI":"10.3390\/healthcare13141705","type":"journal-article","created":{"date-parts":[[2025,7,15]],"date-time":"2025-07-15T15:01:05Z","timestamp":1752591665000},"page":"1705","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Family Self-Care in the Context of Intellectual Disabilities: Insights from a Qualitative Study in Portugal"],"prefix":"10.3390","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3175-5708","authenticated-orcid":false,"given":"Teresa Dion\u00edsio","family":"Mestre","sequence":"first","affiliation":[{"name":"Health Department, Polytechnic Institute of Beja, 7800-111 Beja, Portugal"},{"name":"Comprehensive Health Research Center [CHRC], 7004-516 \u00c9vora, Portugal"},{"name":"Health Department, University of \u00c9vora, 7004-811 \u00c9vora, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7554-8041","authenticated-orcid":false,"given":"Manuel Jos\u00e9","family":"Lopes","sequence":"additional","affiliation":[{"name":"Comprehensive Health Research Center [CHRC], 7004-516 \u00c9vora, Portugal"},{"name":"Health Department, University of \u00c9vora, 7004-811 \u00c9vora, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8704-0480","authenticated-orcid":false,"given":"Ana Pedro","family":"Costa","sequence":"additional","affiliation":[{"name":"Comprehensive Health Research Center [CHRC], 7004-516 \u00c9vora, Portugal"},{"name":"Health Department, University of \u00c9vora, 7004-811 \u00c9vora, Portugal"},{"name":"Local Health Unit of Lower Alentejo [ULSBA], 7800-849 Beja, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1949-9262","authenticated-orcid":false,"given":"Ermelinda Valente","family":"Caldeira","sequence":"additional","affiliation":[{"name":"Comprehensive Health Research Center [CHRC], 7004-516 \u00c9vora, Portugal"},{"name":"Health Department, University of \u00c9vora, 7004-811 \u00c9vora, Portugal"}]}],"member":"1968","published-online":{"date-parts":[[2025,7,15]]},"reference":[{"key":"ref_1","doi-asserted-by":"crossref","first-page":"113","DOI":"10.1016\/B978-0-444-64148-9.00009-0","article-title":"Intellectual disability","volume":"Volume 174","year":"2020","journal-title":"Handbook of Clinical Neurology"},{"key":"ref_2","doi-asserted-by":"crossref","first-page":"S23","DOI":"10.21037\/tp.2020.02.02","article-title":"A clinical primer on intellectual disability","volume":"9","author":"Patel","year":"2020","journal-title":"Transl. 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