{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T13:38:52Z","timestamp":1774532332214,"version":"3.50.1"},"reference-count":29,"publisher":"MDPI AG","issue":"18","license":[{"start":{"date-parts":[[2022,9,6]],"date-time":"2022-09-06T00:00:00Z","timestamp":1662422400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["IJERPH"],"abstract":"<jats:p>Mental ill-health is increasingly recognized by policymakers for its significant human and economic toll. The main objective of this study is to capture patient-reported outcomes and experiences on mental health care in Portugal using methods developed for international benchmarking purposes, such as the OECD Patient-reported Indicators Surveys. The study included 397 participants, 247 (62.2%) women, divided into four age groups: ages 16\u201324 years, ages 25\u201344 years, ages 45\u201365 years, and ages 66 years or older. The data collection procedure and analysis followed the OECD PaRIS Mental Health Working Group 2021 protocol allowing subsequent comparability with data from other OECD member countries. Findings on the WHO-5 Well-Being Index showed that women manifest a lower score in well-being following mental health care services use. This finding may be, at least in part, explained by the study population (mental health services users), including individuals with clinical depression which is more frequently observed in women. In terms of the level of satisfaction with treatment (provided by nurses, doctors, phycologists, etc.) the response \u201cYes, definitely\u201d varied from 67% of answers regarding \u201ctime spent by care providers\u201d, 76.3% \u201cinvolvement in decisions\u201d to 79.7% regarding \u201cclarity of explanations\u201d and 84.4% regarding the item courtesy and respect. This study shows the feasibility of implementing and using patient-reported metrics (PROM and PREM) in mental health services in Portugal. The study results generate useful clinical information to help meet the expectations and needs of patients, contributing to a continuous improvement of mental health community services.<\/jats:p>","DOI":"10.3390\/ijerph191811153","type":"journal-article","created":{"date-parts":[[2022,9,6]],"date-time":"2022-09-06T05:17:23Z","timestamp":1662441443000},"page":"11153","update-policy":"https:\/\/doi.org\/10.3390\/mdpi_crossmark_policy","source":"Crossref","is-referenced-by-count":24,"title":["Mental Health Patient-Reported Outcomes and Experiences Assessment in Portugal"],"prefix":"10.3390","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1750-1229","authenticated-orcid":false,"given":"Anabela","family":"Coelho","sequence":"first","affiliation":[{"name":"Comprehensive Health Research Centre (CHRC), Nursing Department, University of \u00c9vora, 7004-516 \u00c9vora, Portugal"},{"name":"H&TRC-Health & Technology Research Center, ESTeSL-Escola Superior de Tecnologia da Sa\u00fade, Instituto Polit\u00e9cnico de Lisboa, 1549-020 Lisbon, Portugal"},{"name":"Global Health and Tropical Medicine, Instituto de Higiene e Medicina Tropical, Universidade NOVA de Lisboa, 1099-085 Lisbon, Portugal"}]},{"given":"Katherine","family":"de Bienassis","sequence":"additional","affiliation":[{"name":"Organisation for Economic Co-Operation and Development, 75016 Paris, France"}]},{"given":"Niek","family":"Klazinga","sequence":"additional","affiliation":[{"name":"Department of Public and Occupational Health, Amsterdam UMC, Amsterdam Public Health Research Institute, University of Amsterdam, 1105 AZ Amsterdam, The Netherlands"}]},{"given":"Susan","family":"Santo","sequence":"additional","affiliation":[{"name":"Consultant Psychiatrist Centro Hospitalar de Entre Douro e Vouga, 4520-211 Santa Maria da Feira, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2512-6710","authenticated-orcid":false,"given":"Patr\u00edcia","family":"Frade","sequence":"additional","affiliation":[{"name":"Psychiatrist, Director of Psychiatry and Mental Health Department and Integrated Responsibility Center, CHO E.P.E, 2500-176 Caldas da Rainha, Portugal"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2727-4402","authenticated-orcid":false,"given":"Andreia","family":"Costa","sequence":"additional","affiliation":[{"name":"Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon (ESEL), 1600-096 Lisbon, Portugal"},{"name":"Cat\u00f3lica Research Centre for Psychological, Family and Social Wellbeing, Faculdade de Ci\u00eancias Humanas, Universidade Cat\u00f3lica Portuguesa, 1649-023 Lisbon, Portugal"},{"name":"Instituto de Sa\u00fade Ambiental (ISAMB), Faculdade de Medicina, Universidade de Lisboa, 1649-028 Lisbon, Portugal"}]},{"given":"T\u00e2nia","family":"Gaspar","sequence":"additional","affiliation":[{"name":"Instituto de Sa\u00fade Ambiental (ISAMB), Faculdade de Medicina, Universidade de Lisboa, 1649-028 Lisbon, Portugal"},{"name":"Digital Human-Environment Interaction Labs (HEI-LAB), Universidade Lus\u00f3fona de Humanidades e Tecnologias, 1749-024 Lisbon, Portugal"}]}],"member":"1968","published-online":{"date-parts":[[2022,9,6]]},"reference":[{"key":"ref_1","unstructured":"OECD (2019). Health at a Glance 2019: OECD Indicators, OECD Publishing."},{"key":"ref_2","unstructured":"OECD\/European Union (2018). Health at a Glance: Europe. 2018: State of Health in the EU Cycle, OECD\/European Union."},{"key":"ref_3","unstructured":"Statista Research Department (2022, June 26). Health Care Expenditure for Mental Health Hospitals in Portugal from 2010 to 2019 (In Million Euros). Available online: https:\/\/www.statista.com\/statistics\/1298445\/portugal-health-care-expenditure-mental-health-hospital\/."},{"key":"ref_4","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1159\/000486052","article-title":"Sistema portugu\u00eas de sa\u00fade mental: Avalia\u00e7\u00e3o cr\u00edtica do modelo de pagamento aos prestadores","volume":"35","author":"Perelman","year":"2017","journal-title":"Port. J. Public Health"},{"key":"ref_5","unstructured":"Cordeiro, J. (1987). A sa\u00fade mental e a vida. Pessoas e Popula\u00e7\u00f5es em Risco Psiqui\u00e1trico, Edi\u00e7\u00f5es Salamandra."},{"key":"ref_6","unstructured":"Organiza\u00e7\u00e3o Mundial de Sa\u00fade (OMS) (2001). Relat\u00f3rio Sobre a Sa\u00fade no Mundo 2001\u2014Sa\u00fade Mental: Nova Conce\u00e7\u00e3o, Nova Esperan\u00e7a, MINISt\u00e9rio de Sa\u00fade, Dire\u00e7\u00e3o-Geral da Sa\u00fade. Available online: https:\/\/www.who.int\/whr\/2001\/en\/whr01_djmessage_po.pdf."},{"key":"ref_7","unstructured":"Caldas de Almeida, J., and Xavier, M. (2015). Estudo Epidemiol\u00f3gico Nacional de Sa\u00fade Mental, Universidade Nova de Lisboa. Faculdade de Ci\u00eancias M\u00e9dicas."},{"key":"ref_8","unstructured":"Entidade Reguladora da Sa\u00fade (ERS) (2015). Acesso e Qualidade Nos Cuidados de Sa\u00fade Mental, ERS."},{"key":"ref_9","doi-asserted-by":"crossref","first-page":"841","DOI":"10.1016\/S0140-6736(07)61414-7","article-title":"Use of mental health services for anxiety, mood, and substance disorders in 17 countries in the WHO world mental health surveys","volume":"370","author":"Wang","year":"2007","journal-title":"Lancet"},{"key":"ref_10","doi-asserted-by":"crossref","unstructured":"Thornicroft, G., Szmukler, G., Mueser, K., and Drake, B. (2011). Treated and untreated prevalence of mental disorder worldwide. Oxford Textbook of Community Mental Health, Oxford University Press.","DOI":"10.1093\/med\/9780199565498.001.0001"},{"key":"ref_11","first-page":"S13","article-title":"The cost and burden of schizophrenia in Portugal in 2015","volume":"4","author":"Gouveia","year":"2017","journal-title":"Int. J. Clin. Neurosci. Ment. Health"},{"key":"ref_12","first-page":"ii3","article-title":"Measuring patient voice matters: Setting the scene for patient-reported indicators","volume":"34","author":"Kristensen","year":"2021","journal-title":"Int. J. Qual. Health Care"},{"key":"ref_13","unstructured":"OECD (2021). Health at a Glance 2021: OECD Indicators, OECD Publishing."},{"key":"ref_14","doi-asserted-by":"crossref","first-page":"56","DOI":"10.1002\/wps.20924","article-title":"The utility of patient-reported outcome measures in mental health","volume":"21","author":"Roe","year":"2022","journal-title":"World Psychiatry"},{"key":"ref_15","unstructured":"De Bienassis, K., Hewlett, E., Kendir, C., Kristensen, S., Mainz, J., and Klazinga, N. (2022). Establishing Standards for Assessing Patient-Reported Outcomes and Experiences of Mental Health Care in OECD Countries: Technical Report of the PaRIS Mental Health Working Group Pilot Data Collection, OECD Publishing. OECD Health Working Papers, No. 135."},{"key":"ref_16","doi-asserted-by":"crossref","unstructured":"OECD (2021). A New Benchmark for Mental Health Systems: Tackling the Social and Economic Costs of Mental Ill-Health, OECD Publishing. OECD Health Policy Studies.","DOI":"10.1787\/c259e79a-en"},{"key":"ref_17","unstructured":"Desomer, A., Van den Heede, K., Triemstra, M., Paget, J., De Boer, D., Kohn, L., and Cleemput, I. (2018). Use of Patient-Reported Outcome and Experience Measures in Patient Care and Policy\u2014Short Report, Health Care Knowledge Centre (KCE). Health Services Research (HSR); KCE Reports 303Cs."},{"key":"ref_18","doi-asserted-by":"crossref","first-page":"1605","DOI":"10.1093\/ndt\/gfv209","article-title":"How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: An expert consensus meeting","volume":"30","author":"Breckenridge","year":"2015","journal-title":"Nephrol. Dial. Transplant."},{"key":"ref_19","doi-asserted-by":"crossref","first-page":"e048488","DOI":"10.1136\/bmjopen-2020-048488","article-title":"What role do patients prefer in medical decision-making? A population-based nationwide cross-sectional study","volume":"11","author":"Teixeira","year":"2021","journal-title":"BMJ Open"},{"key":"ref_20","first-page":"324","article-title":"There\u2019s a gap between digital health information and users\u2014Let\u2019s close it","volume":"25","author":"Hilfiker","year":"2020","journal-title":"Stud. Health Technol. Inform."},{"key":"ref_21","unstructured":"Cordo, M. (2013). Reabilita\u00e7\u00e3o de pessoas com doen\u00e7a mental. Das Fam\u00edlias Para a Institui\u00e7\u00e3o, da Institui\u00e7\u00e3o Para a Fam\u00edlia, Climepsi."},{"key":"ref_22","doi-asserted-by":"crossref","first-page":"493","DOI":"10.1590\/S0104-07072011000300010","article-title":"Projeto terap\u00eautico singular na produ\u00e7\u00e3o do cuidado integral: Uma constru\u00e7\u00e3o coletiva","volume":"20","author":"Pinto","year":"2011","journal-title":"Texto Context. Enferm."},{"key":"ref_23","first-page":"129","article-title":"Depressive disorder burden: Global epidemiological issues and information needs in Portugal","volume":"18","author":"Xavier","year":"2005","journal-title":"Acta. Portuguesa."},{"key":"ref_24","unstructured":"European Institute for Gender Equality (EIGE) (2022, July 28). Gender Equality Index 2020 Portugal (Fact-Sheet). Available online: https:\/\/eige.europa.eu\/publications\/gender-equality-index-2020-portugal?."},{"key":"ref_25","unstructured":"OECD (2020). How\u2019s Life? 2020: Measuring Wellbeing, OECD Publishing."},{"key":"ref_26","unstructured":"(2022, July 28). Comiss\u00e3o Para a Cidadania e a Igualdade de G\u00e9nero, Igualdade de G\u00e9nero em Portugal: Indicadores-Chave 2017, Divis\u00e3o de Documenta\u00e7\u00e3o e Informa\u00e7\u00e3o, Available online: https:\/\/www.cig.gov.pt\/wp-content\/uploads\/2017\/07\/AF_CIG_FactSheet.pdf."},{"key":"ref_27","unstructured":"Comiss\u00e3o Nacional para a Reestrutura\u00e7\u00e3o dos Servi\u00e7os de Sa\u00fade Mental\u2014CNRSSM (2007). Relat\u00f3rio Proposta de Plano de A\u00e7\u00e3o Para a Reestrutura\u00e7\u00e3o e Desenvolvimento Dos Servi\u00e7os de Sa\u00fade Mental em Portugal 2007\u20132016, Minist\u00e9rio da Sa\u00fade. Available online: http:\/\/www.fnerdm.pt\/wp-content\/uploads\/2018\/05\/Reestrutura%C3%A7%C3%A3o-ue-Desenvolvimento-dos-Servi%C3%A7os-de-Sa&C3%BAde-Mental-em-Portugal-Plano-de-a%C3%A7%C3%A3o-2007-2006.pdf."},{"key":"ref_28","unstructured":"Capul, M., and Lemay, M. (2003). Da Educa\u00e7\u00e3o \u00e0 Interven\u00e7\u00e3o Social, Porto Editora."},{"key":"ref_29","doi-asserted-by":"crossref","first-page":"224","DOI":"10.1176\/appi.ps.201400141","article-title":"Using feedback from patient-reported outcome measures in mental health services: A scoping study and typology","volume":"66","author":"Czuba","year":"2015","journal-title":"Psychiatr. Serv."}],"container-title":["International Journal of Environmental Research and Public Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.mdpi.com\/1660-4601\/19\/18\/11153\/pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T00:24:00Z","timestamp":1760142240000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.mdpi.com\/1660-4601\/19\/18\/11153"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,9,6]]},"references-count":29,"journal-issue":{"issue":"18","published-online":{"date-parts":[[2022,9]]}},"alternative-id":["ijerph191811153"],"URL":"https:\/\/doi.org\/10.3390\/ijerph191811153","relation":{},"ISSN":["1660-4601"],"issn-type":[{"value":"1660-4601","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,9,6]]}}}