{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,21]],"date-time":"2026-10-21T22:12:44Z","timestamp":1792620764064,"version":"4.5.0"},"reference-count":31,"publisher":"The Journal of Rheumatology","issue":"5","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Rheumatol"],"published-print":{"date-parts":[[2011,5]]},"abstract":"<jats:sec><jats:title>Objective.<\/jats:title><jats:p>To develop and test a new multidimensional questionnaire for assessment of children with juvenile idiopathic arthritis (JIA) in standard clinical care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods.<\/jats:title><jats:p>The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extraarticular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The JAMAR is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 7\u201318 years for use as a self-report. From March 2007 to September 2009, the questionnaire was completed by the parents of 618 children with JIA in 1814 visits and by 332 children in 749 visits.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results.<\/jats:title><jats:p>The JAMAR was found to be feasible and to possess face and content validity. All parents and children reported that the questionnaire was simple and easy to understand. Completion and scoring appeared to be quick, requiring &lt; 15 minutes. There were very few missing data. Parents\u2019 proxy-reported and children\u2019s self-reported data were remarkably concordant. The JAMAR provided thorough information for the study patients about recent medical history and current health status. It performed similarly across different children\u2019s ages and characterized the level of disease activity and disability well.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion.<\/jats:title><jats:p>The development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA.<\/jats:p><\/jats:sec>","DOI":"10.3899\/jrheum.100930","type":"journal-article","created":{"date-parts":[[2011,3,3]],"date-time":"2011-03-03T05:27:00Z","timestamp":1299130020000},"page":"938-953","source":"Crossref","is-referenced-by-count":159,"title":["A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The Juvenile Arthritis Multidimensional Assessment Report"],"prefix":"10.3899","volume":"38","author":[{"given":"GIOVANNI","family":"FILOCAMO","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"ALESSANDRO","family":"CONSOLARO","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"BENEDETTA","family":"SCHIAPPAPIETRA","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"SARA","family":"DALPR\u00c0","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"BIANCA","family":"LATTANZI","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"SILVIA","family":"MAGNI-MANZONI","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"NICOLINO","family":"RUPERTO","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"ANGELA","family":"PISTORIO","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"SILVIA","family":"PEDERZOLI","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"ADELE","family":"CIVINO","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"DINARA","family":"GUSEINOVA","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"ESTER","family":"MASALA","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"STEFANIA","family":"VIOLA","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"ALBERTO","family":"MARTINI","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"ANGELO","family":"RAVELLI","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2262","published-online":{"date-parts":[[2011,3,1]]},"reference":[{"key":"2018112909262176000_38.5.938.1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pcl.2005.01.009"},{"key":"2018112909262176000_38.5.938.2","doi-asserted-by":"publisher","DOI":"10.1097\/00002281-200309000-00014"},{"key":"2018112909262176000_38.5.938.3","first-page":"226","article-title":"Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care","volume":"27","author":"Feldman","year":"2000","journal-title":"J Rheumatol"},{"key":"2018112909262176000_38.5.938.4","doi-asserted-by":"publisher","DOI":"10.1016\/j.berh.2009.07.001"},{"key":"2018112909262176000_38.5.938.5","doi-asserted-by":"publisher","DOI":"10.1002\/art.22473"},{"key":"2018112909262176000_38.5.938.6","doi-asserted-by":"publisher","DOI":"10.1002\/art.21840"},{"key":"2018112909262176000_38.5.938.7","first-page":"1773","article-title":"Physicians\u2019 and parents\u2019 ratings of inactive disease are frequently discordant in juvenile idiopathic arthritis","volume":"34","author":"Consolaro","year":"2007","journal-title":"J Rheumatol"},{"key":"2018112909262176000_38.5.938.8","doi-asserted-by":"publisher","DOI":"10.1002\/acr.20132"},{"key":"2018112909262176000_38.5.938.9","doi-asserted-by":"crossref","first-page":"1390","DOI":"10.1002\/anr.1780321107","article-title":"Development of a disability measurement tool for juvenile rheumatoid arthritis. 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