{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T22:09:32Z","timestamp":1793398172193,"version":"4.5.0"},"reference-count":11,"publisher":"The Journal of Rheumatology","issue":"8","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Rheumatol"],"published-print":{"date-parts":[[2011,8]]},"abstract":"<jats:sec><jats:title>Objective.<\/jats:title><jats:p>To examine the validity of case definitions for systemic autoimmune rheumatic diseases [SARD; systemic lupus erythematosus (SLE), systemic sclerosis (SSc), myositis, Sj\u00f6gren\u2019s syndrome, vasculitis, and polymyalgia rheumatica] based on administrative data, compared to rheumatology records.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods.<\/jats:title><jats:p>A list of rheumatic disease diagnoses was generated from population-based administrative billing and hospitalization databases. Subjects who had been seen by an arthritis center rheumatologist were identified, and the medical records reviewed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results.<\/jats:title><jats:p>We found that 844 Nova Scotia residents had a diagnosis of one of the rheumatic diseases of interest, based on administrative data, and had had \u2265 1 rheumatology assessment at a provincial arthritis center. Charts were available on 824 subjects, some of whom had been identified in the administrative database with &gt; 1 diagnosis. Thus a total of 1136 diagnoses were available for verification against clinical records. Of the 824 subjects, 680 (83%) had their administrative database diagnoses confirmed on chart review. The majority of subjects who were \u201cfalse-positive\u201d for a given rheumatic disease on administrative data had a true diagnosis of a similar rheumatic disease. Most sensitivity estimates for specific administrative data-based case definitions were &gt; 90%, although for SSc, the sensitivity was 80.5%. The specificity estimates were also &gt; 90%, except for SLE, where the specificity was 72.5%.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion.<\/jats:title><jats:p>Although health administrative data may be a valid resource, there are potential problems regarding the specificity and sensitivity of case definitions, which should be kept in mind for future studies.<\/jats:p><\/jats:sec>","DOI":"10.3899\/jrheum.101149","type":"journal-article","created":{"date-parts":[[2011,5,2]],"date-time":"2011-05-02T00:13:58Z","timestamp":1304295238000},"page":"1612-1616","source":"Crossref","is-referenced-by-count":154,"title":["The Accuracy of Administrative Data Diagnoses of Systemic Autoimmune Rheumatic Diseases"],"prefix":"10.3899","volume":"38","author":[{"given":"SASHA","family":"BERNATSKY","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"TINA","family":"LINEHAN","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"JOHN G.","family":"HANLY","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2262","published-online":{"date-parts":[[2011,5,1]]},"reference":[{"key":"2018112909264449000_38.8.1612.1","first-page":"27","article-title":"Severity of illness in patients with systemic lupus erythematosus hospitalized at academic medical centers","volume":"32","author":"Ward","year":"2005","journal-title":"J Rheumatol"},{"key":"2018112909264449000_38.8.1612.2","unstructured":"Bernatsky S Pineau C . Administrative database research in SLE: a review of potential usefulness and limitations. In: Ulrich CM Bellinger KA , editors. Systemic lupus erythematosus research developments. Hauppauge, NY: Nova Science Publishers; 2007."},{"key":"2018112909264449000_38.8.1612.3","doi-asserted-by":"crossref","first-page":"31","DOI":"10.24095\/hpcdp.29.1.04","article-title":"Population-based data sources for chronic disease surveillance","volume":"29","author":"Lix","year":"2008","journal-title":"Chronic Dis Can"},{"key":"2018112909264449000_38.8.1612.4","first-page":"1944","article-title":"Manpower in Canadian academic rheumatology units: current status and future trends. Canadian Council of Academic Rheumatologists","volume":"28","author":"Hanly","year":"2001","journal-title":"J Rheumatol"},{"key":"2018112909264449000_38.8.1612.5","first-page":"1200","article-title":"Physician resources and postgraduate training in Canadian academic rheumatology centers: a 5-year prospective study","volume":"31","author":"Hanly","year":"2004","journal-title":"J Rheumatol"},{"key":"2018112909264449000_38.8.1612.6","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/29.3.185"},{"key":"2018112909264449000_38.8.1612.7","doi-asserted-by":"publisher","DOI":"10.1002\/art.21695"},{"key":"2018112909264449000_38.8.1612.8","doi-asserted-by":"crossref","first-page":"1594","DOI":"10.1002\/art.1780400908","article-title":"Sensitivity and positive predictive value of Medicare Part B physician claims for rheumatologic diagnoses and procedures","volume":"40","author":"Katz","year":"1997","journal-title":"Arthritis Rheum"},{"issue":"Suppl","key":"2018112909264449000_38.8.1612.9","first-page":"S505","article-title":"Georgia Lupus Registry \u00e2\u0080\u0094 accuracy of hospital discharge data in identifying systemic lupus erythematosus [abstract]","volume":"54","author":"Lim","year":"2007","journal-title":"Arthritis Rheum"},{"issue":"Suppl","key":"2018112909264449000_38.8.1612.10","first-page":"S344","article-title":"Verification of ICD-CM-9 coding for the diagnosis of systemic sclerosis [abstract]","volume":"54","author":"Khurma","year":"2006","journal-title":"Arthritis Rheum"},{"key":"2018112909264449000_38.8.1612.11","doi-asserted-by":"crossref","unstructured":"Bernatsky S Lix L Hanly JG Hudson M Badley E Peschken C Surveillance of systemic autoimmune rheumatic diseases using administrative data. Rheumatol Int 2010 Jul 28 (E-pub ahead of print).","DOI":"10.1007\/s00296-010-1591-2"}],"container-title":["The Journal of Rheumatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/syndication.highwire.org\/content\/doi\/10.3899\/jrheum.101149","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,11,22]],"date-time":"2021-11-22T12:15:56Z","timestamp":1637583356000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.jrheum.org\/lookup\/doi\/10.3899\/jrheum.101149"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2011,5,1]]},"references-count":11,"journal-issue":{"issue":"8","published-online":{"date-parts":[[2011,8,1]]},"published-print":{"date-parts":[[2011,8]]}},"alternative-id":["10.3899\/jrheum.101149"],"URL":"https:\/\/doi.org\/10.3899\/jrheum.101149","relation":{},"ISSN":["0315-162X","1499-2752"],"issn-type":[{"value":"0315-162X","type":"print"},{"value":"1499-2752","type":"electronic"}],"subject":[],"published":{"date-parts":[[2011,5,1]]}}}