{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,10]],"date-time":"2026-06-10T04:57:30Z","timestamp":1781067450362,"version":"3.54.1"},"reference-count":42,"publisher":"The Journal of Rheumatology","issue":"12","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Rheumatol"],"published-print":{"date-parts":[[2020,12,1]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>It is unknown if in axial spondyloarthritis (axSpA) patients\u2019 illness perceptions and coping strategies change when disease activity changes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Patients diagnosed with axSpA and with 1 or more follow-up visits (1 and\/or 2 yrs in the SPACE cohort) were included. Mixed linear models were used for illness perceptions (range 1\u20135), coping (range 1\u20134), back pain (numeric rating scale range 0\u201310), health-related quality of life (range 0\u2013100), physical and mental component summary (PCS and MCS; range 0\u2013100), work productivity loss (WPL; range 0\u2013100), and activity impairment (AI; range 0\u2013100%), separately, to test if they changed over time.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>At baseline, 150 axSpA patients (mean age 30.4 yrs, 51% female, 65% HLA-B27+) had a mean (SD) numeric rating scale back pain of 4.0 (2.5), PCS of 28.8 (14.0), MCS of 47.8 (12.4), WPL of 34.1% (29.8), and AI of 38.7% (27.9). Over 2 years, clinically and statistically significant improvements were seen in the proportion of patients with an Ankylosing Spondylitis Disease Activity Score (ASDAS) of low disease activity (from 39% at baseline to 68% at 2 years), back pain (\u22121.5, SD 2.2), AI (\u221214.4%, SD 27.2), PCS (11.1, SD 13.3), and WPL (\u221215.3%, SD 28.7), but MCS did not change (0.7, SD 13.9; <jats:italic>P<\/jats:italic> = 0.201). In contrast, illness perceptions and coping strategies did not change over a period of 2 years. For example, at 2 years patients believed that their illness had severe \u201cconsequences\u201d (2.8, SD 0.9) and they had negative emotions (e.g., feeling upset or fear) towards their illness [\u201cemotional representation\u201d, 2.5 (0.8)]. Patients most often coped with their pain by putting pain into perspective [\u201ccomforting cognitions\u201d, 2.8 (0.6)] and tended to cope with limitations by being optimistic [\u201coptimism\u201d, 2.9 (0.7)].<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>While back pain, disease activity, and health outcomes clearly improved over 2 years, illness perceptions and coping strategies remained remarkably stable.<\/jats:p><\/jats:sec>","DOI":"10.3899\/jrheum.191353","type":"journal-article","created":{"date-parts":[[2020,5,15]],"date-time":"2020-05-15T16:26:09Z","timestamp":1589559969000},"page":"1752-1759","source":"Crossref","is-referenced-by-count":17,"title":["Do Illness Perceptions and Coping Strategies Change Over Time in Patients Recently Diagnosed With Axial Spondyloarthritis?"],"prefix":"10.3899","volume":"47","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0601-4863","authenticated-orcid":false,"given":"Miranda","family":"van Lunteren","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0577-6620","authenticated-orcid":false,"given":"Robert","family":"Landew\u00e9","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Camilla","family":"Fongen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9683-8873","authenticated-orcid":false,"given":"Roberta","family":"Ramonda","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5781-158X","authenticated-orcid":false,"given":"D\u00e9sir\u00e9e","family":"van der Heijde","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8448-7407","authenticated-orcid":false,"given":"Floris A.","family":"van Gaalen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2262","published-online":{"date-parts":[[2020,5,15]]},"reference":[{"key":"2022062017050882000_47.12.1752.1","doi-asserted-by":"crossref","first-page":"1829","DOI":"10.1002\/acr.23566","article-title":"The impact of illness perceptions and coping on the association between back pain and health outcomes in patients suspected of axial spondyloarthritis: Data from the SpondyloArthritis Caught Early Cohort","volume":"70","author":"van Lunteren","year":"2018","journal-title":"Arthritis Care Res"},{"key":"2022062017050882000_47.12.1752.2","doi-asserted-by":"publisher","DOI":"10.1007\/s10865-016-9782-2"},{"key":"2022062017050882000_47.12.1752.3","doi-asserted-by":"crossref","first-page":"1273","DOI":"10.1177\/1359105316648759","article-title":"Coping strategies among patients newly diagnosed with diabetes or rheumatoid arthritis at baseline and after 24 months","volume":"23","author":"G\u00e5fvels","year":"2018","journal-title":"J Health Psychol"},{"key":"2022062017050882000_47.12.1752.4","doi-asserted-by":"publisher","DOI":"10.1002\/art.24674"},{"key":"2022062017050882000_47.12.1752.5","doi-asserted-by":"crossref","first-page":"2190","DOI":"10.1093\/rheumatology\/key231","article-title":"Illness perceptions and their association with 2 year functional status and change in patients with hand osteoarthritis","volume":"57","author":"Damman","year":"2018","journal-title":"Rheumatology"},{"key":"2022062017050882000_47.12.1752.6","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2003.012435"},{"key":"2022062017050882000_47.12.1752.7","doi-asserted-by":"crossref","first-page":"1117","DOI":"10.1037\/bul0000118","article-title":"The common sense model of self-regulation: Meta-analysis and test of a process model","volume":"143","author":"Hagger","year":"2017","journal-title":"Psychol Bull"},{"key":"2022062017050882000_47.12.1752.8","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/ket164"},{"key":"2022062017050882000_47.12.1752.9","doi-asserted-by":"publisher","DOI":"10.1080\/08870449608400270"},{"key":"2022062017050882000_47.12.1752.10","doi-asserted-by":"publisher","DOI":"10.1080\/08870440290001494"},{"key":"2022062017050882000_47.12.1752.11","doi-asserted-by":"publisher","DOI":"10.1080\/088704403100081321"},{"key":"2022062017050882000_47.12.1752.12","first-page":"40","article-title":"[Development of the CORS. 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