{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,6]],"date-time":"2026-05-06T02:37:45Z","timestamp":1778035065461,"version":"3.51.4"},"reference-count":23,"publisher":"The Journal of Rheumatology","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Rheumatol"],"accepted":{"date-parts":[[2024,12,9]]},"published-print":{"date-parts":[[2025,3]]},"abstract":"<jats:sec><jats:title>Objective<\/jats:title><jats:p>We aimed to evaluate the psychometric properties of the Scleroderma Skin Questionnaire (SSQ), a novel patient-reported outcome (PRO) to assess systemic sclerosis (SSc)\u2013related skin symptoms.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants were recruited from the SSc Collaborative National Quality and Efficacy Registry (CONQUER). Internal consistency was determined using Cronbach \u03b1 and McDonald \u03c9 total (\u03c9<jats:sub>t<\/jats:sub>). The correlation of the SSQ was assessed with the modified Rodnan skin score (mRSS), physician global assessment (PGA), Scleroderma Health Assessment Questionnaire, 29-item Patient-Reported Outcomes Measurement Information System (PROMIS-29), and patient global assessment to assess criterion, convergent, and divergent validity. Correlations were also assessed between patients\u2019 self-reported recall of skin changes over the past 6 months (\u201cSSQ 6-Month\u201d) and 6-month change in mRSS.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The SSQ was administered to 799 adults (mean age 52.7; 83% female) enrolled in CONQUER. Cronbach \u03b1 was 0.90 and \u03c9<jats:sub>t<\/jats:sub>was 0.92, indicating high internal consistency. The SSQ was moderately correlated with mRSS (<jats:italic>r<\/jats:italic>0.56), with stronger correlations in diffuse (<jats:italic>r<\/jats:italic>0.54) vs limited cutaneous subtypes (<jats:italic>r<\/jats:italic>0.24; all<jats:italic>P<\/jats:italic>&lt; 0.05). The SSQ was also moderately-to-strongly correlated with PROMIS-29 physical function (<jats:italic>r<\/jats:italic>\u22120.50) and pain interference subscales (<jats:italic>r<\/jats:italic>0.61), strongly with Health Assessment Questionnaire score (<jats:italic>r<\/jats:italic>0.63) and severity subscale (<jats:italic>r<\/jats:italic>0.62), and moderately with PGA SSc activity score (<jats:italic>r<\/jats:italic>0.48; all<jats:italic>P<\/jats:italic>&lt; 0.05). SSQ 6-Month correlated weakly with the 6-month change in mRSS (<jats:italic>r<\/jats:italic>0.26;<jats:italic>P<\/jats:italic>&lt; 0.05).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>SSQ demonstrated high reliability and moderate correlation with mRSS and legacy PROs. This study provides initial support for SSQ, but not SSQ 6-Month, to assess skin symptoms in patients with SSc.<\/jats:p><\/jats:sec>","DOI":"10.3899\/jrheum.2024-0736","type":"journal-article","created":{"date-parts":[[2025,1,15]],"date-time":"2025-01-15T13:20:21Z","timestamp":1736947221000},"page":"263-269","source":"Crossref","is-referenced-by-count":1,"title":["Psychometric Evaluation of the Scleroderma Skin Questionnaire: A Novel Patient-Reported Outcome for Skin Disease in Patients With Systemic Sclerosis"],"prefix":"10.3899","volume":"52","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9197-1878","authenticated-orcid":false,"given":"Jeong Min","family":"Yu","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1350-5764","authenticated-orcid":false,"given":"John 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