{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,27]],"date-time":"2026-01-27T05:37:10Z","timestamp":1769492230351,"version":"3.49.0"},"reference-count":8,"publisher":"Eksa Editions","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022,3,9]]},"abstract":"<jats:p>Certaines situations cliniques dramatiques, rares mais r\u00e9currentes comme l\u2019asphyxie s\u00e9v\u00e8re \u00e0 la naissance, ouvrent la porte \u00e0 la question taboue de la fin de vie active des nouveau-n\u00e9s. La loi comme la morale l\u2019interdisent formellement, l\u00e0 o\u00f9 elles ouvrent grand les bras aux soins palliatifs n\u00e9onatals en plein essor. Mais ce tabou m\u00e8ne \u00e0 deux paradoxes. Certains de ces b\u00e9b\u00e9s mourront, en soins \u00ab\u00a0 palliatifs \u00a0\u00bb, malgr\u00e9 la volont\u00e9 farouche de leurs parents d\u2019assumer le handicap de leur enfant, l\u00e0 o\u00f9 d\u2019autres survivront dans des conditions \u00e9pouvantables, au grand dam des parents et des soignants priv\u00e9s de cette \u00ab\u00a0libert\u00e9\u00a0\u00bb d\u2019offrir la mort. Dans ces situations exceptionnelles, la limite entre obstination th\u00e9rapeutique, soins palliatifs et fin de vie active est en effet particuli\u00e8rement floue. A travers un cas clinique, nous tentons de lever le voile sur ces questions \u00e9thiques extr\u00eamement complexes qui surviennent \u00e0 l\u2019aube de la vie.<\/jats:p>","DOI":"10.3917\/jibes.324.0119","type":"journal-article","created":{"date-parts":[[2022,3,21]],"date-time":"2022-03-21T10:20:43Z","timestamp":1647858043000},"page":"119-126","source":"Crossref","is-referenced-by-count":0,"title":["Chapitre 6. Fin de vie active des nouveau-n\u00e9s\u00a0: du tabou \u00e0 la r\u00e9alit\u00e9 clinique"],"prefix":"10.54695","volume":"Vol. 32","author":[{"given":"Serge","family":"Vanden Eijnden","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eric","family":"Cavatorta","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"33231","reference":[{"key":"rb1","unstructured":"[1] Avis n\u00b0\u00a065 du Comit\u00e9 Consultatif National d\u2019Ethique pour les sciences de la vie et de la sant\u00e9, 14\u00a0septembre 2000. R\u00e9flexions \u00e9thiques autour de la r\u00e9animation n\u00e9onatale."},{"key":"rb2","unstructured":"[2] Avis n\u00b0\u00a0129 du Comit\u00e9 Consultatif National d\u2019Ethique, 18\u00a0septembre 2018. Contribution du Comit\u00e9 consultatif national d\u2019\u00e9thique \u00e0 la r\u00e9vision de la loi de bio\u00e9thique 2018-2019."},{"key":"rb3","doi-asserted-by":"publisher","first-page":"F102-F107","DOI":"10.1136\/archdischild-2015-308425","article-title":"Neonatal deaths: prospective exploration of the causes and process of end-of-life decisions","volume":"101","author":"Hellmann Jonathan","year":"2016","journal-title":"Archives of Disease in Childhood - Fetal and Neonatal Edition","ISSN":"https:\/\/id.crossref.org\/issn\/1359-2998","issn-type":"print"},{"key":"rb4","unstructured":"[4] https:\/\/www.legifrance.gouv.fr\/eli\/loi\/2005\/4\/22\/SANX0407815L\/jo\/texte LOI n\u00b0\u00a02005-370 du 22\u00a0avril 2005 relative aux droits des malades et \u00e0 la fin de vie."},{"key":"rb5","doi-asserted-by":"publisher","first-page":"85-94","DOI":"10.1016\/j.meddro.2016.05.001","article-title":"La loi no\u00a02016-87\u00a0du 2\u00a0f\u00e9vrier\u00a02016\u00a0cr\u00e9ant de nouveaux droits en faveur des malades et des personnes en fin de vie\u00a0: un nouvel \u00e9quilibre d\u00e9cisionnel\u00a0?","volume":"2016","author":"V\u00e9ron Paul","year":"2016","journal-title":"M\u00e9decine & Droit","ISSN":"https:\/\/id.crossref.org\/issn\/1246-7391","issn-type":"print"},{"key":"rb6","unstructured":"[6] Ethique en N\u00e9onatologie: 30\u00a0ans de r\u00e9flexion Moriette G. . La d\u00e9marche palliative en m\u00e9decine p\u00e9rinatale, sous la direction du Dr Pierre B\u00e9tr\u00e9mieux. \u00c9dit\u00e9 en 2016 par Relations M\u00e9dicales, Paris, 750 pages."},{"key":"rb7","doi-asserted-by":"publisher","first-page":"1315-1320","DOI":"10.1016\/S0140-6736(05)61028-8","article-title":"Medical end-of-life decisions in neonates and infants in Flanders","volume":"365","author":"Provoost Veerle","year":"2005","journal-title":"The Lancet","ISSN":"https:\/\/id.crossref.org\/issn\/0140-6736","issn-type":"print"},{"key":"rb8","doi-asserted-by":"publisher","first-page":"959-962","DOI":"10.1056\/NEJMp058026","article-title":"The Groningen Protocol \u2014 Euthanasia in Severely Ill Newborns","volume":"352","author":"Verhagen Eduard","year":"2005","journal-title":"New England Journal of Medicine","ISSN":"https:\/\/id.crossref.org\/issn\/0028-4793","issn-type":"print"}],"container-title":["Journal international de bio\u00e9thique et d'\u00e9thique des sciences"],"original-title":[],"deposited":{"date-parts":[[2026,1,26]],"date-time":"2026-01-26T19:24:01Z","timestamp":1769455441000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cairn.info\/revue-journal-international-de-bioethique-et-d-ethique-des-sciences-2021-4-page-119.htm?ref=doi"}},"subtitle":[""],"short-title":[],"issued":{"date-parts":[[2022,3,9]]},"references-count":8,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2022,3,9]]}},"URL":"https:\/\/doi.org\/10.3917\/jibes.324.0119","relation":{},"ISSN":["2555-5111"],"issn-type":[{"value":"2555-5111","type":"print"}],"subject":[],"published":{"date-parts":[[2022,3,9]]}}}