{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T03:14:00Z","timestamp":1777518840365,"version":"3.51.4"},"reference-count":50,"publisher":"CAIRN.INFO","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,4,3]]},"abstract":"<jats:p>Introduction\u00a0: la schizophr\u00e9nie est un trouble psychiatrique s\u00e9v\u00e8re, souvent associ\u00e9 \u00e0 la stigmatisation sociale, qui touche environ 1 % de la population fran\u00e7aise. Le d\u00e9veloppement des soins communautaires a augment\u00e9 les responsabilit\u00e9s des familles, dont leur r\u00f4le d\u2019aidant, essentiel au r\u00e9tablissement, qui les expose \u00e0 un fardeau \u00e9motionnel, social et mat\u00e9riel. Objectif\u00a0: explorer le v\u00e9cu des familles accompagnant un proche atteint de schizophr\u00e9nie, afin de comprendre leurs exp\u00e9riences, les ressources mobilis\u00e9es et les obstacles rencontr\u00e9s. M\u00e9thode\u00a0: une \u00e9tude qualitative ph\u00e9nom\u00e9nologique interpr\u00e9tative a \u00e9t\u00e9 men\u00e9e aupr\u00e8s de cinq parents recrut\u00e9s en collaboration avec l\u2019Union nationale des amis et familles de malades psychiques. Les donn\u00e9es ont \u00e9t\u00e9 recueillies par entretiens semi-directifs, et analys\u00e9es par codage th\u00e9matique et interpr\u00e9tation ph\u00e9nom\u00e9nologique. R\u00e9sultats\u00a0: quatre th\u00e8mes \u00e9mergent de l\u2019analyse, dont l\u2019isolement et le processus de stigmatisation traduisant une rupture \u00e0 la fois sociale et identitaire\u00a0; un fardeau \u00e9motionnel et mat\u00e9riel important, marqu\u00e9 par des sentiments de culpabilit\u00e9 et d\u2019\u00e9puisement\u00a0; les strat\u00e9gies de r\u00e9sistance d\u00e9velopp\u00e9es par les familles, fond\u00e9es sur le maintien de l\u2019espoir et la mobilisation de ressources familiales et communautaires\u00a0; et enfin, le caract\u00e8re ambivalent des dispositifs de soutien, oscillant entre reconnaissance du r\u00f4le des proches et attentes insuffisamment satisfaites. Conclusion\u00a0: le v\u00e9cu des aidants r\u00e9v\u00e8le une r\u00e9alit\u00e9 complexe, entre souffrance et r\u00e9silience. La reconnaissance des familles comme partenaires est essentielle pour r\u00e9duire le fardeau et soutenir le r\u00e9tablissement. Les infirmi\u00e8res en pratique avanc\u00e9e jouent un r\u00f4le cl\u00e9 dans l\u2019\u00e9valuation, la psycho\u00e9ducation, la coordination et le d\u00e9veloppement d\u2019approches partenariales.<\/jats:p>","DOI":"10.3917\/rsi.163.0026","type":"journal-article","created":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:06:22Z","timestamp":1777392382000},"page":"26-36","source":"Crossref","is-referenced-by-count":0,"title":["Le v\u00e9cu exp\u00e9rientiel des familles accompagnant un proche atteint de schizophr\u00e9nie\u00a0: une \u00e9tude ph\u00e9nom\u00e9nologique"],"prefix":"10.3917","volume":"N\u00b0 163","author":[{"given":"Aur\u00e9lie","family":"Florentin","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Krishny","family":"Mariadas","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Palmyre","family":"Schenin-King Andrianisaina","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aurore","family":"Margat","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"2273","reference":[{"key":"rb1","doi-asserted-by":"publisher","DOI":"10.1038\/s41380-023-01949-9"},{"key":"rb2","doi-asserted-by":"publisher","DOI":"10.1080\/01612840.2024.2341049"},{"key":"rb3","unstructured":"3INSERM. 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