{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T22:37:23Z","timestamp":1792276643082,"version":"4.4.0"},"reference-count":34,"publisher":"AACN Publishing","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,5,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>To date, no intervention has definitively improved outcomes for families of critical illness survivors. An integrated perspective on caregivers\u2019 needs after critical illness could help identify high-priority intervention targets and improve outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To obtain diverse perspectives on the needs, barriers and facilitators, and social determinants of health associated with family caregiving across the critical illness continuum and assess the extent to which successful caregiving interventions in other populations may be adapted to the critical illness context.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This qualitative content analysis of 31 semistructured interviews and 10 focus groups with family caregivers, health care providers, and health care administrators explored family caregivers\u2019 needs during post\u2013 intensive care unit (ICU) transitions and the barriers and facilitators associated with addressing them. Trained coders analyzed transcripts, identified patterns and categories among the codes, and generated themes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Caregivers have 3 instrumental needs: formal and informal support, involvement in care planning, and education and training. Only caregivers described their self-care and mental health needs. Social determinants of health are the key barriers and facilitators shaping the caregivers\u2019 journey, and caregiving as a social determinant of health was a prominent theme.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Caregivers have instrumental, self-care, and mental health needs after critical illness. Adapting hands-on and skills training interventions to the post-ICU setting, while tailoring interventions to caregivers\u2019 health-related social context, may improve caregiver outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.4037\/ajcc2024309","type":"journal-article","created":{"date-parts":[[2024,4,30]],"date-time":"2024-04-30T22:02:12Z","timestamp":1714514532000},"page":"180-189","source":"Crossref","is-referenced-by-count":14,"title":["Integrating Perspectives on Family Caregiving After Critical Illness: A Qualitative Content Analysis"],"prefix":"10.4037","volume":"33","author":[{"given":"Amanda C.","family":"Moale","sequence":"first","affiliation":[{"name":"Amanda C. Moale is a pulmonary and critical care medicine fellow, Division of Pulmonary, Allergy, Critical Care and Sleep Medicine, Department of Medicine, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erica M.","family":"Motter","sequence":"additional","affiliation":[{"name":"Erica M. Motter is a research coordinator, Department of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Eisenhauer","sequence":"additional","affiliation":[{"name":"Peter Eisenhauer is an internist, Department of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nimit","family":"Gandhi","sequence":"additional","affiliation":[{"name":"Nimit Gandhi is an internist, Department of Medicine, University of North Carolina, Chapel Hill, North Carolina."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S. Peter","family":"Kim","sequence":"additional","affiliation":[{"name":"S. Peter Kim is an internist, Department of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tim D.","family":"Girard","sequence":"additional","affiliation":[{"name":"Tim D. Girard is a professor, Clinical Research, Investigation, and Systems Modeling of Acute Illness (CRISMA) Center, Department of Critical Care Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"suffix":"III","given":"Charles F.","family":"Reynolds","sequence":"additional","affiliation":[{"name":"Charles F. Reynolds III is an emeritus professor, Department of Psychiatry, University of Pittsburgh School of Medicine and University of Pittsburgh Medical Center."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie E.","family":"Leland","sequence":"additional","affiliation":[{"name":"Natalie E. Leland is a professor, Department of Occupational Therapy, University of Pittsburgh."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Judy C.","family":"Chang","sequence":"additional","affiliation":[{"name":"Judy C. Chang is a professor, Department of Obstetrics, Gynecology, and Reproductive Sciences and General Internal Medicine and Clinical and Translational Science Institute, University of Pittsburgh School of Medicine."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leslie P.","family":"Scheunemann","sequence":"additional","affiliation":[{"name":"Leslie P. Scheunemann is an assistant professor, Division of Pulmonary, Allergy, Critical Care and Sleep Medicine, Department of Medicine, University of Pittsburgh Medical Center; and Division of Geriatric Medicine and Gerontology, University of Pittsburgh."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2471","reference":[{"issue":"1","key":"2024050102020670300_b1-0330180","doi-asserted-by":"crossref","first-page":"49","DOI":"10.1001\/journalofethics.2017.18.1.stas1-1601","article-title":"Patient- and family-centered care: a systematic approach to better ethics and care","volume":"18","author":"Millenson","year":"2016","journal-title":"AMA J Ethics"},{"issue":"9","key":"2024050102020670300_b2-0330180","doi-asserted-by":"publisher","first-page":"e493","DOI":"10.1093\/geront\/gnab092","article-title":"Evaluating the positive experience of caregiving: a systematic review of the Positive Aspects of Caregiving 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