{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T03:56:55Z","timestamp":1777953415358,"version":"3.51.4"},"reference-count":51,"publisher":"AOSIS","license":[{"start":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T00:00:00Z","timestamp":1777507200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T00:00:00Z","timestamp":1777507200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Afr. j. disabil."],"abstract":"<jats:p>Background:\u00a0This study utilises the cinematic work \u2018Can You See Us\u2019 as a prism to elucidate contemporary discourse surrounding the intricate tribulations confronted by children with albinism and their mothers. Despite increasing academic research on the connection between albinism and motherhood experiences, meaningful critical discussions on this topic remain inadequately addressed within both scholarly frameworks and African policy and human rights paradigms.Objectives:\u00a0Utilising a human rights-based approach, the inquiry elucidates how systemic sufferings besiege a child with albinism and his mother. It also reveals that the challenges endured by children with albinism and their mothers are not merely individual forays but are intricately interwoven within expansive socio-political matrices that perpetuate inequity and discrimination.Method:\u00a0A mixed qualitative methodology was employed, incorporating film observation and document-based analysis.Results:\u00a0The findings of this study illuminate profound adversities confronted by individuals afflicted with albinism, encompassing destitution, experiences of corporeal and psychological maltreatment, incapacity to participate in normative social interactions, bullying, abuse and violent assaults, which can, in the most grievous of circumstances, culminate in dire outcomes.Conclusion:\u00a0We conclude that the predicaments depicted in the film are pervasive across the African expanse. These challenges ought to be recognised as transgressions against intrinsic human rights. Importantly, the extant regional action plan addressing albinism in Africa neglects the integration of a thorough gender-sensitive paradigm, especially concerning the nuances of motherhood and its confluence with albinism.Contribution:\u00a0This cinematic analysis offers a transformative paradigm for apprehending the experiences of mothers nurturing children with albinism within the African milieu.<\/jats:p>","DOI":"10.4102\/ajod.v15i0.1791","type":"journal-article","created":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T09:06:48Z","timestamp":1777540008000},"update-policy":"https:\/\/doi.org\/10.4102\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["A human rights-based analysis of the experiences and challenges faced by children with albinism and their mothers: Insights from the African film \u2018Can You See Us?\u2019"],"prefix":"10.4102","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1113-0380","authenticated-orcid":false,"given":"Priccilar","family":"Vengesai","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3897-7207","authenticated-orcid":false,"given":"Maureen","family":"Mswela","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"2580","published-online":{"date-parts":[[2026,4,30]]},"reference":[{"key":"ref0","doi-asserted-by":"crossref","unstructured":"Adelakun, O.S. & Ajayi, M.A.O., 2020, \u2018Eliminating discrimination and enhancing equality: A case for inclusive basic education rights of children with albinism in Africa\u2019, Nigerian Journal of Medicine 29(2), 244\u2013251. https:\/\/doi.org\/10.4103\/NJM.NJM_50_20","DOI":"10.4103\/NJM.NJM_50_20"},{"key":"ref1","unstructured":"Africa Albinism Network & Albinism Multipurpose Organisation, n.d., Shadow Report to the Committee on the Rights of Persons with Disabilities for the Review of Zambia: Report on the situation of persons with albinism in Zambia, viewed 14 October 2025, from https:\/\/africaalbinismnetwork.org\/wp-content\/uploads\/2024\/02\/Report-on-the-situation-of-persons-with-albinism-in-Zambia-to-the-CRPD-12.02.2024.pdf."},{"key":"ref2","unstructured":"Africa Albinism Network & Tanzania Albinism Society, 2025, Joint alternative report on the human rights situation of children with albinism in Tanzania submitted to the committee on the rights of the child, viewed 13 October 2025, from https:\/\/africaalbinismnetwork.org\/wp-content\/uploads\/2025\/03\/Joint-Alternative-Report-on-the-Human-Rights-Situation-of-Children-with-Albinism-in-Tanzania.pdf."},{"key":"ref3","unstructured":"African Commission on Human and Peoples\u2019 Rights, 2017, General comment no. 4 on the African charter on human and peoples\u2019 rights, viewed 31 March 2025, from https:\/\/policehumanrightsresources.org\/content\/uploads\/2021\/07\/achpr_general_comment_no._4_english.pdf?x49094."},{"key":"ref4","unstructured":"African Court on Human and Peoples\u2019 Rights, 2025, Centre for human rights and others v united republic of Tanzania, Application 019\/2018, viewed 14 October 2025, from https:\/\/www.african-court.org\/cpmt\/storage\/app\/uploads\/public\/67a\/352\/f2e\/67a352f2e80cc613846453.pdf."},{"key":"ref5","unstructured":"African Union, 1981, African charter on human and peoples\u2019 rights, viewed 31 March 2025, from https:\/\/au.int\/sites\/default\/files\/treaties\/36390-treaty-0011_-_african_charter_on_human_and_peoples_rights_e.pdf."},{"key":"ref6","unstructured":"African Union, 1999, African charter on the rights and welfare of the child, viewed 31 March 2025, from https:\/\/au.int\/sites\/default\/files\/treaties\/36804-treaty-african_charter_on_rights_welfare_of_the_child.pdf."},{"key":"ref7","unstructured":"African Union, 2003, Protocol to the African charter on human and peoples\u2019 rights on the rights of women in Africa, viewed 31 March 2025, from https:\/\/www.au.int\/en\/treaties\/protocol-african-charter-human-and-peoples-rights-rights-women-africa."},{"key":"ref8","unstructured":"African Union, 2018, Protocol to the African charter on human and peoples\u2019 rights on the rights of persons with disabilities in Africa, viewed 31 March 2025, from https:\/\/au.int\/sites\/default\/files\/treaties\/36440-treaty-protocol_to_the_achpr_on_the_rights_of_persons_with_disabilities_in_africa_e.pdf"},{"key":"ref9","unstructured":"African Union: African Committee of Experts on the Rights and Welfare of the Child, 2016, Report on investigative mission on the situation of children with albinism in temporary holding shelters \u2013 Tanzania, viewed 15 October 2025, from https:\/\/www.acerwc.africa\/sites\/default\/files\/2023-02\/Investigative_Mission_on_the_Situation_of_Children_with_Albinism_pages.pdf."},{"key":"ref10","unstructured":"Amato, B., 2019, Albinism inside out, viewed 26 June 2025, from https:\/\/www.wits.ac.za\/news\/latest-news\/research-news\/2019\/2019-11\/albinism-inside-out.html."},{"key":"ref11","unstructured":"Ayuk, B., 2025, \u2018African Court rules in favour of Persons with Albinism, orders Tanzania to take concrete action\u2019, viewed 10 October 2025, from https:\/\/www.ihrda.org\/2025\/02\/african-court-rules-in-favour-of-persons-with-albinism-orders-tanzania-to-take-concrete-action\/."},{"key":"ref12","unstructured":"Banda, E.M., 2024, \u2018Construction of houses for people with albinism on track \u2013 government\u2019, Malawi24, viewed 14 April 2026, from https:\/\/malawi24.com\/2024\/07\/12\/construction-of-houses-for-people-with-albinism-on-track-government\/."},{"key":"ref13","doi-asserted-by":"crossref","unstructured":"Benyah, F., 2017, \u2018Equally able, differently looking: Discrimination and physical violence against persons with albinism in Ghana\u2019, Journal for the Study of Religion 30(1), 161\u2013188. https:\/\/doi.org\/10.1007\/978-3-031-40754-3_33","DOI":"10.17159\/2413-3027\/2017\/v30n1a7"},{"key":"ref14","doi-asserted-by":"crossref","unstructured":"Broberg, M. & Sano, H.-O., 2017, \u2018Strengths and weaknesses in a human rights-based approach to international development \u2013 An analysis of a rights-based approach to development assistance based on practical experiences\u2019, The International Journal of Human Rights 22(5), 664\u2013680. https:\/\/doi.org\/10.1080\/13642987.2017.1408591","DOI":"10.1080\/13642987.2017.1408591"},{"key":"ref15","unstructured":"Buyco, M., Reimer-Kirkham, S., Astle, B., De Waal, M., Kromberg, J., Mazibuko, N. et al., 2025, \u2018Access to healthcare by mothers impacted by albinism in South Africa\u2019, Southern Africa Journal on Albinism Economic and Social Rights Southern Africa 2025, 12\u201315."},{"key":"ref16","unstructured":"BBC Media Action, 2022, Malawi men jailed over murder of man with albinism, viewed 14 April 2026, from https:\/\/www.bbc.com\/news\/world-africa-61959875."},{"key":"ref17","doi-asserted-by":"crossref","unstructured":"Chacon-Hurtado, D., Kazerounian, K., Hertel, S., Mellor, J., Barry, J.J. & Ravindran, T., 2024, \u2018Engineering for human rights: The theory and practice of a human rights\u2013based approach to engineering\u2019, Science, Technology, & Human Values 19(4), 898\u2013934. https:\/\/doi.org\/10.1177\/01622439231211112","DOI":"10.1177\/01622439231211112"},{"key":"ref18","unstructured":"Chagutah, T., 2025, \u2018Southern Africa Journal on albinism economic and social rights southern Africa\u2019, Journal on Albinism Economic and Social Rights 6\u20137, viewed 14 April 2026, from https:\/\/www.amnesty.org\/en\/wp-content\/uploads\/2025\/06\/AFR0194872025ENGLISH.pdf."},{"key":"ref19","unstructured":"Chirwa, M. & Kalaluka, L., 2025, Albinism and rights in Zambia: An exploration of experiences, sociocultural conditions and access to justice\u2019 study report, viewed 14 April 2026, from https:\/\/www.unicef.org\/zambia\/media\/7411\/file\/Albinism-and-Rights-Final-September.pdf.pdf#:~:text=The%20Act%20prohibits%20discrimination%20against,on%20an%20equal%20basis%20with."},{"key":"ref20","doi-asserted-by":"crossref","unstructured":"Diallo, M., Sylla, O., Sidib\u00e9, M.K., Plaisant, C., Mercier, E., Sequeira, A. et al., 2024, \u2018Genotypic spectrum of albinism in Mali\u2019, Pigment Cell & Melanoma Research 37(6), 752\u2013761. https:\/\/doi.org\/10.1111\/pcmr.13175","DOI":"10.1111\/pcmr.13175"},{"key":"ref21","unstructured":"Dixon, R., 2017, \u2018In parts of Africa, people with albinism are hunted for their body parts. The latest victim: A 9-year-old boy\u2019, Los Angeles Times, 15 June, viewed 10 May 2025, from https:\/\/www.latimes.com\/world\/africa\/la-fg-malawi-albinos-hunted-2017-story.html."},{"key":"ref22","unstructured":"Ero, I., Muscati, S., Boulanger, A.-R. & Annamanthadoo, I., 2021, \u2018People with albinism worldwide: A human rights perspective\u2019, viewed 12 December 2025, from https:\/\/www.ohchr.org\/sites\/default\/files\/Documents\/Issues\/Albinism\/Albinism_Worldwide_Report2021_EN.pdf."},{"key":"ref23","doi-asserted-by":"crossref","unstructured":"Franklin, A., Lund, P., Bradbury-Jones, C. & Taylor, J., 2018, \u2018Children with albinism in African regions: Their rights to \u201cbeing\u201d and \u201cdoing\u201d\u2019, BMC International Health and Human Rights 18, 2. https:\/\/doi.org\/10.1186\/s12914-018-0144-8","DOI":"10.1186\/s12914-018-0144-8"},{"key":"ref24","doi-asserted-by":"crossref","unstructured":"Gelaye, T.A., 2021, \u2018The role of human dignity in the \u201chuman rights\u201d jurisprudence of the African commission on human and peoples\u2019 rights\u2019, African Human Rights Yearbook 5(1), 116\u2013134. https:\/\/doi.org\/10.29053\/2523-1367\/2021\/v5a6","DOI":"10.29053\/2523-1367\/2021\/v5a6"},{"key":"ref25","doi-asserted-by":"crossref","unstructured":"Hargovan, H. & Chetty, R., 2023, \u2018The lived experiences of persons with albinism in the Northern Cape, South Africa\u2019, African Journal of Social Work 13(3), 155\u2013166. https:\/\/doi.org\/10.4314\/ajsw.v13i3.4","DOI":"10.4314\/ajsw.v13i3.4"},{"key":"ref26","unstructured":"Home, A., 2002, \u2018Challenging hidden oppression: Mothers caring for children with disabilities\u2019, viewed 31 March 2025, from https:\/\/ojs.uwindsor.ca\/index.php\/csw\/article\/view\/5652\/4620."},{"key":"ref27","doi-asserted-by":"crossref","unstructured":"Ibhawoh, B., Reimer-Kirkham, S., Ero, I., Mgijima-Konopi, I., Beaman, L., Senkoro, P. et al., 2022, \u2018Shifting wrongs to rights: Lessons in human rights from the situation of mothers impacted by albinism in Africa\u2019, Journal of Human Rights Practice 14(3), 838\u2013858. https:\/\/doi.org\/10.1093\/jhuman\/huac038","DOI":"10.1093\/jhuman\/huac038"},{"key":"ref28","unstructured":"Johnson, S., 2023, \u2018\u201cA fire inside me\u201d: The Zambian singer who overcame prejudice to change attitudes to albinism\u2019, The Guardian, 13 September, viewed 08 May 2025, from https:\/\/www.theguardian.com\/global-development\/2023\/sep\/13\/a-fire-inside-me-the-zambian-singer-who-overcame-prejudice-to-change-attitudes-to-albinism#:~:text=Chiti\u2019s%20father%20divorced%20his%20mother,it%20difficult%20to%20fit%20in."},{"key":"ref29","doi-asserted-by":"crossref","unstructured":"Likumbo, N., De Villiers, T. & Kyriacos, U., 2021, \u2018Malawian mothers\u2019 experiences of raising children living with albinism: A qualitative descriptive study\u2019, African Journal of Disability 10, a693. https:\/\/doi.org\/10.4102\/ajod.v10i0.693","DOI":"10.4102\/ajod.v10i0.693"},{"key":"ref30","unstructured":"Malawi News Agency, 2024, \u2018People with albinism hail housing project\u2019, viewed 08 May 2025, from https:\/\/lands.gov.mw\/index.php\/our-projects."},{"key":"ref31","unstructured":"Misic, L., 2024, \u2018How the albino myth is endangering Tanzanian children\u2019, viewed 13 October 2025, from https:\/\/www.humanium.org\/en\/how-the-albino-myth-is-endangering-tanzanian-children\/."},{"key":"ref32","doi-asserted-by":"crossref","unstructured":"Mswela M.M., 2022, \u2018Living with Albinism in South Africa: Uncovering the Health challenges from a legal perspective\u2019, Orbiter 43(1), 25\u201348.","DOI":"10.17159\/obiter.v43i1.13501"},{"key":"ref33","unstructured":"Mswela, M., 2025, \u2018Southern Africa Journal on albinism economic and social rights southern Africa\u2019, Journal on Albinism Economic and Social Rights 24\u201330, viewed n.d., from https:\/\/www.amnesty.org\/en\/wp-content\/uploads\/2025\/06\/AFR0194872025ENGLISH.pdf."},{"key":"ref34","doi-asserted-by":"crossref","unstructured":"Mswela, M.M., 2018, \u2018Does albinism fit within the legal definition of disability in the employment context? A comparative analysis of the judicial interpretation of disability under the SA and the US non-discrimination laws\u2019, Potchefstroom Electronic Law Journal 21, 1\u201337. https:\/\/doi.org\/10.17159\/1727-3781\/2018\/v21i0a1684","DOI":"10.17159\/1727-3781\/2018\/v21i0a1684"},{"key":"ref35","unstructured":"Mtonga T., Lungu F, Kalimaposo K. & Mandyata J., 2025, \u2018Education now: The role of families in the education of learners with albinism in Zambia\u2019, Southern Africa Journal on albinism Economic and Social Rights 67\u201375."},{"key":"ref36","unstructured":"Netflix, 2022, \u2018Can you see us?\u2019, viewed 31 March 2025, from https:\/\/www.netflix.com\/watch\/81682802?trackId=268410292&tctx=0%2C0%2C5572aa66-b56a-4570-9345-6531551f957d-14382030%2C5572aa66-b56a-4570-9345-6531551f957d-14382030%7C2%2Cunknown%2C%2C%2CtitlesResults%2C%2CVideo%3A81682802%2CdetailsPagePlayButton."},{"key":"ref37","doi-asserted-by":"crossref","unstructured":"Ngula, A., 2023, \u2018The power of information and coping with albinism: An autoethnographic study\u2019, IFLA Journal 49(2), 432\u2013442. https:\/\/doi.org\/10.1177\/0340035222110389","DOI":"10.1177\/03400352221103892"},{"key":"ref38","doi-asserted-by":"crossref","unstructured":"Olagunju, A., Mabhala, M., Buck, G. & Taylor, L., 2024, \u2018Being different: What it means to be a person with albinism in Nigeria\u2019, Disability & Society 40(7), 1872\u20131896. https:\/\/doi.org\/10.1080\/09687599.2024.2380502","DOI":"10.1080\/09687599.2024.2380502"},{"key":"ref39","doi-asserted-by":"crossref","unstructured":"Pane, E. & Yanis, T.Z.A., 2023, \u2018Affirmative policy a necessity for fulfilling the political rights of persons with disabilities\u2019, Constitutionale 4(2), 147\u2013158. https:\/\/doi.org\/10.25041\/constitutionale.v4i2.3164","DOI":"10.25041\/constitutionale.v4i2.3164"},{"key":"ref40","unstructured":"Punaks, M., Baker, C. & Miti-Drummond, M.A., 2024, \u2018OHCHR 2023 children with albinism and care identifying family and community-based care solutions for children with albinism\u2019, viewed 10 May 2025, from https:\/\/www.ohchr.org\/sites\/default\/files\/2025-02\/a-79-175-annex.pdf."},{"key":"ref41","doi-asserted-by":"crossref","unstructured":"Rais, F.M, & Fadillah, D., 2025, \u2018Semiotic Analysis of Roland Barthes on the Lyrics of \u201cHOPE\u201d by XXXTENTACION\u2019, Jurnal Audiens 6(1), 1\u201310. https:\/\/doi.org\/10.18196\/jas.v6i1.459","DOI":"10.18196\/jas.v6i1.459"},{"key":"ref42","doi-asserted-by":"crossref","unstructured":"Reimer-Kirkham, S., Astle, B., Ero, I., Imafidon, E. & Strobell, E., 2022, \u2018Mothering, albinism and human rights: The disproportionate impact of health-related stigma in Tanzania\u2019, Foundations of Science 27, 719\u2013740. https:\/\/doi.org\/10.1007\/s10699-020-09701-0","DOI":"10.1007\/s10699-020-09701-0"},{"key":"ref43","doi-asserted-by":"crossref","unstructured":"Reimer-Kirkham, S., Astle, B., Kromberg, J., Mgijima-Konopi, I., Shirley Mooa, R., De Waal, M. et al., 2024, \u2018Birth stories of South African mothers of children with albinism: A critical human rights analysis\u2019, International Journal of Africa Nursing Sciences 20, 100650. https:\/\/doi.org\/10.1016\/j.ijans.2023.100650","DOI":"10.1016\/j.ijans.2023.100650"},{"key":"ref44","unstructured":"Reimer-Kirkham, S., Ero, I., Mgijima-Konopi I., Strobell, E. & Astle, B., 2021, \u2018Mothering and albinism: Recommendations for disability rights in Africa\u2019, African Disability Rights Yearbook 9, 283\u2013292. https:\/\/doi.org\/10.29053\/2413-7138\/2021\/v9a14"},{"key":"ref45","unstructured":"Strobell, E., 2020, \u2018Exploring the experience of mothers who have children with albinism in Tanzania: A critical ethnography\u2019, Masters thesis, Trinity Western University, pp. 1\u2013289."},{"key":"ref46","doi-asserted-by":"crossref","unstructured":"Taylor, J., Bradbury-Jones, C., Ogik, P., Kawuma, F., Betts, J. & Lund, P., 2021, \u2018Reactions to and explanations for the birth of a baby with albinism: A qualitative study in Busoga, Uganda\u2019, BMJ Open 11, e040992. https:\/\/doi.org\/10.1136\/bmjopen-2020-040992","DOI":"10.1136\/bmjopen-2020-040992"},{"key":"ref47","doi-asserted-by":"crossref","unstructured":"Taylor, J.S. & Lund, P., 2008, \u2018Experiences of a feasibility study of children with albinism in Zimbabwe: A discussion paper\u2019, International Journal of Nursing Studies 45, 1247\u20131256. https:\/\/doi.org\/10.1016\/j.ijnurstu.2007.05.009","DOI":"10.1016\/j.ijnurstu.2007.05.009"},{"key":"ref48","unstructured":"United Nations, 1948, Universal declaration of human rights, viewed 14 April 2026, from https:\/\/www.refworld.org\/legal\/resolution\/unga\/1948\/11563."},{"key":"ref49","doi-asserted-by":"crossref","unstructured":"Toki\u0107, A., Ana Sli\u0161kovi\u0107, A. & Ivani\u0161evi\u0107, M.N., 2023, \u2018Well-being of parents of children with disabilities \u2013 Does employment status matter?\u2019, Social Sciences 12(8), 463. https:\/\/doi.org\/10.3390\/socsci12080463","DOI":"10.3390\/socsci12080463"},{"key":"ref50","unstructured":"UN News: United Nations Africa Renewal, 2020, Making education safe for children with albinism in Malawi, viewed 13 October 2025, from https:\/\/africarenewal.un.org\/en\/magazine\/making-education-safe-children-albinism-malawi."}],"container-title":["African Journal of 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