{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T12:12:25Z","timestamp":1747224745908,"version":"3.40.5"},"reference-count":15,"publisher":"AOSIS","issue":"1","license":[{"start":{"date-parts":[[2023,4,20]],"date-time":"2023-04-20T00:00:00Z","timestamp":1681948800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["S Afr Fam Pract"],"abstract":"<jats:p>Palliative care has been defined as \u2018the active holistic care of individuals across all ages with serious health-related suffering due to severe illness, and especially of those near the end of life\u2019. Unfortunately, palliative care and especially paediatric palliative care remain a neglected area of medicine and are widely misunderstood, with few healthcare providers having any formal training in South Africa. To relieve health-related suffering, healthcare providers must understand that the field is not limited to end-of-life care for the terminally ill, and holistic care (physical, emotional, social and spiritual) should commence at the time of diagnosis of a serious illness. It is imperative that all healthcare providers develop the knowledge and skills to provide this essential care across all levels of care and disciplines. The article aims to raise awareness and show how to practically implement palliative care through case studies.<\/jats:p>","DOI":"10.4102\/safp.v65i1.5722","type":"journal-article","created":{"date-parts":[[2023,5,3]],"date-time":"2023-05-03T09:42:37Z","timestamp":1683106957000},"source":"Crossref","is-referenced-by-count":0,"title":["Paediatric palliative care for the generalist"],"prefix":"10.4102","volume":"65","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5327-0029","authenticated-orcid":false,"given":"Julia F.","family":"Ambler","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4706-184X","authenticated-orcid":false,"given":"Christoffel H.","family":"Bell","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"2580","published-online":{"date-parts":[[2023,4,20]]},"reference":[{"key":"ref0","doi-asserted-by":"publisher","unstructured":"Burger H, Krause R, Blanchard C, et al. Position paper on undergraduate Palliative Medicine education for doctors in South Africa. Afr J Prim Health Care Fam Med. 2022;14(1):e1-e7. https:\/\/doi.org\/10.4102\/phcfm.v14i1.3202","DOI":"10.4102\/phcfm.v14i1.3202"},{"key":"ref1","doi-asserted-by":"publisher","unstructured":"Connor S, Sisimayi C, Downing J, et al. Assessment of the need for palliative care for children in South Africa. Int J Palliat Nurs. 2014;20(3):130-134. https:\/\/doi.org\/10.12968\/ijpn.2014.20.3.130","DOI":"10.12968\/ijpn.2014.20.3.130"},{"key":"ref2","doi-asserted-by":"publisher","unstructured":"L\u00fcck P. Paediatric palliative medicine. S. Afr. Med. J [homepage on the Internet]. 2014 [cited 2023 Apr 06];104(7):505-506. Available from: http:\/\/www.scielo.org.za\/scielo.php?script=sci_arttext&pid=S0256-95742014000700022&lng=en","DOI":"10.7196\/SAMJ.8428"},{"key":"ref3","unstructured":"The Hospice and Palliative Care Association of South Africa, facts and figures [homepage on the Internet]. [cited 2023 Jan 25]. Available from: https:\/\/hpca.co.za\/facts-figures\/"},{"key":"ref4","doi-asserted-by":"publisher","unstructured":"Radbruch L, De Lima L, Knaul F, et al. Redefining palliative care - A new consensus-based definition. J Pain Symptom Manage. 2020;60(4):754-764. https:\/\/doi.org\/10.1016\/j.jpainsymman.2020.04.027","DOI":"10.1016\/j.jpainsymman.2020.04.027"},{"key":"ref5","doi-asserted-by":"publisher","unstructured":"Carrasco JM, Inbadas H, Whitelaw A, Clark D. Early impact of the 2014 World Health Assembly Resolution on palliative care: A qualitative study using semi structured interviews with key experts. J Palliat Med. 2021;24(1):103-106. https:\/\/doi.org\/10.1089\/jpm.2019.0384","DOI":"10.1089\/jpm.2019.0384"},{"key":"ref6","unstructured":"National Policy Framework and Strategy on Palliative Care 2017-2022, South African National Department of Health [homepage on the Internet]. [cited 2023 Jan 25]. Available from: https:\/\/health.gov.za\/wp-content\/uploads\/2020\/11\/NationalPolicyFrameworkandStrategyonPalliativeCare20172022.pdf"},{"key":"ref7","doi-asserted-by":"publisher","unstructured":"Wilkinson D. Ethical dilemmas in postnatal treatment of severe congenital hydrocephalus. Camb Q Healthc Ethics. 2016;25(1):84-92. https:\/\/doi.org\/10.1017\/S0963180115000316","DOI":"10.1017\/S0963180115000316"},{"key":"ref8","unstructured":"APPM Master Formulary. The association for Paediatric Palliative Medicine. 5th ed. [homepage on the Internet]. 2020 [cited 2023 Jan 25]. Available from: https:\/\/www.appm.org.uk\/_webedit\/uploaded-files\/All%20Files\/Event%20Resources\/2020%20APPM%20Master%20Formulary%202020%20protected.pdf"},{"key":"ref9","unstructured":"Standard Treatment Guidelines and Essential Medicines List for South Africa. Hospital Level Paediatrics. 2017 edition [homepage on the Internet]. [cited 2023 Jan 25]. Available from: http:\/\/www.kznhealth.gov.za\/pharmacy\/paediatric-stgs-eml_4thed2017.pdf"},{"key":"ref10","unstructured":"Amery J. A really practical handbook of children's Palliative care for doctors and nurses anywhere in the world. Morrisville, NC: Lulu Publishing Services; 2016."},{"key":"ref11","doi-asserted-by":"publisher","unstructured":"Borneman T, Ferrell B, Puchalski CM. Evaluation of the FICA Tool for spiritual assessment. J Pain Symptom Manage. 2010;40(2):163-173. https:\/\/doi.org\/10.1016\/j.jpainsymman.2009.12.019","DOI":"10.1016\/j.jpainsymman.2009.12.019"},{"key":"ref12","unstructured":"Categories of life-limiting illnesses. Together for Short Lives [homepage on the Internet]. [cited 2023 Jan 25]. 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