{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T12:40:46Z","timestamp":1785415246581,"version":"3.56.0"},"reference-count":30,"publisher":"AOSIS","issue":"1","license":[{"start":{"date-parts":[[2026,2,20]],"date-time":"2026-02-20T00:00:00Z","timestamp":1771545600000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"abstract":"<jats:p>Background:\u00a0When a traumatic spinal cord injury (TSCI) happens to healthy individuals, it requires an adjustment to life situations in the community. Exploring the lived experience of spinal cord injury survivors is important because it forms a foundation for designing strategies to improve their reintegration back into the community. There are limited studies in the East and Central African region regarding the experience of community reintegration following a TSCI.\nObjectives:\u00a0This study explored lived experiences of persons with TSCI in Rwanda. Specifically, it sought to identify and understand the barriers and facilitators to living in the community following a TSCI.\nMethod:\u00a0A descriptive qualitative design was employed. Nineteen individuals, purposively selected for diversity, were interviewed face to face. Interviews were audio-recorded and transcribed. Data were thematically analysed.\nResults:\u00a0The mean age of the informants was 40 years, ranging from 21 years to 72 years old. Ten participants had paraplegia, and nine were living with tetraplegia. The themes identified were personal factors, social relationships, community-related factors, preinjury status, and having common conditions. Strong personal resources, a supportive family, health insurance coverage, and peer counselling were reported as facilitators. Barriers include inaccessibility to public buildings and transport, inappropriate assistive devices, inappropriate language and pre-injury conditions.\nConclusion:\u00a0The challenges experienced by people with TSCI range from personal to environmental factors, and from employment to policy issues. This study sheds light on the lived experience of individuals with TSCI. There is a need to review current relevant policies in Rwanda as a first step to addressing these issues.\nClinical implications:\u00a0Rehabilitation services in Rwanda need to be designed to include home-based care. Introducing peer counselling could be beneficial within the rehabilitation programme.<\/jats:p>","DOI":"10.4102\/sajp.v82i1.2273","type":"journal-article","created":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T13:07:07Z","timestamp":1771420027000},"update-policy":"https:\/\/doi.org\/10.4102\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Life after the hospital: Lived experience of people with traumatic spinal cord injury in a resource-constrained setting \u2013 a qualitative study"],"prefix":"10.4102","volume":"82","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7910-5176","authenticated-orcid":false,"given":"Maurice","family":"Kanyoni","sequence":"first","affiliation":[{"name":"University of Rwanda, Kigali, Rwanda"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4564-8623","authenticated-orcid":false,"given":"Margaret I.","family":"Fitch","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/03dbr7087","id-type":"ROR","asserted-by":"publisher"}],"name":"University of Toronto"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7186-8128","authenticated-orcid":false,"given":"Joliana","family":"Phillips","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/03p74gp79","id-type":"ROR","asserted-by":"publisher"}],"name":"University of Cape Town"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9779-7241","authenticated-orcid":false,"given":"Lena","family":"Nilsson-Wikmar","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/04hmgwg30","id-type":"ROR","asserted-by":"publisher"}],"name":"Karolinska Institutet Innovations (Sweden)"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3855-6795","authenticated-orcid":false,"given":"David K.","family":"Tumusiime","sequence":"additional","affiliation":[{"id":[{"id":"https:\/\/ror.org\/00286hs46","id-type":"ROR","asserted-by":"publisher"}],"name":"University of Rwanda"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2580","published-online":{"date-parts":[[2026,2,20]]},"reference":[{"key":"ref0","unstructured":"Akter, F., Islam, S., Haque, O., Hossain, A., Hossain, K.M.A., Imran, M. et al., 2019, \u2018Barriers for individuals with spinal cord injury during community reintegration: A qualitative study\u2019, International Journal of Physical Medicine and Rehabilitation 7(3), 1\u20137."},{"key":"ref1","doi-asserted-by":"crossref","unstructured":"Almalki, S., 2016, \u2018Integrating quantitative and qualitative data in mixed methods research \u2013 Challenges and benefits\u2019, Journal of Education and Learning 5(3), 288. https:\/\/doi.org\/10.5539\/jel.v5n3p288","DOI":"10.5539\/jel.v5n3p288"},{"key":"ref2","doi-asserted-by":"crossref","unstructured":"Babamohamadi, H., Negarandeh, R. & Dehghan-Nayeri, N., 2011, \u2018Barriers to and facilitators of coping with spinal cord injury for Iranian patients: A qualitative study\u2019, Nursing and Health Sciences 13(2), 207\u2013215. https:\/\/doi.org\/10.1111\/j.1442-2018.2011.00602.x","DOI":"10.1111\/j.1442-2018.2011.00602.x"},{"key":"ref3","doi-asserted-by":"crossref","unstructured":"Burns, A.S. & O\u2019Connell, C., 2012, \u2018The challenge of spinal cord injury care in the developing world\u2019, Journal of Spinal Cord Medicine 35(1), 3\u20138. https:\/\/doi.org\/10.1179\/2045772311Y.0000000043","DOI":"10.1179\/2045772311Y.0000000043"},{"key":"ref4","doi-asserted-by":"crossref","unstructured":"Cripps, R.A., Lee, B.B., Wing, P., Weerts, E., Mackay, J. & Brown, D., 2011, \u2018A global map for traumatic spinal cord injury epidemiology: Towards a living data repository for injury prevention\u2019, Spinal Cord 49(4), 493\u2013501. https:\/\/doi.org\/10.1038\/sc.2010.146","DOI":"10.1038\/sc.2010.146"},{"key":"ref5","doi-asserted-by":"crossref","unstructured":"Degener, T., 2017, \u201810 years of convention on the rights of persons with disabilities\u2019, Netherlands Quarterly of Human Rights 35(3), 152\u2013157. https:\/\/doi.org\/10.1177\/0924051917722294","DOI":"10.1177\/0924051917722294"},{"key":"ref6","doi-asserted-by":"crossref","unstructured":"Donovan, W.H., 2007, \u2018Donald Munro lecture: Spinal cord injury \u2013 Past, present, and future\u2019, The Journal of Spinal Cord Medicine 30(2), 85\u2013100. https:\/\/doi.org\/10.1073\/pnas.89.12.5670","DOI":"10.1080\/10790268.2007.11753918"},{"key":"ref7","doi-asserted-by":"crossref","unstructured":"Fuseini, A.G., Aniteye, P. & Alhassan, A., 2019, \u2018Beyond the diagnosis: Lived experiences of persons with spinal cord injury in a selected town in Ghana\u2019, Neurology Research International 2019, 10. https:\/\/doi.org\/10.1155\/2019\/9695740","DOI":"10.1155\/2019\/9695740"},{"key":"ref8","doi-asserted-by":"crossref","unstructured":"Gretschel, D., Visagie, S. & Inglis, G., 2017, \u2018Community integration of adults with disabilities post discharge from an in-patient rehabilitation unit in the Western Cape\u2019, South African Journal of Physiotherapy 73(1), 1\u20137. https:\/\/doi.org\/10.4102\/sajp.v73i1.361","DOI":"10.4102\/sajp.v73i1.361"},{"key":"ref9","unstructured":"Hisham, H., Rosley, H., Manaf, H. & Justine, M., 2022, \u2018Barriers and facilitators to physical activity and exercise among individuals with spinal cord injury: A systematic review\u2019, Malaysian Journal of Medicine and Health Sciences 18(8), 365\u2013373. https:\/\/doi.org\/10.47836\/mjmhs18.8.46"},{"key":"ref10","doi-asserted-by":"crossref","unstructured":"Hossain, M.S., Harvey, L.A., Islam, M.S., Rahman, M.A., Liu, H. & Herbert, R.D., 2020, \u2018Loss of work-related income impoverishes people with SCI and their families in Bangladesh\u2019, Spinal Cord 58(4), 423\u2013429. https:\/\/doi.org\/10.1038\/s41393-019-0382-1","DOI":"10.1038\/s41393-019-0382-1"},{"key":"ref11","doi-asserted-by":"crossref","unstructured":"Hossain, M.S., Rahman, M.A., Bowden, J.L., Quadir, M.M., Herbert, R.D. & Harvey, L.A., 2016, \u2018Psychological and socioeconomic status, complications and quality of life in people with spinal cord injuries after discharge from hospital in Bangladesh: A cohort study\u2019, Spinal Cord 54(6), 483\u2013489. https:\/\/doi.org\/10.1038\/sc.2015.179","DOI":"10.1038\/sc.2015.179"},{"key":"ref12","doi-asserted-by":"crossref","unstructured":"Joseph, C., Wahman, K., Phillips, J. & Wikmar, L.N., 2016, \u2018Client perspectives on reclaiming participation after a traumatic spinal cord injury in South Africa\u2019, Physical Therapy 96(9), 1372\u20131380. https:\/\/doi.org\/10.2522\/ptj.20150258","DOI":"10.2522\/ptj.20150258"},{"key":"ref13","doi-asserted-by":"crossref","unstructured":"Kanyoni, M., Nilsson-Wikmar, L., Phillips, J. & Tumusiime, D.K., 2023, \u2018Quality of life after traumatic spinal cord injury in Rwanda, the impact of personal and contextual factors: A follow-up exploratory study\u2019, Rwanda Journal of Medicine and Health Sciences 6(3), 326\u2013334. https:\/\/doi.org\/10.4314\/rjmhs.v6i3.6","DOI":"10.4314\/rjmhs.v6i3.6"},{"key":"ref14","doi-asserted-by":"crossref","unstructured":"Kanyoni, M., Wikmar, L.N., Philips, J., Joseph, C. & Tumusiime, D.K., 2024a, \u2018Incidence and etiology of traumatic spinal cord injury in Rwanda: A prospective population-based study\u2019, Frontiers in Neurology 15, 1373893. https:\/\/doi.org\/10.3389\/fneur.2024.1373893","DOI":"10.3389\/fneur.2024.1373893"},{"key":"ref15","doi-asserted-by":"crossref","unstructured":"Kanyoni, M., Wikmar, L.N., Philips, J. & Tumusiime, D.K., 2024b, \u2018Psychosocial reintegration post-traumatic spinal cord injury in Rwanda: An exploratory study\u2019, South African Journal in Physiotherapy 80(1), 1996. https:\/\/doi.org\/10.4102\/sajp.v80i1.1996","DOI":"10.4102\/sajp.v80i1.1996"},{"key":"ref16","doi-asserted-by":"crossref","unstructured":"L\u00f6fvenmark, I., Hasselberg, M., Nilsson Wikmar, L., Hultling, C. & Norrbrink, C., 2017, \u2018Outcomes after acute traumatic spinal cord injury in Botswana: From admission to discharge\u2019, Spinal Cord 55(2), 208\u2013212. https:\/\/doi.org\/10.1038\/sc.2016.122","DOI":"10.1038\/sc.2016.122"},{"key":"ref17","doi-asserted-by":"crossref","unstructured":"L\u00f6fvenmark, I., Norrbrink, C., Wikmar, L.N. & L\u00f6fgren, M., 2016, \u2018\u201cThe moment I leave my home \u2013 There will be massive challenges\u201d: Experiences of living with a spinal cord injury in Botswana\u2019, Disability and Rehabilitation 38(15), 1483\u20131492. https:\/\/doi.org\/10.3109\/09638288.2015.1106596","DOI":"10.3109\/09638288.2015.1106596"},{"key":"ref18","doi-asserted-by":"crossref","unstructured":"Monden, K.R., Trost, Z., Catalano, D., Garner, A.N., Symcox, J., Driver, S. et al., 2014, \u2018Resilience following spinal cord injury: A phenomenological view\u2019, Spinal Cord 52(3), 197\u2013201. https:\/\/doi.org\/10.1038\/sc.2013.159","DOI":"10.1038\/sc.2013.159"},{"key":"ref19","unstructured":"National Institute of Statistics of Rwanda, and Ministry of Finance and Economic Planning, 2014, Rwanda fourth population and housing census. Final results: Publication tables, National Institute of Statistics of Rwanda, Kigali."},{"key":"ref20","doi-asserted-by":"crossref","unstructured":"Nowell, L.S., Norris, J.M., White, D.E. & Moules, N.J., 2017, \u2018Thematic analysis: Striving to meet the trustworthiness criteria\u2019, International Journal of Qualitative Methods 16(1), 1\u201313. https:\/\/doi.org\/10.1177\/1609406917733847","DOI":"10.1177\/1609406917733847"},{"key":"ref21","unstructured":"Republic of Rwanda \u2013 Ministry of Infrastructure, 2012, Republic of Rwanda Ministry of Infrastructure Public Transport Policy and Strategy."},{"key":"ref22","unstructured":"Rohwerder, B., 2018, Assistive technologies in developing countries, Helpdesk Report K4D: Knowledge, Evidence, and Learning for Development, Institute of Development Studies, London."},{"key":"ref23","doi-asserted-by":"crossref","unstructured":"Shenton, A.K., 2004, \u2018Strategies for ensuring trustworthiness in qualitative research projects\u2019, Education for Information 22(2), 63\u201375. https:\/\/doi.org\/10.3233\/EFI-2004-22201","DOI":"10.3233\/EFI-2004-22201"},{"key":"ref24","doi-asserted-by":"crossref","unstructured":"Van Hees, S.G.M., O\u2019Fallon, T., Hofker, M., Dekker, M., Polack, S., Banks, L.M. et al., 2019, \u2018Leaving no one behind? Social inclusion of health insurance in low- and middle-income countries: A systematic review\u2019, International Journal for Equity in Health 18(1), 134. https:\/\/doi.org\/10.1186\/s12939-019-1040-0","DOI":"10.1186\/s12939-019-1040-0"},{"key":"ref25","unstructured":"Vincent, M., n.d., Republic of Rwanda: Rwandan cultural values in national development, pp. 1\u201374, National Commission for Unity and Reconciliation, Kigali."},{"key":"ref26","doi-asserted-by":"crossref","unstructured":"Wong, M.M.Y., Seliman, M., Loh, E., Mehta, S. & Wolfe, D.L., 2022, \u2018Experiences of individuals living with spinal cord injuries (SCI) and acquired brain injuries (ABI) during the COVID-19 pandemic\u2019, Disabilities 2(4), 750\u2013763. https:\/\/doi.org\/10.3390\/disabilities2040052","DOI":"10.3390\/disabilities2040052"},{"key":"ref27","doi-asserted-by":"crossref","unstructured":"World Health Organization, 2003, International perspectives on spinal cord injury, p. 250, The National Association of Resident Doctors of Nigeria, WHO, Malta. https:\/\/doi.org\/10.1007\/978-1-4899-1028-8_18","DOI":"10.1007\/978-1-4899-1028-8_18"},{"key":"ref28","unstructured":"World Health Organization, 2013, \u2018International perspectives on spinal cord injury\u2019, The Lancet 1\u2013247."},{"key":"ref29","unstructured":"World Health Organization, 2023, Meeting resolutions: The participants of the meeting Rehabilitation 2030 acknowledge the following, viewed July 2022, from https:\/\/www.who.int\/docs\/default-source\/documents\/health-topics\/rehabilitation\/callforaction2.pdf?sfvrsn=50299fc6_2."}],"container-title":["South African Journal of Physiotherapy"],"original-title":[],"link":[{"URL":"https:\/\/sajp.co.za\/index.php\/sajp\/article\/view\/2273\/4098","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T13:07:15Z","timestamp":1771420035000},"score":1,"resource":{"primary":{"URL":"https:\/\/sajp.co.za\/index.php\/sajp\/article\/view\/2273"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,20]]},"references-count":30,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2026,1,1]]}},"URL":"https:\/\/doi.org\/10.4102\/sajp.v82i1.2273","relation":{},"ISSN":["0379-6175","2410-8219"],"issn-type":[{"value":"0379-6175","type":"print"},{"value":"2410-8219","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,20]]},"article-number":"a2273"}}