{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,26]],"date-time":"2026-08-26T18:23:07Z","timestamp":1787768587096,"version":"build-2784847793"},"reference-count":29,"publisher":"Ovid Technologies (Wolters Kluwer Health)","issue":"1","content-domain":{"domain":["lww.com","ovid.com"],"crossmark-restriction":true},"short-container-title":[],"abstract":"\n BACKGROUND:<\/jats:title>\n Scleroderma is a rare disease with complex disorders. It affects the quality of life with severe impacts on the skin and extensive complications in the internal organs, and does not have a definitive treatment. This study aimed to investigate the effect of a self-management program on the quality of life of patients with scleroderma.<\/jats:p>\n <\/jats:sec>\n \n MATERIALS AND METHODS:<\/jats:title>\n This was a clinical trial in which 54 patients with scleroderma were randomly divided into two groups of 27 each (experimental and control groups). The data were collected using the Systemic Sclerosis Questionnaire. A self-management program was sent to the experimental group via a mobile phone application (WhatsApp) every day for three months. Statistical analysis was performed in Statistical Package for the Social Sciences V21.<\/jats:p>\n <\/jats:sec>\n \n RESULTS:<\/jats:title>\n \n The Wilcoxon signed-rank test showed that the average overall quality of life score of the experimental group showed a significant increase after the implementation of the program (\n P<\/jats:italic>\n value: 0.00). The average overall quality of life score of the control group also significantly declined after the intervention (\n P<\/jats:italic>\n value: 0.00). The Mann-Whitney U test revealed that there was no significant difference in the overall quality of life score of the two groups before the intervention (\n P<\/jats:italic>\n value: 0.31); however, after the implementation of the self-management program, a significant difference was observed between the two groups (\n P<\/jats:italic>\n value: 0.00).\n <\/jats:p>\n <\/jats:sec>\n \n CONCLUSION:<\/jats:title>\n According to the results, the self-management program can help improve the quality of life of patients with scleroderma.<\/jats:p>\n <\/jats:sec>","DOI":"10.4103\/jehp.jehp_1690_22","type":"journal-article","created":{"date-parts":[[2024,1,22]],"date-time":"2024-01-22T10:00:48Z","timestamp":1705917648000},"update-policy":"https:\/\/doi.org\/10.1097\/lww.0000000000001000","source":"Crossref","is-referenced-by-count":1,"title":["The effect of a self-management program on the quality of life of patients with 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