{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,24]],"date-time":"2026-07-24T16:58:33Z","timestamp":1784912313156,"version":"3.55.0"},"reference-count":34,"publisher":"SAGE Publications","issue":"7","license":[{"start":{"date-parts":[[2015,7,1]],"date-time":"2015-07-01T00:00:00Z","timestamp":1435708800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Respir Care"],"published-print":{"date-parts":[[2015,7]]},"abstract":"<jats:sec>\n                    <jats:title>BACKGROUND:<\/jats:title>\n                    <jats:p>Mechanical insufflation-exsufflation (MI-E) is increasingly used in the home management of children with neuromuscular disease. Research to date has focused on the effect of MI-E on physical health. The aim of this study was to qualitatively investigate the impact of home MI-E on the child and family's lifestyle.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>METHODS:<\/jats:title>\n                    <jats:p>Eight parents and 3 children participated in semistructured interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>RESULTS:<\/jats:title>\n                    <jats:p>Five themes emerged from parent interviews demonstrating: (1) lifestyle implications, (2) parents becoming experts, (3) parents developing a sense of control over their child's condition, (4) an element of extra care, and (5) impacts on the parent-child relationship. Developing themes from the child interviews showed them adjusting to and then relying on the device. Home MI-E medicalized the home, but the overall lifestyle impact was positive.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>CONCLUSIONS:<\/jats:title>\n                    <jats:p>Although involving a small number of subjects, this study demonstrated a mixture of opposing impacts of home MI-E on lifestyle, both enabling and disabling, which need to be considered when introducing home MI-E. The positive impacts included greater ability to manage the child's health, including avoidance of hospital admissions. Negative impacts were greatest for those parents who were sole operators of the device, including a frequently disrupted lifestyle.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.4187\/respcare.03641","type":"journal-article","created":{"date-parts":[[2014,12,16]],"date-time":"2014-12-16T23:53:46Z","timestamp":1418774026000},"page":"967-974","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":24,"title":["Lifestyle Implications of Home Mechanical Insufflation-Exsufflation for Children With Neuromuscular Disease and Their Families"],"prefix":"10.1177","volume":"60","author":[{"given":"Fiona C","family":"Moran","sequence":"first","affiliation":[{"name":"Department of Physiotherapy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alicia J","family":"Spittle","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy, Melbourne School of Health Sciences, University of Melbourne, Victoria, Australia."},{"name":"Murdoch Childrens Research Institute, Parkville, Victoria, Australia."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Clare","family":"Delany","sequence":"additional","affiliation":[{"name":"Children's Bioethics Centre, The Royal Children's Hospital, Parkville, Victoria, Australia."},{"name":"Department of Physiotherapy, Melbourne School of Health Sciences, University of Melbourne, Victoria, Australia."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2015,7,1]]},"reference":[{"key":"e_1_3_2_2_2","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-0496(200002)29:2<141::AID-PPUL9>3.0.CO;2-Y"},{"key":"e_1_3_2_3_2","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.03.00048102"},{"key":"e_1_3_2_4_2","doi-asserted-by":"publisher","DOI":"10.1080\/10790268.2000.11753511"},{"key":"e_1_3_2_5_2","doi-asserted-by":"publisher","DOI":"10.1097\/01.PHM.0000087456.28979.2E"},{"key":"e_1_3_2_6_2","doi-asserted-by":"publisher","DOI":"10.1378\/chest.104.5.1553"},{"issue":"2","key":"e_1_3_2_7_2","first-page":"170","article-title":"Airway secretion clearance by mechanical exsufflation for post-poliomyelitis ventilator-assisted individuals","volume":"74","author":"Bach JR","year":"1993","unstructured":"Bach JR, , Smith WH, , Michaels J, , Saporito L, , Alba AS, , Dayal R, , Pan J. 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