{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,16]],"date-time":"2026-07-16T01:45:47Z","timestamp":1784166347523,"version":"3.55.0"},"reference-count":27,"publisher":"American Society of Tropical Medicine and Hygiene","issue":"3_Suppl","license":[{"start":{"date-parts":[[2024,9,3]],"date-time":"2024-09-03T00:00:00Z","timestamp":1725321600000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,9,3]]},"abstract":"<jats:title>ABSTRACT.<\/jats:title>\n<jats:p>Support groups can create environments that are conducive to healing and well-being, particularly for persons with stigmatizing chronic diseases. In 1998, the support group concept was adapted in Haiti for persons with disabling lymphedema caused by lymphatic filariasis (LF). The project was developed with the expectation that the support group model conceived in the developed world be interpreted and modified by persons affected with lymphedema in the Haitian setting. Initiated with modest financial support within a research initiative to eliminate LF, a total of 50 \u201cHope Clubs\u201d were formed from 1998 to 2023 across seven communes (districts) located in 3 of Haiti\u2019s 10 regional Departments. Documented benefits of the support groups included improved limb self-care, decreased incidence of inflammatory episodes (adenolymphangitis), enhanced self-efficacy, economic benefit through microenterprise, and improved quality of life. Despite challenges of funding shortfalls, natural disasters, and political insecurity, persistence of LF support groups in Haiti highlights the crucial role of group ownership by affected persons and the freedom to reinvent the support group concept in light of local social, cultural, and economic conditions.<\/jats:p>","DOI":"10.4269\/ajtmh.23-0607","type":"journal-article","created":{"date-parts":[[2024,4,23]],"date-time":"2024-04-23T14:43:15Z","timestamp":1713883395000},"page":"89-92","source":"Crossref","is-referenced-by-count":1,"title":["Over 25 Years of Hope: Development of Lymphatic Filariasis Patient Support Groups in Haiti"],"prefix":"10.4269","volume":"111","author":[{"given":"Valery Madsen","family":"Beau De Rochars","sequence":"first","affiliation":[{"name":"Department of Health Services Research, Management and Policy, College of Public Health and Health Professions, University of Florida, Gainesville, Florida;"},{"name":"Emerging Pathogens Institute, University of Florida, Gainesville, Florida;"},{"name":"The Carter Center, Atlanta, Georgia;"},{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeannine","family":"Coreil","sequence":"additional","affiliation":[{"name":"Department of Community and Family Health, College of Public Health, University of South Florida, Tampa, Florida;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martha","family":"D\u00e9sir","sequence":"additional","affiliation":[{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gladys","family":"Mayard","sequence":"additional","affiliation":[{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"},{"name":"Centre de Recherche et Service Social Humanitaire, Port-au-Prince, Haiti;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie Carmel","family":"Michel","sequence":"additional","affiliation":[{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie Denise","family":"Milord","sequence":"additional","affiliation":[{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rand","family":"Carpenter","sequence":"additional","affiliation":[{"name":"Mennonite Central Committee, Akron, Pennsylvania;"},{"name":"IMA World Health, Washington, District of Columbia;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thomas G.","family":"Streit","sequence":"additional","affiliation":[{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"},{"name":"University of Notre Dame, South Bend, Indiana;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lucc\u00e8ne","family":"D\u00e9sir","sequence":"additional","affiliation":[{"name":"The Carter Center, Atlanta, Georgia;"},{"name":"H\u00f4pital Sainte Croix, Leogane, Haiti;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gregory S.","family":"Noland","sequence":"additional","affiliation":[{"name":"The Carter Center, Atlanta, Georgia;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David G.","family":"Addiss","sequence":"additional","affiliation":[{"name":"Focus Area for Compassion and Ethics, The Task Force for Global Health, Decatur, Georgia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"2795","reference":[{"key":"b1","series-title":"J Infect Dis","first-page":"1178","article-title":"Heterogeneity in filarial-specific immune responsiveness among patients with lymphatic obstruction","volume":"167","author":"Lammie","year":"1993"},{"key":"b2","series-title":"Parasitology","first-page":"409","article-title":"Re-assessing the global prevalence and distribution of lymphatic filariasis","volume":"112","author":"Michael","year":"1996"},{"key":"b3","series-title":"Trans R Soc Trop Med 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