{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,2]],"date-time":"2026-04-02T16:51:19Z","timestamp":1775148679679,"version":"3.50.1"},"reference-count":34,"publisher":"American Spinal Injury Association","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>To establish the utility and feasibility of the International Spinal Cord Injury\/Dysfunction (SCI\/D) Bowel Function Basic Data Set Version 2.0 in pediatric SCI populations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>This was a noninterventional, repeated measure design conducted in Pennsylvania, Maryland, Illinois, Kentucky, and South Carolina. The International Spinal Cord Injury\/Dysfunction (SCI\/D) Bowel Function Basic Data Set Version 2.0 was administered repeatedly, twice at the point of care and once over the phone. Time to complete the data set was recorded. Inter- and intrarater reliability was examined by intraclass correlation coefficients (ICC) with 95% confidence intervals (CI), and agreement between the bowel function basic data set variables and medical records was calculated using percentages. Intrarater reliability involved the same person administering the data once at the point of care and once over the phone.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Forty-one children\/youth ages 1 to 20 years participated in this study. Average time to complete the data set was 5.17 minutes. Interrater reliability was good to excellent (ICC \u2265 0.75) for most variables. Five variables had moderate interrater reliability (ICC = 0.05\u20130.74) and three had poor interrater reliability (ICC &lt; 0.05). With the exception of one variable that had poor intrarater reliability (constipating agent, ICC = 0.00) and one that approached moderate reliability (digital evacuation, ICC = 0.74), intrarater reliability was good to strong for every bowel variable (ICC = 0.88\u20131.00). Only 12 (32%) medical records had explicit documentation of one or more of the variables on the Basic Bowel Function Basic Data Set V2.0.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The results support future research with a larger and more diverse sample of children with SCI to build upon the psychometric work described herein.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.46292\/sci19-00001","type":"journal-article","created":{"date-parts":[[2021,10,22]],"date-time":"2021-10-22T19:12:24Z","timestamp":1634929944000},"page":"21-33","source":"Crossref","is-referenced-by-count":1,"title":["Evaluation of the International Spinal Cord Injury Bowel Function Basic Data Set Version 2.0 in Children and Youth With Spinal Cord Injury"],"prefix":"10.46292","volume":"28","author":[{"given":"Kathryn","family":"Dent","sequence":"first","affiliation":[{"name":"Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathy","family":"Zebracki","sequence":"additional","affiliation":[{"name":"Shriners Hospitals for Children, Chicago, Illinois"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cristina","family":"Sadowsky","sequence":"additional","affiliation":[{"name":"International Center for Spinal Cord Injury, Kennedy Krieger Institute, Baltimore, Maryland"},{"name":"Physical Medicine and Rehabilitation, Johns Hopkins School of Medicine, Baltimore, Maryland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Martin","sequence":"additional","affiliation":[{"name":"International Center for Spinal Cord Injury, Kennedy Krieger Institute, Baltimore, Maryland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrea","family":"Behrman","sequence":"additional","affiliation":[{"name":"Department of Neurosurgery, Kentucky Spinal Cord Injury Research Center, University of Louisville, Louisville, Kentucky"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bethany","family":"Lipa","sequence":"additional","affiliation":[{"name":"Shriners Hospitals for Children, Philadelphia, Pennsylvania"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fin","family":"Biering-S\u00f8rensen","sequence":"additional","affiliation":[{"name":"Section for Spinal Cord Injuries, Department for Brain and Spinal Cord Injuries, Rigshospitalet, HornBaek, Denmark"},{"name":"Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lawrence C.","family":"Vogel","sequence":"additional","affiliation":[{"name":"Shriners Hospitals for Children, Chicago, Illinois"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"MJ","family":"Mulcahey","sequence":"additional","affiliation":[{"name":"Center for Outcomes and Measurement & Department of Occupational Therapy, Jefferson College of Rehabilitation Sciences, Thomas Jefferson University, Philadelphia, Pennsylvania"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"25425","reference":[{"key":"i1945-5763-28-1-21-b1","series-title":"Clin Colon Surg","first-page":"113","article-title":"Bowel management in spinal cord injury patients","volume":"27","year":"2014","unstructured":"Hughes\n              M.\n            \n          \n          Bowel management in spinal cord injury patients.\n\t\t\t\t\tClin Colon Surg.\n\t\t\t\t\t2014;\n\t\t\t\t\t27:\n\t\t\t\t\t113\u2013\n\t\t\t\t\t115."},{"issue":"9","key":"i1945-5763-28-1-21-b2","series-title":"Spinal Cord","first-page":"530","article-title":"International Spinal Cord Injury Data Sets","volume":"44","year":"2006","unstructured":"Biering-S\u00f8rensen\n              F,\n            \n            \n              Charlifue\n              S,\n            \n            \n              DeVivo\n              M,\n            \n            \n              Noonan\n              V,\n            \n            \n              Post\n              M,\n            \n            \n              Stripling\n              T,\n            \n            \n              Wing\n              P.\n            \n          \n          International Spinal Cord Injury Data Sets.\n\t\t\t\t\tSpinal Cord.\n\t\t\t\t\t2006;\n\t\t\t\t\t44(\n\t\t\t\t\t9):\n\t\t\t\t\t530\u2013\n\t\t\t\t\t534."},{"key":"i1945-5763-28-1-21-b3","series-title":"Spinal Cord","first-page":"230","article-title":"International bowel function basic spinal cord injury data set","volume":"47","year":"2009","unstructured":"Krogh\n              K,\n            \n            \n              Perkash\n              I,\n            \n            \n              Stiens\n              SA,\n            \n            \n              Biering-S\u00f8rensen\n              F.\n            \n          \n          International bowel function basic spinal cord injury data set.\n\t\t\t\t\tSpinal Cord.\n\t\t\t\t\t2009;\n\t\t\t\t\t47:\n\t\t\t\t\t230\u2013\n\t\t\t\t\t234"},{"issue":"7","key":"i1945-5763-28-1-21-b4","series-title":"Spinal Cord","first-page":"692","article-title":"International Spinal Cord Injury Bowel Function Basic Data Set (Version 2.0)","volume":"55","year":"2017","unstructured":"Krogh\n              K,\n            \n            \n              Emmanuel\n              A,\n            \n            \n              Perrouin-Verbe\n              B,\n            \n            \n              Korsten\n              MA,\n            \n            \n              Mulcahey\n              MJ,\n            \n            \n              Biering-S\u00f8rensen\n              F.\n            \n          \n          International Spinal Cord Injury Bowel Function Basic Data Set (Version 2.0).\n\t\t\t\t\tSpinal Cord.\n\t\t\t\t\t2017;\n\t\t\t\t\t55(\n\t\t\t\t\t7):\n\t\t\t\t\t692"},{"key":"i1945-5763-28-1-21-b5","series-title":"Spinal Cord","first-page":"886","article-title":"Reliability of the International Spinal Cord Injury Bowel Function Basic and Extended Data Sets","volume":"49","year":"2011","unstructured":"Juul\n              T,\n            \n            \n              Bazzocchi\n              G,\n            \n            \n              Coggrave\n              M,\n            \n          \n          .\n\t\t\t\t\tReliability of the International Spinal Cord Injury Bowel Function Basic and Extended Data Sets.\n\t\t\t\t\tSpinal Cord.\n\t\t\t\t\t2011;\n\t\t\t\t\t49:\n\t\t\t\t\t886\u2013\n\t\t\t\t\t892."},{"issue":"2","key":"i1945-5763-28-1-21-b6","series-title":"Top Spinal Cord Inj Rehabil","doi-asserted-by":"publisher","first-page":"141","DOI":"10.1310\/sci2402-141","article-title":"Progress of the Dutch Spinal Cord Injury database: Completeness of database and profile of patients admitted for inpatient rehabilitation in 2015","volume":"24","year":"2018","unstructured":"Post\n              MWM,\n            \n            \n              Nachtegaal\n              J,\n            \n            \n              van Langeveld\n              SA,\n            \n            \n              van de Graaf\n              M,\n            \n            \n              Faber\n              WX,\n            \n            \n              Roels\n              EH,\n            \n            \n              van Bennekom\n              CAM.\n            \n          \n          Progress of the Dutch Spinal Cord Injury database: Completeness of database and profile of patients admitted for inpatient rehabilitation in 2015.\n\t\t\t\t\tTop Spinal Cord Inj Rehabil.\n\t\t\t\t\t2018;\n\t\t\t\t\t24(\n\t\t\t\t\t2):\n\t\t\t\t\t141\u2013\n\t\t\t\t\t150.\n\t\t\t\t\tdoi:10.1310\/sci2402-141."},{"issue":"2","key":"i1945-5763-28-1-21-b7","series-title":"Top Spinal Cord Inj Rehabil","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1310\/sci2402-133","article-title":"Implementation of a Standardized Dataset for Collecting Information on Patients With Spinal Cord Injury","volume":"24","year":"2018","unstructured":"Nachtegaal\n              J,\n            \n            \n              van Langeveld\n              SA,\n            \n            \n              Slootman\n              H,\n            \n            \n              Post\n              MWM;\n            \n            Dutch-Flemish Spinal Cord Society.\n          \n          Implementation of a Standardized Dataset for Collecting Information on Patients With Spinal Cord Injury.\n\t\t\t\t\tTop Spinal Cord Inj Rehabil.\n\t\t\t\t\t2018;\n\t\t\t\t\t24(\n\t\t\t\t\t2):\n\t\t\t\t\t133\u2013\n\t\t\t\t\t140.\n\t\t\t\t\tdoi:10.1310\/sci2402-133."},{"key":"i1945-5763-28-1-21-b8","series-title":"Spinal Cord Injury in the Child and Young Adult.","first-page":"153","year":"2014","unstructured":"Vogel\n              LC,\n            \n            \n              Zebracki\n              K,\n            \n            \n              Betz\n              RR,\n            \n            \n              Mulcahey\n              MJ,\n            \n            .\n\t\t\t\t\t\n          \n            Spinal Cord Injury in the Child and Young Adult.\n          \n          London:\n\t\t\t\t\tMac Keith Press;\n\t\t\t\t\t2014:\n\t\t\t\t\t153\u2013\n\t\t\t\t\t164."},{"issue":"2","key":"i1945-5763-28-1-21-b9","series-title":"J Pediatrics","first-page":"190","article-title":"Management of bowel dysfunction in children with spinal cord disease or injury by means of the enema continence catheter","volume":"120","year":"1992","unstructured":"Liptak\n              GS,\n            \n            \n              Revell\n              GM.\n            \n          \n          Management of bowel dysfunction in children with spinal cord disease or injury by means of the enema continence catheter.\n\t\t\t\t\tJ Pediatrics.\n\t\t\t\t\t1992;\n\t\t\t\t\t120(\n\t\t\t\t\t2):\n\t\t\t\t\t190\u2013\n\t\t\t\t\t194."},{"issue":"4","key":"i1945-5763-28-1-21-b10","series-title":"J Spinal Cord Med","first-page":"335","article-title":"Bowel management in children and adolescents with spinal cord injury","volume":"21","year":"1998","unstructured":"Goetz\n              LL,\n            \n            \n              Hurvitz\n              EA,\n            \n            \n              Nelson\n              VS,\n            \n            \n              Waring\n              W.\n            \n          \n          Bowel management in children and adolescents with spinal cord injury.\n\t\t\t\t\tJ Spinal Cord Med.\n\t\t\t\t\t1998;\n\t\t\t\t\t21(\n\t\t\t\t\t4):\n\t\t\t\t\t335\u2013\n\t\t\t\t\t341"},{"issue":"Suppl 1","key":"i1945-5763-28-1-21-b11","series-title":"J Spinal Cord Med","first-page":"S16","article-title":"Bladder and bowel management for the child with spinal cord dysfunction","volume":"27","year":"2004","unstructured":"Merenda\n              L,\n            \n            \n              Park Brown\n              J.\n            \n          \n          Bladder and bowel management for the child with spinal cord dysfunction.\n\t\t\t\t\tJ Spinal Cord Med.\n\t\t\t\t\t2004;\n\t\t\t\t\t27(\n\t\t\t\t\tSuppl 1):\n\t\t\t\t\tS16\u2013\n\t\t\t\t\t23."},{"issue":"9","key":"i1945-5763-28-1-21-b12","series-title":"Spinal Cord","first-page":"535","article-title":"International Spinal Cord Injury Core Data Set","volume":"44","year":"2006","unstructured":"DeVivo\n              M,\n            \n            \n              Biering-S\u00f8rensen\n              F,\n            \n            \n              Charlifue\n              S,\n            \n          \n          .\n\t\t\t\t\tInternational Spinal Cord Injury Core Data Set.\n\t\t\t\t\tSpinal Cord.\n\t\t\t\t\t2006;\n\t\t\t\t\t44(\n\t\t\t\t\t9):\n\t\t\t\t\t535\u2013\n\t\t\t\t\t540."},{"issue":"3","key":"i1945-5763-28-1-21-b13","series-title":"Phys Med Rehabil Clin N Am","first-page":"505","article-title":"Updates for the International Standards for Neurological Classification of Spinal Cord Injury","volume":"25","year":"2014","unstructured":"Kirshblum\n              S,\n            \n            \n              Waring\n              W.\n            \n          \n          Updates for the International Standards for Neurological Classification of Spinal Cord Injury.\n\t\t\t\t\tPhys Med Rehabil Clin N Am.\n\t\t\t\t\t2014;\n\t\t\t\t\t25(\n\t\t\t\t\t3):\n\t\t\t\t\t505\u2013\n\t\t\t\t\t517."},{"key":"i1945-5763-28-1-21-b14","series-title":"Phys Med Rehabil","doi-asserted-by":"publisher","first-page":"1264","DOI":"10.1016\/j.apmr.2011.03.003","article-title":"The International Standards for Neurological Classification of Spinal Cord Injury: Psychometric evaluation and guidelines for use with children and youth","volume":"92","year":"2011","unstructured":"Mulcahey\n              MJ,\n            \n            \n              Vogel\n              L,\n            \n            \n              Betz\n              R,\n            \n            \n              Samdani\n              A,\n            \n            \n              Chafetz\n              R,\n            \n            \n              Gaughan\n              J.\n            \n          \n          The International Standards for Neurological Classification of Spinal Cord Injury: Psychometric evaluation and guidelines for use with children and youth.\n\t\t\t\t\tPhys Med Rehabil.\n\t\t\t\t\t2011;\n\t\t\t\t\t92:\n\t\t\t\t\t1264\u2013\n\t\t\t\t\t1269.\n\t\t\t\t\tdoi:10.1016\/j.apmr.2011.03.003"},{"issue":"2","key":"i1945-5763-28-1-21-b15","series-title":"J Chiropractic Med","doi-asserted-by":"publisher","first-page":"155","DOI":"10.1016\/j.jcm.2016.02.012","article-title":"A guideline of selecting and reporting intraclass correlation coefficients for reliability research","volume":"15","year":"2016","unstructured":"Koo\n              TK,\n            \n            \n              Li\n              MY.\n            \n          \n          A guideline of selecting and reporting intraclass correlation coefficients for reliability research.\n\t\t\t\t\tJ Chiropractic Med.\n\t\t\t\t\t2016;\n\t\t\t\t\t15(\n\t\t\t\t\t2):\n\t\t\t\t\t155\u2013\n\t\t\t\t\t163.\n\t\t\t\t\tdoi:10.1016\/j.jcm.2016.02.012."},{"key":"i1945-5763-28-1-21-b16","series-title":"Cognitive Interviewing Methodology.","year":"2014","unstructured":"Miller\n              K,\n            \n            \n              Chepp\n              V,\n            \n            \n              Wilson\n              S,\n            \n            \n              Padilla\n              JL.\n            \n          \n          \n            Cognitive Interviewing Methodology.\n          \n          John Wiley & Sons;\n\t\t\t\t\t2014."},{"issue":"3","key":"i1945-5763-28-1-21-b17","series-title":"Spinal Cord","doi-asserted-by":"publisher","first-page":"357","DOI":"10.1038\/sc.2010.153","article-title":"Recommendations for translation and reliability testing of International Spinal Cord Injury Data Sets","volume":"49","year":"2011","unstructured":"Biering-S\u00f8rensen\n              F,\n            \n            \n              Alexander\n              MS,\n            \n            \n              Burns\n              S,\n            \n          \n          .\n\t\t\t\t\tRecommendations for translation and reliability testing of International Spinal Cord Injury Data Sets.\n\t\t\t\t\tSpinal Cord.\n\t\t\t\t\t2011;\n\t\t\t\t\t49(\n\t\t\t\t\t3):\n\t\t\t\t\t357\u2013\n\t\t\t\t\t360.\n\t\t\t\t\tdoi:10.1038\/sc.2010.153."},{"key":"i1945-5763-28-1-21-b1","series-title":"Clin Colon Surg","first-page":"113","article-title":"Bowel management in spinal cord injury 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\n            \n              van Bennekom\n              CAM.\n            \n          \n          Progress of the Dutch Spinal Cord Injury database: Completeness of database and profile of patients admitted for inpatient rehabilitation in 2015.\n\t\t\t\t\tTop Spinal Cord Inj Rehabil.\n\t\t\t\t\t2018;\n\t\t\t\t\t24(\n\t\t\t\t\t2):\n\t\t\t\t\t141\u2013\n\t\t\t\t\t150.\n\t\t\t\t\tdoi:10.1310\/sci2402-141."},{"issue":"2","key":"i1945-5763-28-1-21-b7","series-title":"Top Spinal Cord Inj Rehabil","doi-asserted-by":"publisher","first-page":"133","DOI":"10.1310\/sci2402-133","article-title":"Implementation of a Standardized Dataset for Collecting Information on Patients With Spinal Cord Injury","volume":"24","year":"2018","unstructured":"Nachtegaal\n              J,\n            \n            \n              van Langeveld\n              SA,\n            \n            \n              Slootman\n              H,\n            \n            \n              Post\n              MWM;\n            \n            Dutch-Flemish Spinal Cord Society.\n          \n          Implementation of a Standardized Dataset for Collecting Information on Patients With Spinal Cord Injury.\n\t\t\t\t\tTop Spinal Cord Inj Rehabil.\n\t\t\t\t\t2018;\n\t\t\t\t\t24(\n\t\t\t\t\t2):\n\t\t\t\t\t133\u2013\n\t\t\t\t\t140.\n\t\t\t\t\tdoi:10.1310\/sci2402-133."},{"key":"i1945-5763-28-1-21-b8","series-title":"Spinal Cord Injury in the Child and Young Adult.","first-page":"153","year":"2014","unstructured":"Vogel\n              LC,\n            \n            \n              Zebracki\n              K,\n            \n            \n              Betz\n              RR,\n            \n            \n              Mulcahey\n              MJ,\n            \n            .\n\t\t\t\t\t\n          \n            Spinal Cord Injury in the Child and Young Adult.\n          \n          London:\n\t\t\t\t\tMac Keith Press;\n\t\t\t\t\t2014:\n\t\t\t\t\t153\u2013\n\t\t\t\t\t164."},{"issue":"2","key":"i1945-5763-28-1-21-b9","series-title":"J Pediatrics","first-page":"190","article-title":"Management of bowel dysfunction in children with spinal cord disease or injury by means of the enema continence catheter","volume":"120","year":"1992","unstructured":"Liptak\n              GS,\n            \n            \n              Revell\n              GM.\n            \n          \n          Management of bowel dysfunction in children with spinal cord disease or injury by means of the enema continence catheter.\n\t\t\t\t\tJ Pediatrics.\n\t\t\t\t\t1992;\n\t\t\t\t\t120(\n\t\t\t\t\t2):\n\t\t\t\t\t190\u2013\n\t\t\t\t\t194."},{"issue":"4","key":"i1945-5763-28-1-21-b10","series-title":"J Spinal Cord Med","first-page":"335","article-title":"Bowel management in children and adolescents with spinal cord injury","volume":"21","year":"1998","unstructured":"Goetz\n              LL,\n            \n            \n              Hurvitz\n              EA,\n            \n            \n              Nelson\n              VS,\n            \n            \n              Waring\n              W.\n            \n          \n          Bowel management in children and adolescents with spinal cord injury.\n\t\t\t\t\tJ Spinal Cord Med.\n\t\t\t\t\t1998;\n\t\t\t\t\t21(\n\t\t\t\t\t4):\n\t\t\t\t\t335\u2013\n\t\t\t\t\t341"},{"issue":"Suppl 1","key":"i1945-5763-28-1-21-b11","series-title":"J Spinal Cord Med","first-page":"S16","article-title":"Bladder and bowel management for the child with spinal cord dysfunction","volume":"27","year":"2004","unstructured":"Merenda\n              L,\n            \n            \n              Park Brown\n              J.\n            \n          \n          Bladder and bowel management for the child with spinal cord dysfunction.\n\t\t\t\t\tJ Spinal Cord Med.\n\t\t\t\t\t2004;\n\t\t\t\t\t27(\n\t\t\t\t\tSuppl 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