{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,2]],"date-time":"2026-04-02T16:51:17Z","timestamp":1775148677447,"version":"3.50.1"},"reference-count":26,"publisher":"American Spinal Injury Association","issue":"3","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2022]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>\n                      Spina bifida is a congenital neural tube defect that affects the spine and spinal cord, as well as the brain in many cases, with life-long health-related consequences. In most cases, the term\n                      <jats:italic>spina bifida<\/jats:italic>\n                      refers to open myelomeningocele but includes a spectrum of dysraphic conditions. Early recognition and comprehensive care improve long-term health, well-being, and quality of life and decrease the use of emergency services and hospitalizations over the lifespan. Current evidence-based care guidelines are comprehensive, but they are not easily interpreted in busy primary care settings. The development of a periodicity schedule serves to simplify the current spina bifida guidelines into a document that is easy to use by all practitioners and families.\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.46292\/sci21-00097","type":"journal-article","created":{"date-parts":[[2022,8,17]],"date-time":"2022-08-17T16:38:52Z","timestamp":1660754332000},"page":"1-8","source":"Crossref","is-referenced-by-count":1,"title":["Demystifying Spina Bifida Guidelines Using a Periodicity Schedule"],"prefix":"10.46292","volume":"28","author":[{"given":"Jessica Y.","family":"Chaney","sequence":"first","affiliation":[{"name":"School of Nursing, Oregon Health & Science University, Portland, Oregon"},{"name":"Institute of Developmental Disability, Oregon Health & Science University, Portland, Oregon"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Asma A.","family":"Taha","sequence":"additional","affiliation":[{"name":"School of Nursing, Oregon Health & Science University, Portland, Oregon"},{"name":"Institute of Developmental Disability, Oregon Health & Science University, Portland, Oregon"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joseph D.","family":"Pinter","sequence":"additional","affiliation":[{"name":"Institute of Developmental Disability, Oregon Health & Science University, Portland, Oregon"},{"name":"School of Medicine, Department of Pediatrics, Oregon Health & Science University, Portland, Oregon"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"25425","reference":[{"key":"i1945-5763-28-3-1-b1","article-title":"Spina bifida","year":"2020","unstructured":"Centers for Disease Control and Prevention.\n          \n          \n            Spina bifida\n          .\n\t\t\t\t\t2020.\n\t\t\t\t\thttps:\/\/www.cdc.gov\/ncbddd\/spinabifida\/index.html"},{"key":"i1945-5763-28-3-1-b2","series-title":"Guidelines for the care of people with spina bifida","year":"2018","unstructured":"Spina Bifida Association.\n          \n          \n            Guidelines for the care of people with spina bifida\n          .\n\t\t\t\t\t2018. http:\/\/www.spinabifidaassociation.org\/guidelines\/"},{"issue":"12","key":"i1945-5763-28-3-1-b3","series-title":"Am J Phys Med Rehabil","doi-asserted-by":"publisher","first-page":"1027","DOI":"10.1097\/phm.0b013e31818de070","article-title":"Rehabilitation and medical management of the adult with spina bifida","volume":"87","year":"2008","unstructured":"Dicianno\n              BE,\n            \n            \n              Kurowski\n              BG,\n            \n            \n              Yang,\n              JM,\n            \n          \n          .\n\t\t\t\t\tRehabilitation and medical management of the adult with spina bifida.\n\t\t\t\t\tAm J Phys Med Rehabil.\n\t\t\t\t\t2008;87(12):1027\u20131050.\n\t\t\t\t\tdoi:10.1097\/phm.0b013e31818de070"},{"issue":"1","key":"i1945-5763-28-3-1-b4","series-title":"Dev Disabil Res Rev","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1002\/ddrr.99","article-title":"Optimizing health care for adults with spina bifida","volume":"16","year":"2010","unstructured":"Webb,\n              TS.\n            \n          \n          Optimizing health care for adults with spina bifida.\n\t\t\t\t\tDev Disabil Res Rev.\n\t\t\t\t\t2010;16(1):76\u201381.\n\t\t\t\t\tdoi:10.1002\/ddrr.99"},{"issue":"4","key":"i1945-5763-28-3-1-b5","series-title":"J Pediatr Rehabil Med","doi-asserted-by":"publisher","first-page":"513","DOI":"10.3233\/prm-200718","article-title":"Health promotion and preventive health care service guidelines for the care of people with spina bifida","volume":"13","year":"2020","unstructured":"Fremion\n              E,\n            \n            \n              Kanter\n              D,\n            \n            \n              Turk,\n              M.\n            \n          \n          Health promotion and preventive health care service guidelines for the care of people with spina bifida.\n\t\t\t\t\tJ Pediatr Rehabil Med.\n\t\t\t\t\t2020;13(4):513\u2013523.\n\t\t\t\t\tdoi:10.3233\/prm-200718"},{"issue":"6","key":"i1945-5763-28-3-1-b6","series-title":"Pediatrics","doi-asserted-by":"publisher","first-page":"e1645","DOI":"10.1542\/peds.2011-2219","article-title":"Providing a primary care medical home for children and youth with spina bifida","volume":"128","year":"2011","unstructured":"Burke\n              R,\n            \n            \n              Liptak,\n              GS;\n            \n            Council on Children with Disabilities\n          .\n\t\t\t\t\tProviding a primary care medical home for children and youth with spina bifida.\n\t\t\t\t\tPediatrics.\n\t\t\t\t\t2011;128(6):e1645\u2013e1657.\n\t\t\t\t\tdoi:10.1542\/peds.2011-2219"},{"key":"i1945-5763-28-3-1-b7","series-title":"Clinics","unstructured":"Spina Bifida Association.\n          \n          \n            Clinics\n          .\n\t\t\t\t\tRetrieved November 24, 2021. https:\/\/www.spinabifidaassociation.org\/clinics\/clinic-care-partner\/"},{"issue":"2","key":"i1945-5763-28-3-1-b8","series-title":"Disabil Health J","doi-asserted-by":"publisher","first-page":"100816","DOI":"10.1016\/j.dhjo.2019.06.005","article-title":"Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association","volume":"13","year":"2020","unstructured":"Dicianno\n              BE,\n            \n            \n              Beierwaltes\n              P,\n            \n            \n              Dosa,\n              N,\n            \n          \n          .\n\t\t\t\t\tScientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.\n\t\t\t\t\tDisabil Health J.\n\t\t\t\t\t2020;13(2):100816.\n\t\t\t\t\tdoi:10.1016\/j.dhjo.2019.06.005"},{"key":"i1945-5763-28-3-1-b9","unstructured":"American Academy of Pediatrics & Bright Futures webpage.\n          \n          Updated 2022. https:\/\/brightfutures.aap.org\/Pages\/default.aspx."},{"key":"i1945-5763-28-3-1-b10","article-title":"Recommendations for preventive pediatric health care: Periodicity table","year":"2021","unstructured":"American Academy of Pediatrics & Bright Futures.\n          \n          \n            Recommendations for preventive pediatric health care: Periodicity table\n          .\n\t\t\t\t\t2021.\n\t\t\t\t\thttps:\/\/downloads.aap.org\/AAP\/PDF\/periodicity_schedule.pdf"},{"issue":"3","key":"i1945-5763-28-3-1-b11","series-title":"Down Syndrome Q","first-page":"1","article-title":"Health care guidelines for individuals with Down syndrome: 1999 revision","volume":"4","year":"1999","unstructured":"Cohen\n              W.\n            \n          \n          Health care guidelines for individuals with Down syndrome: 1999 revision.\n\t\t\t\t\tDown Syndrome Q.\n\t\t\t\t\t1999;4(3):1\u201316.\n\t\t\t\t\thttps:\/\/www.dsrf.org\/media\/4-3B.pdf"},{"issue":"2","key":"i1945-5763-28-3-1-b12","series-title":"Pediatrics","doi-asserted-by":"publisher","first-page":"393","DOI":"10.1542\/peds.2011-1605","article-title":"Health supervision for children with Down Syndrome [published correction appears in Pediatrics 2011 Dec;128(6):1212]","volume":"128","year":"2011","unstructured":"Bull\n              MJ;\n            \n            Committee on Genetics.\n          \n          Health supervision for children with Down Syndrome [published correction appears in Pediatrics 2011 Dec;128(6):1212].\n\t\t\t\t\tPediatrics.\n\t\t\t\t\t2011;128(2):393\u2013406.\n\t\t\t\t\tdoi:10.1542\/peds.2011-1605"},{"issue":"4","key":"i1945-5763-28-3-1-b13","series-title":"Pediatrics","doi-asserted-by":"publisher","first-page":"e1059","DOI":"10.1542\/peds.2013-2063","article-title":"Health supervision for children with Marfan syndrome","volume":"132","year":"2013","unstructured":"Tinkle\n              BT,\n            \n            \n              Saal\n              HM;\n            \n            Committee on Genetics.\n          \n          Health supervision for children with Marfan syndrome.\n\t\t\t\t\tPediatrics.\n\t\t\t\t\t2013;132(4):e1059\u2013e1072.\n\t\t\t\t\tdoi:10.1542\/peds.2013-2063"},{"key":"i1945-5763-28-3-1-b1","article-title":"Spina bifida","year":"2020","unstructured":"Centers for Disease Control and Prevention.\n          \n          \n            Spina bifida\n          .\n\t\t\t\t\t2020.\n\t\t\t\t\thttps:\/\/www.cdc.gov\/ncbddd\/spinabifida\/index.html"},{"key":"i1945-5763-28-3-1-b2","series-title":"Guidelines for the care of people with spina bifida","year":"2018","unstructured":"Spina Bifida Association.\n          \n          \n            Guidelines for the care of people with spina bifida\n          .\n\t\t\t\t\t2018. http:\/\/www.spinabifidaassociation.org\/guidelines\/"},{"issue":"12","key":"i1945-5763-28-3-1-b3","series-title":"Am J Phys Med Rehabil","doi-asserted-by":"publisher","first-page":"1027","DOI":"10.1097\/phm.0b013e31818de070","article-title":"Rehabilitation and medical management of the adult with spina bifida","volume":"87","year":"2008","unstructured":"Dicianno\n              BE,\n            \n            \n              Kurowski\n              BG,\n            \n            \n              Yang,\n              JM,\n            \n          \n          .\n\t\t\t\t\tRehabilitation and medical management of the adult with spina bifida.\n\t\t\t\t\tAm J Phys Med Rehabil.\n\t\t\t\t\t2008;87(12):1027\u20131050.\n\t\t\t\t\tdoi:10.1097\/phm.0b013e31818de070"},{"issue":"1","key":"i1945-5763-28-3-1-b4","series-title":"Dev Disabil Res Rev","doi-asserted-by":"publisher","first-page":"76","DOI":"10.1002\/ddrr.99","article-title":"Optimizing health care for adults with spina bifida","volume":"16","year":"2010","unstructured":"Webb,\n              TS.\n            \n          \n          Optimizing health care for adults with spina bifida.\n\t\t\t\t\tDev Disabil Res Rev.\n\t\t\t\t\t2010;16(1):76\u201381.\n\t\t\t\t\tdoi:10.1002\/ddrr.99"},{"issue":"4","key":"i1945-5763-28-3-1-b5","series-title":"J Pediatr Rehabil Med","doi-asserted-by":"publisher","first-page":"513","DOI":"10.3233\/prm-200718","article-title":"Health promotion and preventive health care service guidelines for the care of people with spina bifida","volume":"13","year":"2020","unstructured":"Fremion\n              E,\n            \n            \n              Kanter\n              D,\n            \n            \n              Turk,\n              M.\n            \n          \n          Health promotion and preventive health care service guidelines for the care of people with spina bifida.\n\t\t\t\t\tJ Pediatr Rehabil Med.\n\t\t\t\t\t2020;13(4):513\u2013523.\n\t\t\t\t\tdoi:10.3233\/prm-200718"},{"issue":"6","key":"i1945-5763-28-3-1-b6","series-title":"Pediatrics","doi-asserted-by":"publisher","first-page":"e1645","DOI":"10.1542\/peds.2011-2219","article-title":"Providing a primary care medical home for children and youth with spina bifida","volume":"128","year":"2011","unstructured":"Burke\n              R,\n            \n            \n              Liptak,\n              GS;\n            \n            Council on Children with Disabilities\n          .\n\t\t\t\t\tProviding a primary care medical home for children and youth with spina bifida.\n\t\t\t\t\tPediatrics.\n\t\t\t\t\t2011;128(6):e1645\u2013e1657.\n\t\t\t\t\tdoi:10.1542\/peds.2011-2219"},{"key":"i1945-5763-28-3-1-b7","series-title":"Clinics","unstructured":"Spina Bifida Association.\n          \n          \n            Clinics\n          .\n\t\t\t\t\tRetrieved November 24, 2021. https:\/\/www.spinabifidaassociation.org\/clinics\/clinic-care-partner\/"},{"issue":"2","key":"i1945-5763-28-3-1-b8","series-title":"Disabil Health J","doi-asserted-by":"publisher","first-page":"100816","DOI":"10.1016\/j.dhjo.2019.06.005","article-title":"Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association","volume":"13","year":"2020","unstructured":"Dicianno\n              BE,\n            \n            \n              Beierwaltes\n              P,\n            \n            \n              Dosa,\n              N,\n            \n          \n          .\n\t\t\t\t\tScientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.\n\t\t\t\t\tDisabil Health J.\n\t\t\t\t\t2020;13(2):100816.\n\t\t\t\t\tdoi:10.1016\/j.dhjo.2019.06.005"},{"key":"i1945-5763-28-3-1-b9","unstructured":"American Academy of Pediatrics & Bright Futures webpage.\n          \n          Updated 2022. https:\/\/brightfutures.aap.org\/Pages\/default.aspx."},{"key":"i1945-5763-28-3-1-b10","article-title":"Recommendations for preventive pediatric health care: Periodicity table","year":"2021","unstructured":"American Academy of Pediatrics & Bright Futures.\n          \n          \n            Recommendations for preventive pediatric health care: Periodicity table\n          .\n\t\t\t\t\t2021.\n\t\t\t\t\thttps:\/\/downloads.aap.org\/AAP\/PDF\/periodicity_schedule.pdf"},{"issue":"3","key":"i1945-5763-28-3-1-b11","series-title":"Down Syndrome Q","first-page":"1","article-title":"Health care guidelines for individuals with Down syndrome: 1999 revision","volume":"4","year":"1999","unstructured":"Cohen\n              W.\n            \n          \n          Health care guidelines for individuals with Down syndrome: 1999 revision.\n\t\t\t\t\tDown Syndrome Q.\n\t\t\t\t\t1999;4(3):1\u201316.\n\t\t\t\t\thttps:\/\/www.dsrf.org\/media\/4-3B.pdf"},{"issue":"2","key":"i1945-5763-28-3-1-b12","series-title":"Pediatrics","doi-asserted-by":"publisher","first-page":"393","DOI":"10.1542\/peds.2011-1605","article-title":"Health supervision for children with Down Syndrome [published correction appears in Pediatrics 2011 Dec;128(6):1212]","volume":"128","year":"2011","unstructured":"Bull\n              MJ;\n            \n            Committee on Genetics.\n          \n          Health supervision for children with Down Syndrome [published correction appears in Pediatrics 2011 Dec;128(6):1212].\n\t\t\t\t\tPediatrics.\n\t\t\t\t\t2011;128(2):393\u2013406.\n\t\t\t\t\tdoi:10.1542\/peds.2011-1605"},{"issue":"4","key":"i1945-5763-28-3-1-b13","series-title":"Pediatrics","doi-asserted-by":"publisher","first-page":"e1059","DOI":"10.1542\/peds.2013-2063","article-title":"Health supervision for children with Marfan 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