{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,29]],"date-time":"2026-06-29T23:19:09Z","timestamp":1782775149213,"version":"3.54.5"},"reference-count":28,"publisher":"Ubiquity Press, Ltd.","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023,6,23]]},"DOI":"10.5334\/gh.1205","type":"journal-article","created":{"date-parts":[[2023,6,23]],"date-time":"2023-06-23T08:37:33Z","timestamp":1687509453000},"source":"Crossref","is-referenced-by-count":6,"title":["Health Related Quality of Life of Ugandan Children Following Valve Replacement Surgery for Rheumatic Heart Disease"],"prefix":"10.5334","volume":"18","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9176-0835","authenticated-orcid":false,"given":"Mohammed A. M.","family":"Ahmed","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5920-8648","authenticated-orcid":false,"given":"Twalib","family":"Aliku","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4638-6928","authenticated-orcid":false,"given":"Judith","family":"Namuyonga","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8015-5373","authenticated-orcid":false,"given":"Bernard","family":"Obongonyinge","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2567-4226","authenticated-orcid":false,"given":"Hilda","family":"Tumwebaze","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0001-4418-6500","authenticated-orcid":false,"given":"Samalie M.","family":"Kitooleko","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-8261-125X","authenticated-orcid":false,"given":"Tom","family":"Mwambu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2895-3626","authenticated-orcid":false,"given":"Peter","family":"Lwabi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-6172-7784","authenticated-orcid":false,"given":"Sulaiman","family":"Lubega","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"3285","reference":[{"issue":"8","key":"key20230623082116_B1","doi-asserted-by":"crossref","first-page":"713","DOI":"10.1056\/NEJMoa1603693","article-title":"Global, regional, and national burden of rheumatic heart disease, 1990\u20132015","volume":"377","year":"2017","journal-title":"New England Journal of Medicine"},{"issue":"15","key":"key20230623082116_B2","article-title":"Active case finding for rheumatic fever in an endemic country","volume":"9","year":"2020","journal-title":"Journal of the American Heart Association"},{"issue":"3 Pt 2","key":"key20230623082116_B3","first-page":"I110","article-title":"Five year follow-up after valve replacement with the St. Jude Medical valve in infants and children","volume":"74","year":"1986","journal-title":"Circulation"},{"issue":"3","key":"key20230623082116_B4","doi-asserted-by":"crossref","first-page":"e1","DOI":"10.1016\/j.jacc.2006.05.021","article-title":"ACC\/AHA 2006 guidelines for the management of patients with valvular heart disease: A report of the American College of Cardiology\/American Heart Association Task Force on Practice Guidelines (writing Committee to Revise the 1998 guidelines for the management of patients with valvular heart disease) developed in collaboration with the Society of Cardiovascular Anesthesiologists endorsed by the Society for Cardiovascular Angiography and Interventions and the Society of Thoracic Surgeons","volume":"48","year":"2006","journal-title":"Journal of the American College of Cardiology"},{"issue":"1","key":"key20230623082116_B5","article-title":"Impact of regionalisation of a national rheumatic heart disease registry: The Ugandan experience","volume":"10","year":"2018","journal-title":"Heart Asia"},{"issue":"1","key":"key20230623082116_B6","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1016\/S0003-4975(97)00453-0","article-title":"Anticoagulation in children with mechanical valve prostheses","volume":"64","year":"1997","journal-title":"The Annals of Thoracic Surgery"},{"issue":"1","key":"key20230623082116_B7","first-page":"62","article-title":"The high burden of rheumatic heart disease found on autopsy in Fiji","volume":"18","year":"2008","journal-title":"Cardiology in the Young"},{"issue":"4","key":"key20230623082116_B8","doi-asserted-by":"crossref","first-page":"586","DOI":"10.1161\/CIRCULATIONAHA.109.192703","article-title":"Defining and setting national goals for cardiovascular health promotion and disease reduction: The American Heart Association\u2019s strategic Impact Goal through 2020 and beyond","volume":"121","year":"2010","journal-title":"Circulation"},{"issue":"22","key":"key20230623082116_B9","doi-asserted-by":"crossref","first-page":"2233","DOI":"10.1161\/CIR.0b013e3182949a2e","article-title":"Cardiovascular health: The importance of measuring patient-reported health status: a scientific statement from the American Heart Association","volume":"127","year":"2013","journal-title":"Circulation"},{"issue":"6","key":"key20230623082116_B10","doi-asserted-by":"crossref","first-page":"643","DOI":"10.1136\/heart.84.6.643","article-title":"Quality of life in children following mitral valve replacement","volume":"84","year":"2000","journal-title":"Heart"},{"issue":"1","key":"key20230623082116_B11","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/1477-7525-3-1","article-title":"Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application","volume":"3","year":"2005","journal-title":"Health and quality of life outcomes"},{"issue":"6","key":"key20230623082116_B12","doi-asserted-by":"crossref","first-page":"705","DOI":"10.1586\/14737167.5.6.705","article-title":"The PedsQL\u2122 as a pediatric patient-reported outcome: Reliability and validity of the PedsQL\u2122 Measurement Model in 25,000 children","volume":"5","year":"2005","journal-title":"Expert Review of Pharmacoeconomics & Outcomes Research"},{"issue":"6","key":"key20230623082116_B13","doi-asserted-by":"crossref","first-page":"1950","DOI":"10.1016\/j.athoracsur.2016.11.015","article-title":"Functional status and quality of life in survivors of extracorporeal membrane oxygenation after the Norwood operation","volume":"103","year":"2017","journal-title":"The Annals of Thoracic Surgery"},{"issue":"4","key":"key20230623082116_B14","doi-asserted-by":"crossref","first-page":"262","DOI":"10.1067\/mhl.2002.124554","article-title":"Validity and reliability of the NYHA classes for measuring research outcomes in patients with cardiac disease","volume":"31","year":"2002","journal-title":"Heart & Lung"},{"key":"key20230623082116_B15","first-page":"1","article-title":"Obesity: Preventing and managing the global epidemic","volume":"894","year":"2000","journal-title":"World Health Organization Technical Report Series"},{"key":"key20230623082116_B16","article-title":"Health-related quality of life after valve replacement surgery","year":"2015"},{"issue":"1","key":"key20230623082116_B17","first-page":"1","article-title":"Measuring health-related quality of life in Hungarian children with heart disease: Psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory\u2122 4.0 Generic Core Scales and the Cardiac Module","volume":"8","year":"2010","journal-title":"Health and Quality of Life Outcomes"},{"issue":"1","key":"key20230623082116_B18","first-page":"1","article-title":"Health-related quality of life in Italian children and adolescents with congenital heart diseases","volume":"22","year":"2022","journal-title":"BMC cardiovascular disorders"},{"issue":"5","key":"key20230623082116_B19","doi-asserted-by":"crossref","first-page":"419","DOI":"10.1136\/archdischild-2018-315594","article-title":"Health-related quality of life in surgical children and adolescents with congenital heart disease compared with their age-matched healthy sibling: A cross-sectional study from a lower middle-income country, Pakistan","volume":"104","year":"2019","journal-title":"Archives of disease in childhood"},{"issue":"5","key":"key20230623082116_B20","doi-asserted-by":"crossref","first-page":"935","DOI":"10.1016\/S1010-7940(97)01204-9","article-title":"Self management of oral anticoagulant therapy after heart valve replacement","volume":"11","year":"1997","journal-title":"European Journal of Cardio-Thoracic Surgery"},{"key":"key20230623082116_B21","unstructured":"World Heart Federation. Rheumatic Heart Disease. https:\/\/world-heart-federation.org\/what-we-do\/rheumatic-heart-disease\/ (accesed on 29 May 2023)."},{"issue":"20","key":"key20230623082116_B22","doi-asserted-by":"crossref","first-page":"2185","DOI":"10.1001\/archinte.1995.00430200066010","article-title":"Long-term patient self-management of oral anticoagulation","volume":"155","year":"1995","journal-title":"Archives of Internal Medicine"},{"key":"key20230623082116_B23","first-page":"325","volume-title":"Thrombosis, Embolism, and Bleeding","year":"1992"},{"issue":"3","key":"key20230623082116_B24","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1001\/archinte.1992.00400150103019","article-title":"Accuracy and precision of a portable anticoagulation monitor in a clinical setting","volume":"152","year":"1992","journal-title":"Archives of Internal Medicine"},{"issue":"5","key":"key20230623082116_B25","first-page":"386","article-title":"Patients\u2019 satisfaction associated with portable coagulometers for warfarin monitoring: A cross-sectional study","volume":"18","year":"2020","journal-title":"Blood Transfusion"},{"issue":"3 Pt 2","key":"key20230623082116_B26","first-page":"I110","article-title":"Five year follow-up after valve replacement with the St. Jude Medical valve in infants and children","volume":"74","year":"1986","journal-title":"Circulation"},{"key":"key20230623082116_B27","unstructured":"Blavatnic School of Government, Oxford University. Oxford COVID-19 government response tracker; 2020. https:\/\/www.bsg.ox.ac.uk\/research\/covid-19-government-response-tracker (accessed on 29 May 2023)."},{"key":"key20230623082116_B28","unstructured":"Our World in Data. COVID-19: Stringency Index. https:\/\/ourworldindata.org\/covid-stringency-index (accessed on 29 May 2023)."}],"container-title":["Global Heart"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/storage.googleapis.com\/jnl-up-j-gh-files\/journals\/1\/articles\/1205\/6495854c52442.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,27]],"date-time":"2025-10-27T07:56:52Z","timestamp":1761551812000},"score":1,"resource":{"primary":{"URL":"https:\/\/globalheartjournal.com\/articles\/10.5334\/gh.1205\/"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023]]},"references-count":28,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,6,23]]}},"alternative-id":["10.5334\/gh.1205"],"URL":"https:\/\/doi.org\/10.5334\/gh.1205","relation":{},"ISSN":["2211-8179"],"issn-type":[{"value":"2211-8179","type":"print"}],"subject":[],"published":{"date-parts":[[2023]]},"article-number":"37"}}