{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,11]],"date-time":"2026-09-11T12:31:03Z","timestamp":1789129863609,"version":"build-2803163510"},"reference-count":36,"publisher":"Ubiquity Press, Ltd.","license":[{"start":{"date-parts":[[2026,9,11]],"date-time":"2026-09-11T00:00:00Z","timestamp":1789084800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Int J Integr Care"],"abstract":"<jats:p>Introduction: Researchers collaborated with experts-by-experience to create \u2018Our Dementia Journey Journal\u2019 (ODJJ), an interactive resource designed to enhance integrated care through communication and relationship building between caregivers and care providers. This study investigated how best to scale and spread the resource.Methods: ODJJ was implemented as a pilot in three communities with seven sites. A mixed-methods multi-phase sequential design with embedded formative and outcome evaluations was used, with experts-by-experience integrated throughout.Results: ODJJ was implemented serially in long-term care homes, First Nation communities, and South Asian communities. Implementation approaches and tools evolved through sharing experiences and tactics, with greatest uptake and use in the later sites.Discussion: The study confirmed that ODJJ can strengthen communication and relationship building, but how it was perceived, accepted and used for integrated care differed. The cumulative results generated a spread and scale (marketing) strategy, with messaging, materials and supports to facilitate uptake and use across Canada.Conclusion: Pilot implementation for integrated care resources with a strong, complex evaluation can lead to a detailed plan for spread and scale.<\/jats:p>","DOI":"10.5334\/ijic.9872","type":"journal-article","created":{"date-parts":[[2026,9,11]],"date-time":"2026-09-11T10:42:24Z","timestamp":1789123344000},"page":"19","source":"Crossref","is-referenced-by-count":0,"title":["Evaluation of a Complex Implementation to Shape, Spread, Scale, and Sustain a New Dementia Care Resource for Better, More Integrated Care"],"prefix":"10.5334","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9470-4871","authenticated-orcid":false,"given":"Celina","family":"Carter","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-6388-7717","authenticated-orcid":false,"given":"Clementine","family":"Rotsaert","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9586-3233","authenticated-orcid":false,"given":"Paige","family":"Fernandes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4130-5383","authenticated-orcid":false,"given":"Paul","family":"Holyoke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"3285","published-online":{"date-parts":[[2026,9,11]]},"reference":[{"issue":"1","key":"key20260911104216_B1","doi-asserted-by":"crossref","first-page":"541","DOI":"10.1186\/s12913-022-07875-w","article-title":"How to implement person-centred care and support for dementia in outpatient and home\/community settings: Scoping review","volume":"22","year":"2022","journal-title":"BMC Health Services Research"},{"issue":"17\u201318","key":"key20260911104216_B2","first-page":"2611","article-title":"Promoting a continuation of self and normality: person-centred care as described by people with dementia, their family members and aged care staff","volume":"19","year":"2010","journal-title":"Journal of Clinical Nursing"},{"issue":"11","key":"key20260911104216_B3","first-page":"1184","article-title":"Integrating family caregivers of people with Alzheimer\u2019s Disease and dementias into clinical appointments: Identifying potential best practices","volume":"39","year":"2019","journal-title":"Journal of Applied Gerontology"},{"key":"key20260911104216_B4","unstructured":"National Voices, Think Local Act Personal. A narrative for person-centred coordinated care. 2013. Available from: https:\/\/www.nationalvoices.org.uk\/publications\/our-publications\/narrative-person-centred-coordinated-care."},{"key":"key20260911104216_B5","doi-asserted-by":"crossref","first-page":"104471","DOI":"10.1016\/j.archger.2021.104471","article-title":"Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals","volume":"97","year":"2021","journal-title":"Archives of Gerontology and Geriatrics"},{"issue":"3","key":"key20260911104216_B6","doi-asserted-by":"crossref","first-page":"431","DOI":"10.1016\/j.ijnurstu.2012.10.005","article-title":"Caregiver burden\u2014A critical discussion","volume":"50","year":"2013","journal-title":"International Journal of Nursing Studies"},{"issue":"3","key":"key20260911104216_B7","first-page":"846","article-title":"Continuity of home-based care for persons with dementia from formal and family caregivers\u2019 perspective","volume":"18","year":"2016","journal-title":"Dementia"},{"issue":"4","key":"key20260911104216_B8","doi-asserted-by":"crossref","first-page":"e460","DOI":"10.1111\/hsc.12529","article-title":"Informal caregivers\u2019 views on the division of responsibilities between themselves and professionals: A scoping review","volume":"26","year":"2018","journal-title":"Health & Social Care in the Community"},{"issue":"null","key":"key20260911104216_B9","first-page":"135","article-title":"Family caregivers\u2019 role implementation at different stages of dementia","volume":"10","year":"2015","journal-title":"Clinical Interventions in Aging"},{"issue":"4","key":"key20260911104216_B10","doi-asserted-by":"crossref","first-page":"709","DOI":"10.1080\/13607863.2021.1881758","article-title":"In-home dementia caregiving is associated with greater psychological burden and poorer mental health than out-of-home caregiving: A cross-sectional study","volume":"26","year":"2022","journal-title":"Aging & Mental Health"},{"issue":"2","key":"key20260911104216_B11","doi-asserted-by":"crossref","first-page":"217","DOI":"10.31887\/DCNS.2009.11.2\/hbrodaty","article-title":"Family caregivers of people with dementia","volume":"11","year":"2009","journal-title":"Dialogues in Clinical Neuroscience"},{"issue":"2","key":"key20260911104216_B12","article-title":"Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial","volume":"15","year":"2018","journal-title":"PLoS Medicine"},{"issue":"1","key":"key20260911104216_B13","doi-asserted-by":"crossref","first-page":"465","DOI":"10.1186\/s12877-020-01855-7","article-title":"Exploring person-centred care in relation to resource utilization, resident quality of life and staff job strain \u2013 findings from the SWENIS study","volume":"20","year":"2020","journal-title":"BMC Geriatrics"},{"key":"key20260911104216_B14","article-title":"Developing and applying the \u2018Participatory Research to Action Framework\u2019 for meaningful engagement of experts-by-experience in applied health services research: a case study approach","year":"2025","journal-title":"Research Involvement and Engagement"},{"key":"key20260911104216_B15","unstructured":"Saint Elizabeth Health Care. Welcome to Our Dementia Journey Journal. https:\/\/www.odjj.ca\/ (Accessed June 2, 2025)."},{"key":"key20260911104216_B16","volume-title":"Designing and conducting mixed methods research","year":"2017"},{"issue":"1","key":"key20260911104216_B17","doi-asserted-by":"crossref","first-page":"75","DOI":"10.1186\/s13012-022-01245-0","article-title":"The updated Consolidated Framework for Implementation Research based on user feedback","volume":"17","year":"2022","journal-title":"Implementation Science"},{"issue":"8","key":"key20260911104216_B18","doi-asserted-by":"crossref","first-page":"995","DOI":"10.1080\/13607863.2011.583625","article-title":"A quasi-experimental design trial exploring the effect of a partnership intervention on family and staff well-being in long-term dementia care","volume":"15","year":"2011","journal-title":"Aging & Mental Health"},{"issue":"3","key":"key20260911104216_B19","article-title":"Assessing quality of life in older adults with cognitive impairment","volume":"64","year":"2002","journal-title":"Biopsychosocial Science and Medicine"},{"issue":"4","key":"key20260911104216_B20","article-title":"Whose quality of life is it anyway?: The validity and reliability of the Quality of Life-Alzheimer\u2019s Disease (QoL-AD) Scale","volume":"17","year":"2003","journal-title":"Alzheimer Disease & Associated Disorders"},{"issue":"8","key":"key20260911104216_B21","doi-asserted-by":"crossref","first-page":"2299","DOI":"10.1007\/s11136-019-02186-w","article-title":"Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL","volume":"28","year":"2019","journal-title":"Quality of Life Research"},{"issue":"1","key":"key20260911104216_B22","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1186\/1471-2288-13-117","article-title":"Using the framework method for the analysis of qualitative data in multi-disciplinary health research","volume":"13","year":"2013","journal-title":"BMC Medical Research Methodology"},{"issue":"4","key":"key20260911104216_B23","doi-asserted-by":"crossref","first-page":"334","DOI":"10.1002\/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G","article-title":"Whatever happened to qualitative description?","volume":"23","year":"2000","journal-title":"Research in nursing & health"},{"key":"key20260911104216_B24","unstructured":"Banarjee S, Daley S. C-DEMQOL \u2013 Measurement of quality of life in family carers of people living with dementia: Instruction manual for administration, Version 1.2. Brighton, United Kingdom: University of Sussex. October 2019. Available from: https:\/\/www.bsms.ac.uk\/_pdf\/cds\/c-demqol-instruction-manual-final-v1.2.pdf"},{"key":"key20260911104216_B25","first-page":"2020","volume-title":"Comparison in Qualitative Research"},{"key":"key20260911104216_B26","unstructured":"Canadian Institute for Health Research, Natural Sciences and Engineering Research Council of Canada, Social Sciences and Humanities Research Council of Canada. Tri-Council policy statement: Ethical conduct for research involving humans. Ottawa: Author; 2022. Available from: https:\/\/ethics.gc.ca\/eng\/policy-politique_tcps2-eptc2_2022.html."},{"issue":"2","key":"key20260911104216_B27","doi-asserted-by":"crossref","first-page":"188","DOI":"10.1111\/ajag.13028","article-title":"Situating Eden\u2014Culture change in residential aged care: A scoping review","volume":"41","year":"2022","journal-title":"Australasian Journal on Ageing"},{"issue":"4","key":"key20260911104216_B28","doi-asserted-by":"crossref","first-page":"18","DOI":"10.5334\/ijic.2497","article-title":"Achieving prudent dementia care (Palliare): An international policy and practice imperative","volume":"16","year":"2016","journal-title":"International Journal on Integrated Care"},{"issue":"4","key":"key20260911104216_B29","article-title":"Transformational change in health care systems: An organizational model","volume":"32","year":"2007","journal-title":"Health Care Management Review"},{"issue":"2","key":"key20260911104216_B30","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1151\/spp073220","article-title":"Assessing organizational functioning as a step toward innovation","volume":"3","year":"2007","journal-title":"Science & Practice Perspectives"},{"issue":"1","key":"key20260911104216_B31","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1186\/s13012-024-01361-z","article-title":"Understanding pathways from implementation to sustainment: a longitudinal, mixed methods analysis of promising practices implemented in the Veterans Health Administration","volume":"19","year":"2024","journal-title":"Implementation Science"},{"issue":"4","key":"key20260911104216_B32","doi-asserted-by":"crossref","first-page":"581","DOI":"10.1111\/j.0887-378X.2004.00325.x","article-title":"Diffusion of innovations in service organizations: Systematic review and recommendations","volume":"82","year":"2004","journal-title":"The Milbank Quarterly"},{"issue":"2","key":"key20260911104216_B33","doi-asserted-by":"crossref","first-page":"751","DOI":"10.1111\/1475-6773.00143","article-title":"Developing and testing a model to predict outcomes of organizational change","volume":"38","year":"2003","journal-title":"Health Services Research"},{"issue":"1","key":"key20260911104216_B34","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1186\/s12961-019-0482-6","article-title":"The unpredictable journeys of spreading, sustaining and scaling healthcare innovations: a scoping review","volume":"17","year":"2019","journal-title":"Health Research Policy and Systems"},{"issue":"1","key":"key20260911104216_B35","doi-asserted-by":"crossref","first-page":"208","DOI":"10.1186\/s12913-015-0875-3","article-title":"Successful collaboration in dementia care from the perspectives of healthcare professionals and informal carers in Germany: results from a focus group study","volume":"15","year":"2015","journal-title":"BMC Health Services Research"},{"key":"key20260911104216_B36","unstructured":"Saint Elizabeth Health Care. Bring ODJJ to your community. https:\/\/www.odjj.ca\/bring-odjj-to-your-community\/ (Accessed June 2, 2025)."}],"container-title":["International Journal of Integrated Care"],"original-title":[],"link":[{"URL":"https:\/\/ijic.org\/articles\/9872\/files\/6aa3dab6a4512.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/ijic.org\/articles\/9872\/files\/6aa3daec2d916.xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/ijic.org\/articles\/9872\/files\/6aa3dab6a4512.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,11]],"date-time":"2026-09-11T11:36:49Z","timestamp":1789126609000},"score":1,"resource":{"primary":{"URL":"https:\/\/ijic.org\/articles\/10.5334\/ijic.9872"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,11]]},"references-count":36,"URL":"https:\/\/doi.org\/10.5334\/ijic.9872","relation":{},"ISSN":["1568-4156"],"issn-type":[{"value":"1568-4156","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,11]]}}}