{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,26]],"date-time":"2026-08-26T17:14:35Z","timestamp":1787764475414,"version":"build-2784847793"},"reference-count":24,"publisher":"Hindawi Limited","license":[{"start":{"date-parts":[[2011,4,12]],"date-time":"2011-04-12T00:00:00Z","timestamp":1302566400000},"content-version":"unspecified","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/3.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["ISRN Rheumatology"],"published-print":{"date-parts":[[2011,4,12]]},"abstract":"<jats:p><jats:italic>Objectives<\/jats:italic>. Polymyositis (PM) and dermatomyositis (DM) are characterized by impaired muscle function with a majority of patients developing sustained disability. The aim of this study was to evaluate the patient\u2019s individual priorities (patient preference) of disabilities most important to improve in PM\/DM using the MacMaster Toronto Arthritis Patient Preference Disability Questionnaire (MACTAR), to correlate the MACTAR to myositis outcomes and to evaluate its test-retest reliability. <jats:italic>Methods<\/jats:italic>. Twenty-eight patients with PM\/DM performed recommended outcomes as well as the MACTAR, which was performed twice with one week apart. <jats:italic>Results<\/jats:italic>. Sexual activity, walking, biking, social activities, and sleep constituted the predominating disabilities. Seventy-two and 33% of the identified disabilities were not covered by items of the Health Assessment Questionnaire and the Myositis Activities Profile. Correlations between the MACTAR and health-related quality of life measures were  = \u22120.67\u20130.73, correlations with measures of activities of daily living and participation in society were  = 0.51\u20130.60 with lower correlations for other outcomes. Intraclass correlation (ICC) and weighted Kappa () coefficients were 0.83 and 0.68, respectively, for test-retest reliability of the MACTAR. <jats:italic>Conclusions<\/jats:italic>. The MACTAR interview had promising measurement properties and identified patient preference disabilities in PM\/DM that were not covered by recommended outcomes.<\/jats:p>","DOI":"10.5402\/2011\/463124","type":"journal-article","created":{"date-parts":[[2011,4,12]],"date-time":"2011-04-12T19:33:22Z","timestamp":1302636802000},"page":"1-5","source":"Crossref","is-referenced-by-count":19,"title":["Patient Preference Assessment Reveals Disease Aspects Not Covered by Recommended Outcomes in Polymyositis and Dermatomyositis"],"prefix":"10.5402","volume":"2011","author":[{"given":"Li","family":"Alemo Munters","sequence":"first","affiliation":[{"name":"Department of Physical Therapy, Karolinska University Hospital, 171 76 Stockholm, Sweden"},{"name":"Rheumatology Unit, Department of Medicine, Karolinska University Hospital Solna, Karolinska Institute, 171 76 Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ronald F.","family":"van 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