{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T02:13:28Z","timestamp":1788401608210,"version":"build-2803163510"},"reference-count":24,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:00:00Z","timestamp":1788307200000},"content-version":"vor","delay-in-days":1,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["GNT2034453"],"award-info":[{"award-number":["GNT2034453"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100025520","name":"Medical Research Future Fund","doi-asserted-by":"publisher","award":["GNT2015965"],"award-info":[{"award-number":["GNT2015965"]}],"id":[{"id":"10.13039\/501100025520","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Medical Journal of Australia"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>Australia's newborn bloodspot screening (NBS) program is offered to every newborn. It screens for 34 rare conditions with the potential for hundreds more to be added using genomics. Despite NBS being available in Australia since the 1960s, there is a lack of evidence regarding the participation and experiences of Aboriginal and Torres Strait Islander peoples in NBS. As Australia considers a future where genomics might be used in NBS, there is a critical window of opportunity to understand and prioritise the perspectives, hopes and fears of Aboriginal and Torres Strait Islander peoples regarding the utility of genomics in NBS.<\/jats:p>","DOI":"10.5694\/mja2.70272","type":"journal-article","created":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T01:25:53Z","timestamp":1788398753000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Newborn Screening: Equity for Aboriginal and Torres Strait Islander Families in the Context of Emerging Genomics"],"prefix":"10.5694","volume":"224","author":[{"given":"Gail","family":"Garvey","sequence":"first","affiliation":[{"name":"First Nation Cancer and Wellbeing Program, School of Public Health The University of Queensland  Herston Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Norris","sequence":"additional","affiliation":[{"name":"Leeder Centre for Health Policy, Economics and Data, School of Public Health The University of Sydney  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Scarfe","sequence":"additional","affiliation":[{"name":"Leeder Centre for Health Policy, Economics and Data, School of Public Health The University of Sydney  Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Louise","family":"Lyons","sequence":"additional","affiliation":[{"name":"ALIGN Network The Kids Research Institute Australia  Nedlands Western Australia 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https:\/\/consultations.health.gov.au\/hearing\u2010and\u2010program\u2010support\u2010division\/nbs\u2010expansion\u2010public\u2010consultation\/supporting_documents\/Newborn%20bloodspot%20screening%20consultation%20paper%20FINAL.pdf."},{"key":"e_1_2_13_6_1","unstructured":"National Aboriginal Community Controlled Organisation (NACCHO) \u201cNACCHO Policy Submission Expansion of Newborn Bloodspot Screening \u201d(2022) accessed April 2026 https:\/\/www.naccho.org.au\/wp\u2010content\/uploads\/2024\/01\/NBS\u2010Consultation\u2010Response\u20101.pdf\/."},{"key":"e_1_2_13_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-019-4859-6"},{"key":"e_1_2_13_8_1","doi-asserted-by":"publisher","DOI":"10.1071\/PY23128"},{"key":"e_1_2_13_9_1","unstructured":"Australian Government Department of Health \u201cNewborn Bloodspot Screening National Policy Framework 2018 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