{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,15]],"date-time":"2026-01-15T03:28:51Z","timestamp":1768447731762,"version":"3.49.0"},"reference-count":17,"publisher":"The Pediatric Pharmacy Association","issue":"8","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2023]]},"abstract":"\n OBJECTIVE<\/jats:title>\n Preparation for transition from pediatric to adult cystic fibrosis (CF) care is essential for successful self-management in adulthood. The primary objective of this study was to determine if education improved performance on follow-up assessments to increase knowledge for transition into adult care. The secondary objective of this study was to identify areas of greatest educational opportunity for adolescent CF patients.<\/jats:p>\n <\/jats:sec>\n \n METHODS<\/jats:title>\n A knowledge assessment containing 13 multiple-choice questions was given to patients between 14 and 19 years of age. Three educational handouts covering topics including nutrition, pancreatic enzyme replacement therapy, or vitamins were provided when a question corresponding to the topic was answered incorrectly. The same assessment was completed at the next clinic appointment as a follow-up. The scores of initial and follow-up assessments were compared based on number of correct answers. Additionally, the number of educational handouts provided was analyzed to determine area of greatest educational need.<\/jats:p>\n <\/jats:sec>\n \n RESULTS<\/jats:title>\n The average score \u00b1 SD on the initial assessment was 8.3 \u00b1 1.6 of 13 questions answered correctly. For patients who completed both assessments, scores improved significantly between initial and follow-up assessments (8.4 \u00b1 1.8 before education vs 10.3 \u00b1 1.1 after; p = 0.0008). Nutrition, pancreatic enzyme, and vitamin handouts were given to 14 (70%), 17 (85%), and 20 (100%) patients, respectively.<\/jats:p>\n <\/jats:sec>\n \n CONCLUSIONS<\/jats:title>\n This pharmacist-driven educational initiative increased knowledge assessment scores after education was provided. Future studies of similar knowledge assessments starting at younger ages and other disease topics may determine if targeted education is the optimal way to build knowledge for transition to adult CF care.<\/jats:p>\n <\/jats:sec>","DOI":"10.5863\/1551-6776-28.8.741","type":"journal-article","created":{"date-parts":[[2023,12,12]],"date-time":"2023-12-12T19:07:56Z","timestamp":1702408076000},"page":"741-746","source":"Crossref","is-referenced-by-count":4,"title":["Educational Initiative to Increase Knowledge for Transition to Adult Care in Adolescents With Cystic Fibrosis"],"prefix":"10.5863","volume":"28","author":[{"given":"Anne","family":"Perez","sequence":"first","affiliation":[{"name":"Global Medical Affairs (AP), Northeastern University, Boston, MA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hilary","family":"Vogt","sequence":"additional","affiliation":[{"name":"Department of Pharmacy (HV), Indiana University Health, Indianapolis, IN"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca S.","family":"Pettit","sequence":"additional","affiliation":[{"name":"Department of Pharmacy (RSP), Riley Hospital for Children at Indiana University Health, Indianapolis, IN"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"3883","reference":[{"key":"i2331-348X-28-8-741-b01","series-title":"Nat Rev Dis Primers","first-page":"15010","article-title":"Cystic fibrosis","volume":"1","author":"Ratjen","year":"2015","unstructured":"Ratjen\n F\n , BellSC, RoweSM, \n . Cystic fibrosis. Nat Rev Dis Primers. 2015;1:15010."},{"key":"i2331-348X-28-8-741-b02","article-title":"Patient registry 2019 \u00adannual report","unstructured":"Cystic Fibrosis Foundation.\n Patient registry 2019 \u00adannual report. https:\/\/www.cff.org\/Research\/Researcher-\u00adResources\/Patient-Registry\/2019-Patient-Registry-Annual-Data-Report.pdf, accessed December 1, 2021."},{"key":"i2331-348X-28-8-741-b03","series-title":"Paediatr Respir Rev","first-page":"23","article-title":"Transition to adult care in cystic fibrosis: the challenges and the structure","volume":"41","author":"Singh","year":"2020","unstructured":"Singh\n J\n , TownsS, JayasuriyaG, \n . Transition to adult care in cystic fibrosis: the challenges and the structure. Paediatr Respir Rev. 2020;41:23\u201329."},{"issue":"(3)","key":"i2331-348X-28-8-741-b04","series-title":"J Child Health Care","first-page":"312","article-title":"Improving transition to adult healthcare for young people with cystic fibrosis: a systematic review","volume":"21","author":"Coyne","year":"2017","unstructured":"Coyne\n I\n , SheehanAM, HeeryE, WhileAE. Improving transition to adult healthcare for young people with cystic fibrosis: a systematic review. J Child Health Care. 2017;21(3):312\u2013330."},{"issue":"(1)","key":"i2331-348X-28-8-741-b05","series-title":"Pediatrics","first-page":"182","article-title":"Supporting the health care transition from adolescence to adulthood in the medical home","volume":"128","author":"Cooley","year":"2011","unstructured":"American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group; CooleyWC, SagermanPJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128(1):182\u2013200."},{"key":"i2331-348X-28-8-741-b06","series-title":"J Pediatr Nurs","first-page":"e79","article-title":"The effect of self-efficacy, social support and quality of life on readiness for transition to adult care among adolescents with cystic fibrosis in Turkey","volume":"57","author":"Torun","year":"2021","unstructured":"Torun\n T\n , \u00c7avu\u015fo\u011fluH, Do\u011fruD, \n . The effect of self-efficacy, social support and quality of life on readiness for transition to adult care among adolescents with cystic fibrosis in Turkey. J Pediatr Nurs. 2021;57:e79\u2013e84."},{"issue":"(3)","key":"i2331-348X-28-8-741-b07","series-title":"Pediatrics","first-page":"566","article-title":"Cystic fibrosis and transition to adult medical care","volume":"125","author":"Tuchman","year":"2010","unstructured":"Tuchman\n LK\n , SchwartzLA, SawickiGS, BrittoMT. Cystic fibrosis and transition to adult medical care. Pediatrics. 2010;125(3):566\u2013573."},{"key":"i2331-348X-28-8-741-b08","article-title":"CF R.I.S.E. Responsibility. Independence. Self-care. Education","year":"2019","unstructured":"CF Transition Advisory Council. CF R.I.S.E. Responsibility. Independence. Self-care. Education. 2019. Accessed September 26, 2022. https:\/\/www.cfrise.com\/cf-resources"},{"issue":"(4)","key":"i2331-348X-28-8-741-b09","series-title":"Pediatr Allergy Immunol Pulmonol","first-page":"250","article-title":"CF RISE: implementing a clinic-based transition program","volume":"28","author":"Baker","year":"2015","unstructured":"Baker\n AM\n , RiekertKA, SawickiGS, EakinMN. CF RISE: implementing a clinic-based transition program. Pediatr Allergy Immunol Pulmonol. 2015;28(4):250\u2013254."},{"issue":"(5)","key":"i2331-348X-28-8-741-b10","series-title":"J Paediatr Child Health","first-page":"488","article-title":"Investigating self-efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis","volume":"53","author":"Faint","year":"2017","unstructured":"Faint\n NR\n , StatonJM, StickSM, \n . Investigating self-efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis. J Paediatr Child Health. 2017;53(5):488\u2013493."},{"issue":"(19)","key":"i2331-348X-28-8-741-b11","series-title":"Am J Health Syst Pharm","first-page":"1544","article-title":"Pediatric-to-adult healthcare transitions: current challenges and recommended practices","volume":"76","author":"Hobart","year":"2019","unstructured":"Hobart\n CB\n , PhanH. Pediatric-to-adult healthcare transitions: current challenges and recommended practices, Am J Health Syst Pharm. 2019;76(19):1544\u20131554."},{"key":"i2331-348X-28-8-741-b12","series-title":"Nutrition: For Teens with Cystic Fibrosis","author":"Luder","year":"2006","unstructured":"Luder\n E\n , CaseyS, FultonJ, \n . Nutrition: For Teens with Cystic Fibrosis. Cystic Fibrosis Foundation Education Committee; 2006."},{"key":"i2331-348X-28-8-741-b13","series-title":"Nutrition: Pancreatic Enzyme Replacement in People With Cystic Fibrosis","author":"Maguiness","year":"2006","unstructured":"Maguiness\n K\n , CaseyS, FultonJ, \n . Nutrition: Pancreatic Enzyme Replacement in People With Cystic Fibrosis. Cystic Fibrosis Foundation Education Committee; 2006."},{"key":"i2331-348X-28-8-741-b14","year":"2015","unstructured":"MVW Education Cards. M.V.W. Nutritionals Inc.; 2015."},{"issue":"(2)","key":"i2331-348X-28-8-741-b15","series-title":"Pediatr Allergy Immunol Pulmonol","first-page":"56","article-title":"Measuring knowledge of disease management in adolescents with cystic fibrosis: initial psychometric evaluation","volume":"31","author":"Bernstein","year":"2018","unstructured":"Bernstein\n RM\n , RiekertKA, QuittnerAL. Measuring knowledge of disease management in adolescents with cystic fibrosis: initial psychometric evaluation. Pediatr Allergy Immunol Pulmonol. 2018;31(2):56\u201365."},{"issue":"(5)","key":"i2331-348X-28-8-741-b16","series-title":"J Clin Transl Sci","first-page":"334","article-title":"Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: current practices and research priorities","volume":"2","author":"Lanzkron","year":"2018","unstructured":"Lanzkron\n S\n , SawickiGS, HassellKL, \n . Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: current practices and research priorities. J Clin Transl Sci. 2018;2(5):334\u2013342."},{"issue":"(1)","key":"i2331-348X-28-8-741-b17","series-title":"Chest","first-page":"142","article-title":"Pulmonary medication adherence and health-care use in cystic fibrosis","volume":"146","author":"Quittner","year":"2014","unstructured":"Quittner\n AL\n , ZhangJ, MarynchenkoM, \n . Pulmonary medication adherence and health-care use in cystic fibrosis. 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