{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,9,26]],"date-time":"2025-09-26T12:40:11Z","timestamp":1758890411961,"version":"3.44.0"},"reference-count":20,"publisher":"Danish Medical Association","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Dan Med J"],"abstract":"<jats:p>INTRODUCTION. In 2020, the Danish National Audit Office (Rigsrevisionen) criticised the Danish palliative care (PC) provision. The Board of the Danish Association for Palliative Medicine (DSPaM) recognised an urgent need for a national strategy to improve PC in Denmark. The Board wished to develop a strategy which ensured acceptance and legitimation internationally and within the DSPaM. The aim of this study was to describe the development of the DSPaM \u2018National strategy of palliative care for patients with life-threatening diseases\u2019.\n\nMETHODS. The Cicely Saunders International (CSI) action plan, \u2018You matter because you are you, an action plan for better palliative care,\u2019 seemed applicable because of its extensive, evidence-based content. A thorough translation and cultural adaptation were followed by group discussions and a Delphi process among DSPaM members.\n\nRESULTS. The Delphi process underwent eight editions before the final version was approved by the DSPaM Board in January 2024. A total of 36% of the members participated in the group discussions in January 2022. The response rates were 43% in the first and 62.8% in the second survey, with a final average member agreement of 92.7%. The main differences were that the CSI action plan mentions COVID-19 pandemic and patient empowerment, whereas the Danish strategy document refers to socially vulnerable patients.\n\nCONCLUSIONS. A Danish strategy document for PC was developed through a Delphi process involving the DSPaM members. The Danish strategy document was approved by a large majority of DSPaM members, thus providing a solid ground for a common national strategy for PC in Denmark.\n\nFUNDING. None.\n\nTRIAL REGISTRATION. Not relevant.<\/jats:p>","DOI":"10.61409\/a12240872","type":"journal-article","created":{"date-parts":[[2025,6,13]],"date-time":"2025-06-13T06:52:41Z","timestamp":1749797561000},"page":"1-8","source":"Crossref","is-referenced-by-count":0,"title":["Development of a national strategy for palliative care"],"prefix":"10.61409","author":[{"given":"Emma","family":"Helledie","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kristoffer","family":"Marsaa","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tina","family":"Lyngstroem","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mogens","family":"Groenvold","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Per","family":"Sjoegren","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lise","family":"Nottelmann","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Torben Strodl","family":"Andersen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anette","family":"Hygum","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jette","family":"Paerregaard","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dorte Lange","family":"Hoest","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Henrik Anker","family":"Nielsen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mette Kelstrup","family":"Hallas","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Irene J.","family":"Higginson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mette Asbjoern","family":"Neergaard","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"40208","published-online":{"date-parts":[[2025,6,1]]},"reference":[{"key":"ref0","unstructured":"Rigsrevisionen. Beretning om adgangen til specialiseret palliation. Rigsrevisionen, 2020. www.rigsrevisionen.dk\/revisionssager-arkiv\/2020\/aug\/beretning-om-adgangen-til-specialiseret-palliation (19 Sep 2024)"},{"key":"ref1","unstructured":"Danish Association forPalliative Medicine. https:\/\/palliativmedicin.dk (30 Jul 2024)"},{"key":"ref2","unstructured":"World Health Organization. Palliative care. World Health Organization, 2020. www.who.int\/news-room\/fact-sheets\/detail\/palliative-care (30 Jul 2024)"},{"key":"ref3","unstructured":"European Association of Palliative Care. About European Association of Palliative Care. https:\/\/eapcnet.eu\/about-us\/ (30 Jul 2024)"},{"key":"ref4","unstructured":"Cicely Saunders International. You matter because you are you. An action plan for better palliative care. Cicely Saunders International, 2021. https:\/\/csiweb.pos-pal.co.uk\/csi-content\/uploads\/2021\/01\/Cicely-Saunders-Manifesto-A4-multipage_Jan2021-2.pdf (30 Jul 2024)"},{"key":"ref5","unstructured":"Danish Association for Palliative Medicine. National strategi for lindring af patienter med livstruende sygdomme. Dansk Selskab for Palliativ Medicins (DSPaMs) visionsdokument 2024. Danish Association for Palliative Medicine, 2024. https:\/\/palliativmedicin.dk\/wp-content\/uploads\/2024\/04\/DSPaM_National-strategi-2024.pdf (30 Jul 2024)"},{"key":"ref6","doi-asserted-by":"publisher","unstructured":"McMillan SS, King M, Tully MP. How to use the nominal group and Delphi techniques. Int J Clin Pharm. 2016;38(3):655-62. https:\/\/doi.org\/10.1007\/s11096-016-0257-x","DOI":"10.1007\/s11096-016-0257-x"},{"key":"ref7","doi-asserted-by":"publisher","unstructured":"Humphrey-Murto S, Varpio L, Gonsalves C, Wood TJ. Using consensus group methods such as Delphi and Nominal Group in medical education research. Med Teach. 2017;39(1):14-9. https:\/\/doi.org\/10.1080\/0142159X.2017.1245856","DOI":"10.1080\/0142159X.2017.1245856"},{"key":"ref8","unstructured":"Sundhedsstyrelsen. Anbefalinger for den palliative indsats. Sundhedsstyrelsen, 2017. www.sst.dk\/da\/sygdom-og-behandling\/~\/media\/79CB83AB4DF74C80837BAAAD55347D0D.ashx (30 Jul 2024)"},{"key":"ref9","doi-asserted-by":"publisher","unstructured":"Marsaa K, Gundestrup S, Jensen JU, et al. Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases. Eur Clin Respir J. 2018;5(1):1530029. https:\/\/doi.org\/10.1080\/20018525.2018.1530029","DOI":"10.1080\/20018525.2018.1530029"},{"key":"ref10","unstructured":"Mars\u00e5 K, Knudsen T, Gundestrup S, et al. Dansk Lungemedicinsk Selskab: Klaringsrapport om palliation til voksne med kronisk fremadskridende non-malign lungesygdom. https:\/\/lungemedicin.dk\/wp-content\/uploads\/2021\/06\/DLS-klaringsrapport-om-palliation-2015.pdf (30 Jul 2024)"},{"key":"ref11","unstructured":"Mars\u00e5 K, Lavesen M, Knudsen T, et al. Samtalen om f\u00e6lles planl\u00e6gning af behandlingsm\u00e5l. 2015. https:\/\/lungemedicin.dk\/wp-content\/uploads\/2021\/06\/DLS-Faelles-planlaegning-af-behandlingsmaal-2015.pdf (30 Jul 2024)"},{"key":"ref12","doi-asserted-by":"publisher","unstructured":"S\u00f8rensen AR, Marsaa K, Prior TS, Bendstrup E. Attitude and barriers in palliative care and advance care planning in nonmalignant chronic lung disease: results from a Danish national survey. J Palliat Care. 2020;35(4):232-5. https:\/\/doi.org\/10.1177\/0825859720936012","DOI":"10.1177\/0825859720936012"},{"key":"ref13","doi-asserted-by":"publisher","unstructured":"Sep\u00falveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization's global perspective. J Pain Symptom Manage. 2002;24(2):91-6. https:\/\/doi.org\/10.1016\/S0885-3924(02)00440-2","DOI":"10.1016\/S0885-3924(02)00440-2"},{"key":"ref14","doi-asserted-by":"publisher","unstructured":"Radbruch L, De Lima L, Knaul F, et al. Redefining palliative care: a new consensus-based definition. J Pain Symptom Manage. 2020;60(4):754-64. https:\/\/doi.org\/10.1016\/j.jpainsymman.2020.04.027","DOI":"10.1016\/j.jpainsymman.2020.04.027"},{"key":"ref15","doi-asserted-by":"publisher","unstructured":"Sullivan DR, Iyer AS, Enguidanos S, et al. Palliative care early in the care continuum among patients with serious respiratory illness: an official ATS\/AAHPM\/HPNA\/SWHPN policy statement. Am J Respir Crit Care Med. 2022;206(6):e44-e66. https:\/\/doi.org\/10.1164\/rccm.202207-1262ST","DOI":"10.1164\/rccm.202207-1262ST"},{"key":"ref16","doi-asserted-by":"publisher","unstructured":"Janssen DJA, Bajwah S, Boon MH, et al. European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease. Eur Respir J. 2023;62(2):2202014. https:\/\/doi.org\/10.1183\/13993003.02014-2022","DOI":"10.1183\/13993003.02014-2022"},{"key":"ref17","unstructured":"Regionernes Kliniske Kvalitetsudviklingsprogram (RKKP). Dansk Palliativ Database: \u00c5rsrapport 2023. Regionernes Kliniske Kvalitetsudviklingsprogram (RKKP), juni 2024. https:\/\/www.dmcgpal.dk\/files\/2023_aarsrapport.pdf (5 may, 2025)"},{"key":"ref18","doi-asserted-by":"publisher","unstructured":"Elissen A, Nolte E, Knai C, et al. Is Europe putting theory into practice? A qualitative study of the level of self-management support in chronic care management approaches. BMC Health Serv Res. 2013;13:117. https:\/\/doi.org\/10.1186\/1472-6963-13-117","DOI":"10.1186\/1472-6963-13-117"},{"key":"ref19","unstructured":"Arias-Casais N, Garralda E, Rhee JY, et al. EAPC atlas of palliative care in Europe 2019. Vilvoorde: EAPC Press, 2019"}],"container-title":["Danish Medical Journal"],"original-title":[],"deposited":{"date-parts":[[2025,9,26]],"date-time":"2025-09-26T11:59:22Z","timestamp":1758887962000},"score":1,"resource":{"primary":{"URL":"https:\/\/ugeskriftet.dk\/dmj\/A12240872"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6,1]]},"references-count":20,"URL":"https:\/\/doi.org\/10.61409\/a12240872","relation":{},"ISSN":["2245-1919"],"issn-type":[{"type":"electronic","value":"2245-1919"}],"subject":[],"published":{"date-parts":[[2025,6,1]]}}}