{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T17:29:34Z","timestamp":1765906174645,"version":"3.48.0"},"reference-count":0,"publisher":"Tunisian Society of Medical Sciences","issue":"3","license":[{"start":{"date-parts":[[2025,3,2]],"date-time":"2025-03-02T00:00:00Z","timestamp":1740873600000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Tunis Med"],"abstract":"<jats:p>Introduction\u00a0: L\u2019annonce d\u2019une maladie chronique autoimmune est une situtaion d\u00e9licate en pratique. L\u2019objectif principal de notre travail \u00e9tait d\u2019explorer le v\u00e9cu et le ressenti du patient atteint de lupus face \u00e0 l\u2019annonce de la maladie.\nPatients et m\u00e9thodes\u00a0: Etude prospective qualitative r\u00e9alis\u00e9e \u00e0 partir d\u2019entretiens individuels avec des patients atteints de LES et suivis dans un service de m\u00e9decine interne.\nR\u00e9sultats\u00a0: Nous avons collig\u00e9 60 malades\u00a0(50 femmes et 10 hommes). L\u2019\u00e2ge moyen \u00e9tait de 44,6 ans. Trente-cinq (65%) \u00e9taient mari\u00e9s. L\u2019annonce du diagnostic \u00e9tait faite par un interniste (66%). Lors de l\u2019annonce du diagnostic, 70% \u00e9taient hospitalis\u00e9s, seuls (48%) et en pr\u00e9sence d\u2019un proche (51%). L\u2019annonce a eu lieu dans le bureau du m\u00e9decin dans 40%. La dur\u00e9e de l\u2019annonce du diagnostic \u00e9tait jug\u00e9e suffisante (56%). Le m\u00e9decin a propos\u00e9 une deuxi\u00e8me consultation rapproch\u00e9e pour compl\u00e9ter l\u2019information (18%). La r\u00e9action initiale \u00e9tait l\u2019acceptation (54%), le d\u00e9sespoir (31%), le d\u00e9ni et le refus de divulguer le diagnostic (n=3). Environ 36 % pensaient qu\u2019une consultation chez un psychiatre est n\u00e9cessaire. La pr\u00e9sence d\u2019un proche \u00e9tait jug\u00e9e utile (45%). Les patients ont propos\u00e9 de donner plus d\u2019informations sur la maladie (58%), sur son \u00e9volution (36%) et sur le traitement (5%). L\u2019\u00e9tude analytique a montr\u00e9 que les patients acceptent mieux le diagnostic de LES quand ils sont accompagn\u00e9s (P=0,026), mari\u00e9s (P=0,01) et que la dur\u00e9e de l\u2019annonce soit suffisante (P=0,045).\nConclusion\u00a0: L\u2019annonce du diagnostic de LES doit \u00eatre dans des conditions ad\u00e9quates, claire ...( r\u00e9sum\u00e9 tronqu\u00e9 \u00e0 250 mots).<\/jats:p>","DOI":"10.62438\/tunismed.v103i3.5250","type":"journal-article","created":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T17:22:25Z","timestamp":1765905745000},"source":"Crossref","is-referenced-by-count":0,"title":["V\u00e9cu et ressenti des patients atteints de Lupus \u00e9ryth\u00e9mateux syst\u00e9mique face \u00e0 l\u2019annonce du diagnostic : S\u00e9rie de 50 observations"],"prefix":"10.62438","volume":"103","author":[{"given":"Zohra","family":"Aydi","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Im\u00e8ne","family":"Rachdi","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rihem","family":"Boukhzar","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Arij","family":"Soli","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mehdi","family":"Somai","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ibrahim","family":"Arbaoui","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Besma","family":"Ben Dhaou","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fatma","family":"Daoud","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fatma","family":"Boussema","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"31112","published-online":{"date-parts":[[2025,3,2]]},"container-title":["La Tunisie M\u00e9dicale"],"original-title":[],"deposited":{"date-parts":[[2025,12,16]],"date-time":"2025-12-16T17:25:10Z","timestamp":1765905910000},"score":1,"resource":{"primary":{"URL":"https:\/\/latunisiemedicale.com\/index.php\/tunismed\/article\/view\/5250"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,3,2]]},"references-count":0,"journal-issue":{"issue":"3","published-online":{"date-parts":[[2025,3,2]]}},"URL":"https:\/\/doi.org\/10.62438\/tunismed.v103i3.5250","relation":{},"ISSN":["2724-7031","0041-4131"],"issn-type":[{"type":"electronic","value":"2724-7031"},{"type":"print","value":"0041-4131"}],"subject":[],"published":{"date-parts":[[2025,3,2]]}}}