{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,9,23]],"date-time":"2025-09-23T12:40:43Z","timestamp":1758631243342,"version":"3.33.0"},"reference-count":28,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2013,3,1]],"date-time":"2013-03-01T00:00:00Z","timestamp":1362096000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Prog Transpl"],"published-print":{"date-parts":[[2013,3]]},"abstract":"<jats:sec><jats:title>Context<\/jats:title><jats:p> The request process for eye and tissue donation is different from the process that families of organ donors experience, but the research into eye\/tissue-only decision making has been sparse. <\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p> To determine the concerns of families approached over the phone for eye\/tissue donations and to study the impact of the donor registry on those decisions. <\/jats:p><\/jats:sec><jats:sec><jats:title>Design, Setting and Participants<\/jats:title><jats:p> Written instrument filled out by family services coordinators while speaking with families about donation via phone in the San Diego, California, area during 2011. <\/jats:p><\/jats:sec><jats:sec><jats:title>Main Outcome Measures<\/jats:title><jats:p> Responses marked on a 21-item instrument, contextual notes, donor registrations, and decisions made. <\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p> With a 60% refusal rate, the most common reasons reported for declining donation are that the potential donor said during life he\/she did not want to donate (26%) or that the family, not knowing the potential donor's wishes, opted not to donate (13%). Other specific reasons for not donating were as follows: wanting the body buried whole (8%), concerns about age and prior health (7%), and incompatibility with religion or culture (7%). Consenting families had different concerns: worries about delays (36%), the potential donors' age and health (25%), how the body might look for viewing (14%), the amount of paperwork (10%), for-profit status of beneficiaries (9%), international distribution (8%), and family disunity (8%). Registry-related refusals weighted against donations of tissues from registered donors amounted to a deficit of 92 potential donations. When donations lost to faulty assumptions based on public education are added, the deficit increases to 122 lost donations. <\/jats:p><\/jats:sec>","DOI":"10.7182\/pit2013948","type":"journal-article","created":{"date-parts":[[2013,3,1]],"date-time":"2013-03-01T13:38:49Z","timestamp":1362145129000},"page":"92-98","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Telephone Requests for Donation: Concerns Expressed by Families and the Impact of the Donor Registry"],"prefix":"10.7182","volume":"23","author":[{"given":"Margaret","family":"Verble","sequence":"first","affiliation":[{"name":"Verble, Worth and Verble, Lexington, Kentucky (MV, JW), Washington University School of Medicine, St. Louis, Missouri (KD), San Diego Eye Bank, San Diego, California (JGP)"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kimberly","family":"Darcy","sequence":"additional","affiliation":[{"name":"Verble, Worth and Verble, Lexington, Kentucky (MV, JW), Washington University School of Medicine, St. Louis, Missouri (KD), San Diego Eye Bank, San Diego, California (JGP)"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeffrey G.","family":"Penta","sequence":"additional","affiliation":[{"name":"Verble, Worth and Verble, Lexington, Kentucky (MV, JW), Washington University School of Medicine, St. Louis, Missouri (KD), San Diego Eye Bank, San Diego, California (JGP)"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Judy","family":"Worth","sequence":"additional","affiliation":[{"name":"Verble, Worth and Verble, Lexington, Kentucky (MV, JW), Washington University School of Medicine, St. Louis, Missouri (KD), San Diego Eye Bank, San Diego, California (JGP)"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2013,3,1]]},"reference":[{"volume-title":"Attitudes and Opinions of the American Public Towards Kidney 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