{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T13:27:52Z","timestamp":1787318872844,"version":"build-2736575974"},"reference-count":70,"publisher":"International Society of Global Health","issue":"1","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2017,6]]},"DOI":"10.7189\/jogh.07.010413","type":"journal-article","created":{"date-parts":[[2017,6,7]],"date-time":"2017-06-07T03:22:29Z","timestamp":1496805749000},"source":"Crossref","is-referenced-by-count":23,"title":["Initiating a participatory action research process in the Agincourt health and socio\u2013demographic surveillance site"],"prefix":"10.7189","volume":"7","author":[{"given":"Oghenebrume","family":"Wariri","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lucia","family":"D\u2019Ambruoso","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhian","family":"Twine","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sizzy","family":"Ngobeni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria","family":"van der Merwe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Barry","family":"Spies","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathleen","family":"Kahn","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephen","family":"Tollman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ryan G","family":"Wagner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Byass","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"4223","reference":[{"key":"key20170607032224_R1","unstructured":"World Health Organization. The World Health Report \u2013 Health Systems Financing: The Path to Universal Coverage. Geneva: World Health Organisation, 2010. Available: http:\/\/www.who.int\/whr\/2010\/en\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R2","doi-asserted-by":"crossref","first-page":"1728","DOI":"10.1016\/j.socscimed.2010.05.023","article-title":"A lost cause? Extending verbal autopsy to investigate biomedical and socio-cultural causes of maternal death in Burkina Faso and Indonesia.","volume":"71","author":"D\u2019Ambruoso","year":"2010","journal-title":"Soc Sci Med"},{"key":"key20170607032224_R3","doi-asserted-by":"crossref","first-page":"1527","DOI":"10.1016\/S0140-6736(07)61644-4","article-title":"Improving health statistics in Africa.","volume":"370","author":"Okonjo-Iweala","year":"2007","journal-title":"Lancet"},{"key":"key20170607032224_R4","doi-asserted-by":"crossref","first-page":"1569","DOI":"10.1016\/S0140-6736(07)61307-5","article-title":"on behalf of the monitoring of Vital Events (MoVE). A scandal of invisibility: making everyone count by counting everyone.","volume":"370","author":"Setel","year":"2007","journal-title":"Lancet"},{"key":"key20170607032224_R5","doi-asserted-by":"crossref","first-page":"e14","DOI":"10.1016\/S0140-6736(15)60765-6","article-title":"Civil registration as a means to promote human security.","volume":"386","author":"Shibuya","year":"2015","journal-title":"Lancet"},{"key":"key20170607032224_R6","unstructured":"World Health Organization. Changing Mindsets: Strategy on health policy and systems research. Geneva: World Health Organisation, 2012. Available: http:\/\/www.who.int\/alliance-hpsr\/alliancehpsr_changingmindsets_strategyhpsr.pdf Accessed: 28 February 2017."},{"key":"key20170607032224_R7","unstructured":"World Health Organization. PMNCH Knowledge summary #17 Civil Registration and Vital Statistics (CRVS). Geneva: World Health Organization, 2012. Available: http:\/\/www.who.int\/pmnch\/knowledge\/publications\/summaries\/knowledge_summaries_17_civil_registration\/en\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R8","unstructured":"World Health Organization. Verbal autopsy standards: the 2014 WHO verbal autopsy instrument. Geneva: World Health Organization, 2015. Available: http:\/\/www.who.int\/healthinfo\/statistics\/verbalautopsystandards\/en\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R9","doi-asserted-by":"crossref","first-page":"1313","DOI":"10.1016\/S0140-6736(15)60305-1","article-title":"Everyone counts\u2014so count everyone.","volume":"386","author":"Lo","year":"2015","journal-title":"Lancet"},{"key":"key20170607032224_R10","first-page":"171","article-title":"Counting the dead and what they died of: an assessment of the global status of cause of death data.","volume":"83","author":"Mathers","year":"2005","journal-title":"Bull World Health Organ"},{"key":"key20170607032224_R11","doi-asserted-by":"crossref","first-page":"e20","DOI":"10.1016\/S2214-109X(16)30332-1","article-title":"The case for verbal autopsy in health systems strengthening.","volume":"5","author":"D\u2019Ambruoso","year":"2017","journal-title":"Lancet Glob Health"},{"key":"key20170607032224_R12","unstructured":"World Health Organization, Commission on Social Determinants of Health. Closing the gap in a generation: health equity through action on the social determinants of health. Final report of the Commission on Social Determinants of Health. Geneva: World Health Organization, 2008. Available: http:\/\/www.who.int\/social_determinants\/thecommission\/finalreport\/en\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R13","first-page":"216","article-title":"A ladder of citizen participation.","volume":"35","author":"Arnstein","year":"1969","journal-title":"J Am Plann Assoc"},{"key":"key20170607032224_R14","doi-asserted-by":"crossref","first-page":"ii98","DOI":"10.1093\/heapol\/czu076","article-title":"Examining the links between community participation and health outcomes: a review of the literature.","volume":"29","author":"Rifkin","year":"2014","journal-title":"Health Policy Plan"},{"key":"key20170607032224_R15","doi-asserted-by":"crossref","first-page":"221","DOI":"10.1093\/heapol\/16.3.221","article-title":"Community participation in health: Perpetual allure, persistent challenge.","volume":"16","author":"Morgan","year":"2001","journal-title":"Health Policy Plan"},{"key":"key20170607032224_R16","doi-asserted-by":"crossref","first-page":"1102","DOI":"10.1016\/j.socscimed.2010.05.016","article-title":"Chasing the dragon: Developing indicators for the assessment of community participation in health programmes.","volume":"71","author":"Draper","year":"2010","journal-title":"Soc Sci Med"},{"key":"key20170607032224_R17","doi-asserted-by":"crossref","unstructured":"Loewenson R, Flores W, Shukla A, Kagis M, Baba A, Ryklief A, et al. Raising the profile of participatory action research at the 2010 Global Symposium on Health Systems Research. MEDICC Rev. 2011;13:35. Available: http:\/\/www.medicc.org\/mediccreview\/index.php?get=2011\/3\/35 Accessed: 28 February 2017.","DOI":"10.1590\/S1555-79602011000300008"},{"key":"key20170607032224_R18","doi-asserted-by":"crossref","first-page":"854","DOI":"10.1136\/jech.2004.028662","article-title":"Participatory action research.","volume":"60","author":"Baum","year":"2006","journal-title":"J Epidemiol Community Health"},{"key":"key20170607032224_R19","doi-asserted-by":"crossref","first-page":"817","DOI":"10.1016\/S0140-6736(09)60951-X","article-title":"The health and health system of South Africa: historical roots of current public challenges.","volume":"374","author":"Coovadia","year":"2009","journal-title":"Lancet"},{"key":"key20170607032224_R20","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1056\/NEJMhpr033471","article-title":"Health care reform and the crisis of HIV and AIDS in South Africa.","volume":"351","author":"Benatar","year":"2004","journal-title":"N Engl J Med"},{"key":"key20170607032224_R21"},{"key":"key20170607032224_R22"},{"key":"key20170607032224_R23","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1093\/pubmed\/fds008","article-title":"The South African national health insurance: a revolution in health-care delivery!","volume":"34","author":"Naidoo","year":"2012","journal-title":"J Public Health (Oxf)."},{"key":"key20170607032224_R24","doi-asserted-by":"crossref","first-page":"489","DOI":"10.7196\/SAMJ.5611","article-title":"What healthcare financing changes are needed to reach universal coverage in South Africa?","volume":"102","author":"McIntyre","year":"2012","journal-title":"S Afr Med J"},{"key":"key20170607032224_R25","doi-asserted-by":"crossref","first-page":"154","DOI":"10.7196\/SAMJ.6622","article-title":"The challenges of health disparities in South Africa.","volume":"103","author":"Benatar","year":"2013","journal-title":"S Afr Med J"},{"key":"key20170607032224_R26","doi-asserted-by":"crossref","first-page":"988","DOI":"10.1093\/ije\/dys115","article-title":"Profile: Agincourt Health and Socio-demographic Surveillance System.","volume":"41","author":"Kahn","year":"2012","journal-title":"Int J Epidemiol"},{"key":"key20170607032224_R27","unstructured":"MRC\/Wits Rural Public Health and Health Transitions Research Unit (Agincourt) Johannesburg. University of the Witwatersrand, 2015. Available: http:\/\/www.agincourt.co.za. Accessed: 28 February 2017."},{"key":"key20170607032224_R28","unstructured":"Mpumalanga Department of Health. Annual report for 2014-2015. Nelspruit: DOH, 2015. Available: http:\/\/www.mpuhealth.gov.za\/VOTE\/VOTE10.pdf Accessed: 28 February 2017."},{"key":"key20170607032224_R29","unstructured":"Cullinan K. Health Services in South Africa: A Basic Introduction. Health-e News Services, January 2006. Available: https:\/\/www.health-e.org.za\/2006\/01\/29\/health-services-in-south-africa-a-basic-introduction\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R30","unstructured":"Loewenson R, Laurell AC, Hogstedt C, D\u2019Ambruoso L, Shroff Z. Participatory action research in health systems: a methods reader. Regional Network for Equity in Health in East and Southern Africa (EQUINET) in association with Training and Research Support Centre (TARSC), Alliance for Health Policy and Systems Research (AHPSR), World Health Organization (WHO) and the International Development Research Centre (IDRC) Canada, 2014. Available: http:\/\/www.equinetafrica.org\/sites\/default\/files\/uploads\/documents\/PAR%20Methods%20Reader2014%20for%20web.pdf Accessed: 28 February 2017."},{"key":"key20170607032224_R31","doi-asserted-by":"crossref","first-page":"010406","DOI":"10.7189\/jogh.06.010406","article-title":"Community perspectives on HIV, violence and health surveillance in rural South Africa: a participatory pilot study.","volume":"6","author":"Hullur","year":"2016","journal-title":"J Glob Health"},{"key":"key20170607032224_R32"},{"key":"key20170607032224_R33","doi-asserted-by":"crossref","DOI":"10.1136\/bmjgh-2016-000231","article-title":"Introducing visual participatory methods to develop local knowledge on HIV-related mortality in demographic surveillance in rural South Africa.","author":"Brooks","year":"2017","journal-title":"BMJ Glob Health."},{"key":"key20170607032224_R34","unstructured":"World Health Organization. International statistical classification of diseases and related health problems. Vol. 1. Geneva: World Health Organization, 2010. Available: http:\/\/apps.who.int\/classifications\/icd10\/browse\/2010\/en. Accessed: 28 February 2017."},{"key":"key20170607032224_R35","first-page":"1","article-title":"Moving from medical to health systems classifications of deaths: extending verbal autopsy to collect information on the circumstances of mortality.","volume":"1","author":"D\u2019Ambruoso","year":"2016","journal-title":"Global Health Res Pol."},{"key":"key20170607032224_R36"},{"key":"key20170607032224_R37","doi-asserted-by":"crossref","first-page":"278","DOI":"10.1080\/14635240.2012.723379","article-title":"It\u2019s making us look disgusting\u2026 and it makes me feel like a mink\u2026 it makes me feel depressed! Using photovoice to help \u2018see\u2019 and understand the perspectives of disadvantaged young people about the neighbourhood determinants of their mental well-being.","volume":"50","author":"Watson","year":"2012","journal-title":"Int J Health Promot Educ"},{"key":"key20170607032224_R38"},{"key":"key20170607032224_R39"},{"key":"key20170607032224_R40"},{"key":"key20170607032224_R41","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology.","volume":"3","author":"Braun","year":"2006","journal-title":"Qual Res Psychol"},{"key":"key20170607032224_R42"},{"key":"key20170607032224_R43","unstructured":"Africa Check. Factsheet: social grants in South Africa- separating myth from reality. Africa Check. 2017. Available: https:\/\/africacheck.org\/factsheets\/separating-myth-from-reality-a-guide-to-social-grants-in-south-africa\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R44","unstructured":"Makiwane M, Udjo E, Richter L, Desmond C. Is the Child Support Grant associated with an increase in teenage fertility in South Africa? Evidence from national surveys and administrative data. Available: http:\/\/www.hsrc.ac.za\/en\/research-data\/view\/3029. Accessed: 28 February 2017."},{"key":"key20170607032224_R45"},{"key":"key20170607032224_R46","doi-asserted-by":"crossref","first-page":"e362","DOI":"10.1016\/S2214-109X(13)70115-3","article-title":"Child-focused state cash transfers and adolescent risk of HIV infection in South Africa: a propensity-score-matched case-control study.","volume":"1","author":"Cluver","year":"2013","journal-title":"Lancet Glob Health"},{"key":"key20170607032224_R47","doi-asserted-by":"crossref","first-page":"1320","DOI":"10.1016\/S0140-6736(11)61709-1","article-title":"Effect of a cash transfer programme for schooling on prevalence of HIV and herpes simplex type 2 in Malawi: a cluster randomised trial.","volume":"379","author":"Baird","year":"2012","journal-title":"Lancet"},{"key":"key20170607032224_R48"},{"key":"key20170607032224_R49","doi-asserted-by":"crossref","first-page":"1453","DOI":"10.1016\/S0277-9536(02)00142-9","article-title":"Trust and the development of health care as a social institution.","volume":"56","author":"Gilson","year":"2003","journal-title":"Soc Sci Med"},{"key":"key20170607032224_R50","doi-asserted-by":"crossref","first-page":"803","DOI":"10.2471\/BLT.10.021110","article-title":"Bridging the gap in South Africa.","volume":"88","author":"Keeton","year":"2010","journal-title":"Bull World Health Organ"},{"key":"key20170607032224_R51","doi-asserted-by":"crossref","first-page":"S102","DOI":"10.1057\/jphp.2011.35","article-title":"Inequities in access to health care in South Africa.","volume":"32","author":"Harris","year":"2011","journal-title":"J Public Health Policy"},{"key":"key20170607032224_R52"},{"key":"key20170607032224_R53"},{"key":"key20170607032224_R54","unstructured":"Wariri O. Bridging the gap: using health policy and systems research to connect health system\u2019s stakeholders and rural communities in Mpumalanga province, South Africa [MSc Dissertation]. Aberdeen: University of Aberdeen; 2016."},{"key":"key20170607032224_R55","unstructured":"University of Aberdeen and MRC\/Wits-Agincourt Research Unit, University of the Witwatersrand. Health systems research: developing partnerships to understand and improve health. [Dissemination workshop 14 November 2016]. 2016. Available: http:\/\/www.abdn.ac.uk\/iahs\/research\/global-health\/news\/10357\/?_ga=1.14372404.2045357365.1486141285. Accessed: 28 February 2017."},{"key":"key20170607032224_R56"},{"key":"key20170607032224_R57","first-page":"47","article-title":"Maternal mortality and severe morbidity in rural Indonesia Part 1: the community perspective.","volume":"7","author":"D\u2019Ambruoso","year":"2013","journal-title":"Soc Med (Soc Med Publ Group)"},{"key":"key20170607032224_R58","unstructured":"University of Aberdeen. Collaborative health research to tackle 'invisible deaths'. Aberdeen: University of Aberdeen; 2017. Available: http:\/\/www.abdn.ac.uk\/news\/10451\/. Accessed: 28 February 2017."},{"key":"key20170607032224_R59","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1016\/j.socscimed.2017.01.027","article-title":"Community-based participatory research in a heavily researched inner city neighbourhood: perspectives of people who use drugs on their experiences as peer researchers.","volume":"176","author":"Damon","year":"2017","journal-title":"Soc Sci Med"},{"key":"key20170607032224_R60"},{"key":"key20170607032224_R61","doi-asserted-by":"crossref","first-page":"303","DOI":"10.1177\/1476750310396952","article-title":"Participatory action research as the approach for women\u2019s empowerment.","volume":"9","author":"Aziz","year":"2011","journal-title":"Action Res"},{"key":"key20170607032224_R62","unstructured":"Cornwall A, Leach M. Putting the politics back into \u201cpublic engagement\u201d: participation, mobilization and citizenship in the shaping of health services. Citizenship DRC Synthesis Paper. Brighton: IDS, 2010. Available: https:\/\/opendocs.ids.ac.uk\/opendocs\/handle\/123456789\/12550. Accessed: 28 February 2017."},{"key":"key20170607032224_R63","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1002\/itdj.20052","article-title":"Participatory design for social development: a South African case study on community-based health information systems.","volume":"13","author":"Byrne","year":"2006","journal-title":"Inf Technol Dev"},{"key":"key20170607032224_R64","first-page":"403","article-title":"Increased use of social autopsy is needed to improve maternal, neonatal and child health programmes in low-income countries.","volume-title":"Bull World Health Organ","author":"Waiswa","year":"2012"},{"key":"key20170607032224_R65","doi-asserted-by":"crossref","first-page":"964","DOI":"10.1111\/j.1365-3156.2010.02557.x","article-title":"Using the three delays model to understand why newborn babies die in eastern Uganda.","volume":"15","author":"Waiswa","year":"2010","journal-title":"Trop Med Int Health"},{"key":"key20170607032224_R66","first-page":"010416","article-title":"Social autopsy of neonatal mortality suggests needed improvements in maternal and neonatal interventions in Balaka and Salima districts of Malawi.","volume":"5","author":"Koffi","year":"2015","journal-title":"J Glob Health"},{"key":"key20170607032224_R67","doi-asserted-by":"crossref","first-page":"010604","DOI":"10.7189\/jogh.06.010604","article-title":"Verbal\/social autopsy study helps explain the lack of decrease in neonatal mortality in Niger, 2007-2010.","volume":"6","author":"Kalter","year":"2016","journal-title":"J Glob Health"},{"key":"key20170607032224_R68","doi-asserted-by":"crossref","first-page":"235","DOI":"10.1080\/026839696345289","article-title":"A critical perspective on action research as a method for information systems research.","volume":"11","author":"Baskerville","year":"1996","journal-title":"J Inf Technol"},{"key":"key20170607032224_R69","doi-asserted-by":"crossref","first-page":"582","DOI":"10.2307\/2392581","article-title":"An assessment of the scientific merits of action research.","volume":"23","author":"Susman","year":"1978","journal-title":"Adm Sci Q"},{"key":"key20170607032224_R70"}],"container-title":["Journal of Global Health"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/jogh.org\/documents\/issue201701\/jogh-07-010413.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2019,11,26]],"date-time":"2019-11-26T10:46:43Z","timestamp":1574765203000},"score":1,"resource":{"primary":{"URL":"http:\/\/jogh.org\/documents\/issue201701\/jogh-07-010413.pdf"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,6]]},"references-count":70,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2017,6]]}},"alternative-id":["10.7189\/jogh.07.010413"],"URL":"https:\/\/doi.org\/10.7189\/jogh.07.010413","relation":{},"ISSN":["2047-2978","2047-2986"],"issn-type":[{"value":"2047-2978","type":"print"},{"value":"2047-2986","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,6]]},"article-number":"010413"}}