{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,10]],"date-time":"2026-11-10T15:46:21Z","timestamp":1794325581847,"version":"4.9.0"},"reference-count":47,"publisher":"Royal College of Nursing","issue":"6","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,12,1]]},"DOI":"10.7748\/nop.2025.e1521","type":"journal-article","created":{"date-parts":[[2025,9,30]],"date-time":"2025-09-30T05:50:07Z","timestamp":1759211407000},"page":"34-41","source":"Crossref","is-referenced-by-count":0,"title":["Role of nurses in supporting advance care planning for people living with dementia"],"prefix":"10.7748","volume":"37","author":[{"given":"Susan","family":"Holland","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Morna","family":"Miller","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mary-Anne","family":"Sheeran","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"4499","published-online":{"date-parts":[[2025,9,30]]},"reference":[{"key":"key20251128164801_R1","unstructured":"Alzheimer\u2019s Research UK (2024) Dementia Is the UK\u2019s Biggest Killer \u2013 We Need Political Action to Save Lives. www.alzheimersresearchuk.org\/news\/dementia-is-the-uks-biggest-killer-we-need-political-action-to-save-lives (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R2","unstructured":"Alzheimer\u2019s Research UK (2025) Prevalence and Incidence of Dementia. dementiastatistics.org\/about-dementia\/prevalence-and-incidence (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R3","unstructured":"Alzheimer\u2019s Society (2025) The Progression, Signs and Stages of Dementia. www.alzheimers.org.uk\/about-dementia\/stages-and-symptoms\/progression-stages-dementia (Last accessed: 15 September 2025.)"},{"issue":"8","key":"key20251128164801_R4","first-page":"942","article-title":"Adapting the serious illness conversation guide to dementia care","volume":"41","year":"2023","journal-title":"American Journal of Hospice and Palliative Medicine"},{"issue":"6","key":"key20251128164801_R5","article-title":"Advance care planning in the context of dementia: defining concordance","volume":"64","year":"2024","journal-title":"Gerontologist"},{"issue":"1","key":"key20251128164801_R6","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1186\/s40814-022-00973-w","article-title":"Lessons from a feasibility study testing an anticipatory care planning intervention for older adults at risk of functional decline: feedback from implementing stakeholders","volume":"8","year":"2022","journal-title":"Pilot and Feasibility Studies"},{"issue":"10","key":"key20251128164801_R7","doi-asserted-by":"crossref","first-page":"e0240815","DOI":"10.1371\/journal.pone.0240815","article-title":"A realist review of advance care planning for people with multiple sclerosis and their families","volume":"15","year":"2020","journal-title":"PLoS One"},{"key":"key20251128164801_R8","unstructured":"Dementia UK (2025) Advance Care Planning. www.dementiauk.org\/information-and-support\/financial-and-legal-support\/advance-care-planning (Last accessed: 15 September 2025.)"},{"key":"#cr-split#-key20251128164801_R9.1","unstructured":"Department of Health (2019) Review of the Law Relating to Advance Decisions to Refuse Treatment: Mental Capacity Act"},{"key":"#cr-split#-key20251128164801_R9.2","unstructured":"(NI) 2016 Section 284. www.health-ni.gov.uk\/sites\/default\/files\/publications\/health\/Mental-Capacity-Act%20%28NI%29-2016.PDF (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R10","doi-asserted-by":"crossref","unstructured":"Dupont C, Smets T, Monnet F\n et al (2023) Defining the content of a website on advance care planning in dementia: a focus group study with family and health professionals. BMC Medical Informatics and Decision Making. 23, 254. doi: 10.1186\/s12911-023-02359-1","DOI":"10.1186\/s12911-023-02359-1"},{"issue":"4","key":"key20251128164801_R11","doi-asserted-by":"crossref","first-page":"932","DOI":"10.1111\/jgs.16953","article-title":"Cognitively impaired older persons\u2019 and caregivers\u2019 perspectives on dementia\u2010specific advance care planning","volume":"69","year":"2021","journal-title":"Journal of the American Geriatrics Society"},{"issue":"11","key":"key20251128164801_R12","doi-asserted-by":"crossref","first-page":"3595","DOI":"10.1111\/jgs.18495","article-title":"Evaluating the pragmatic characteristics of advance care planning outcome measures in dementia clinical trials: a scoping review","volume":"71","year":"2023","journal-title":"Journal of the American Geriatrics Society"},{"issue":"2","key":"key20251128164801_R13","doi-asserted-by":"crossref","first-page":"803","DOI":"10.3390\/ijerph19020803","article-title":"Advance care planning in neurodegenerative disorders: a scoping review","volume":"19","year":"2022","journal-title":"International Journal of Environmental Research and Public Health"},{"issue":"1","key":"key20251128164801_R14","doi-asserted-by":"crossref","first-page":"381","DOI":"10.1186\/s12877-020-01797-0","article-title":"Shared decision-making in advance care planning for persons with dementia in nursing homes: a cross-sectional study","volume":"20","year":"2020","journal-title":"BMC Geriatrics"},{"issue":"9","key":"key20251128164801_R15","doi-asserted-by":"crossref","first-page":"e0274096","DOI":"10.1371\/journal.pone.0274096","article-title":"The effect of a family-centered advance care planning intervention for persons with cognitive impairment and their family caregivers on end-of-life care discussions and decisions","volume":"17","year":"2022","journal-title":"PLoS One"},{"key":"key20251128164801_R16","doi-asserted-by":"crossref","first-page":"e074797","DOI":"10.1136\/bmj-2023-074797","article-title":"Advance and future care planning","volume":"384","year":"2024","journal-title":"BMJ"},{"issue":"11","key":"key20251128164801_R17","doi-asserted-by":"crossref","first-page":"e038528","DOI":"10.1136\/bmjopen-2020-038528","article-title":"Which moral barriers and facilitators do physicians encounter in advance care planning conversations about the end of life of persons with dementia? A meta-review of systematic reviews and primary studies","volume":"10","year":"2020","journal-title":"BMJ Open"},{"issue":"1","key":"key20251128164801_R18","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1186\/s12877-025-05916-7","article-title":"Proactive end-of-life conversations in residential care homes: a qualitative interview study exploring residents\u2019 and family members\u2019 experiences","volume":"25","year":"2025","journal-title":"BMC Geriatrics"},{"issue":"2","key":"key20251128164801_R19","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1177\/02692163231219915","article-title":"The perspectives of people with dementia and their supporters on advance care planning: a qualitative study with the European Working Group of People with Dementia","volume":"38","year":"2024","journal-title":"Palliative Medicine"},{"key":"key20251128164801_R20","doi-asserted-by":"crossref","first-page":"e067896","DOI":"10.1136\/bmj-2021-067896","article-title":"Using illness trajectories to inform person centred, advance care planning","volume":"384","year":"2024","journal-title":"BMJ"},{"key":"key20251128164801_R21","unstructured":"National Institute for Health and Care Excellence (2019) Advance Care Planning: A Quick Guide for Registered Managers of Care Homes and Home Care Services. www.nice.org.uk\/media\/default\/about\/nice-communities\/social-care\/quick-guides\/advance-care-planning-quick-guide.pdf (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R22","volume-title":"Clinical guideline No. 103","author":"National Institute for Health and Care Excellence","year":"2023"},{"key":"key20251128164801_R23","unstructured":"NHS (2023) Advance Decision to Refuse Treatment (Living Will). www.nhs.uk\/tests-and-treatments\/end-of-life-care\/planning-ahead\/advance-decision-to-refuse-treatment (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R24","unstructured":"NHS Education for Scotland (2025) Future Care Planning (REDMAP). learn.nes.nhs.scot\/60446 (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R25","unstructured":"NHS England (2018) My Future Wishes: Advance Care Planning (ACP) for People Living with Dementia in All Care Settings. www.england.nhs.uk\/wp-content\/uploads\/2018\/04\/my-future-wishes-advance-care-planning-for-people-with-dementia.pdf (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R26","unstructured":"NHS England (2022) Universal Principles for Advance Care Planning (ACP). www.england.nhs.uk\/wp-content\/uploads\/2022\/03\/universal-principles-for-advance-care-planning.pdf (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R27","unstructured":"Office of the Public Guardian (2013) Mental Capacity Act 2005: Code of Practice. assets.publishing.service.gov.uk\/media\/5f6cc6138fa8f541f6763295\/Mental-capacity-act-code-of-practice.pdf (Last accessed: 15 September 2025.)"},{"issue":"7","key":"key20251128164801_R28","doi-asserted-by":"crossref","first-page":"1205","DOI":"10.1016\/j.jamda.2021.07.014","article-title":"Front-line hospice staff perceptions of barriers and opportunities to discussing advance care planning with hospice patients and their families","volume":"23","year":"2022","journal-title":"Journal of the American Medical Directors Association"},{"key":"key20251128164801_R29","unstructured":"Realistic Medicine (2024) Shared Decision Making. realisticmedicine.scot\/about\/shared-decision-making (Last accessed: 15 September 2025.)"},{"issue":"9","key":"key20251128164801_R30","doi-asserted-by":"crossref","first-page":"e030275","DOI":"10.1136\/bmjopen-2019-030275","article-title":"Barriers, enablers and initiatives for uptake of advance care planning in general practice: a systematic review and critical interpretive synthesis","volume":"9","year":"2019","journal-title":"BMJ Open"},{"key":"key20251128164801_R31","unstructured":"Scottish Government\n (2023) New Dementia Strategy for Scotland: Everyone\u2019s Story. www.gov.scot\/publications\/new-dementia-strategy-scotland-everyones-story (Last accessed: 15 September 2025.)"},{"key":"key20251128164801_R32","unstructured":"Scottish Intercollegiate Guidelines Network (2023) SIGN 168: Assessment, Diagnosis, Care and Support for People with Dementia and their Carers: A National Clinical Guideline. www.sign.ac.uk\/media\/2157\/sign-168-dementia.pdf (Last accessed: 15 September 2025.)"},{"issue":"5","key":"key20251128164801_R33","first-page":"18","article-title":"Palliative and end of life care for people with advanced dementia","volume":"32","year":"2020","journal-title":"Nursing Older People"},{"issue":"6","key":"key20251128164801_R34","first-page":"1859","article-title":"Engaging persons with dementia in advance care planning: challenges and opportunities","volume":"20","year":"2020","journal-title":"Dementia"},{"key":"key20251128164801_R35","first-page":"1","article-title":"Advance and future care planning: strategic approaches in Wales","volume":"14","year":"2022","journal-title":"BMJ Supportive and Palliative Care"},{"issue":"9","key":"key20251128164801_R36","doi-asserted-by":"crossref","first-page":"896","DOI":"10.1177\/02692163241265231","article-title":"Factors associated with the place of death of people with advanced dementia: a systematic review of international literature with meta-analysis","volume":"38","year":"2024","journal-title":"Palliative Medicine"},{"issue":"1","key":"key20251128164801_R37","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1186\/s12877-023-04033-7","article-title":"\u2018A perfect storm\u2019 or missed care? Focus group interviews with dementia care professionals on advance care planning","volume":"23","year":"2023","journal-title":"BMC Geriatrics"},{"issue":"3","key":"key20251128164801_R38","doi-asserted-by":"crossref","first-page":"696","DOI":"10.1177\/09697330211035498","article-title":"Advance care planning in dementia care: wants, beliefs, and insight","volume":"29","year":"2022","journal-title":"Nursing Ethics"},{"issue":"1","key":"key20251128164801_R39","doi-asserted-by":"crossref","first-page":"184","DOI":"10.1186\/s12877-018-0872-6","article-title":"The importance of trust-based relations and a holistic approach in advance care planning with people with dementia in primary care: a qualitative study","volume":"18","year":"2018","journal-title":"BMC Geriatrics"},{"key":"key20251128164801_R40","doi-asserted-by":"crossref","first-page":"1130642","DOI":"10.3389\/fnagi.2023.1130642","article-title":"Experiences with and perspectives on advance care planning in young- and late-onset dementia: a focus group study with physicians from various disciplines","volume":"15","year":"2023","journal-title":"Frontiers in Aging Neuroscience"},{"key":"key20251128164801_R41","doi-asserted-by":"crossref","first-page":"103576","DOI":"10.1016\/j.ijnurstu.2020.103576","article-title":"Advance care planning for people living with dementia: an umbrella review of effectiveness and experiences","volume":"107","year":"2020","journal-title":"International Journal of Nursing Studies"},{"issue":"1","key":"key20251128164801_R42","doi-asserted-by":"crossref","first-page":"387","DOI":"10.1186\/s12877-023-04060-4","article-title":"Barriers and facilitators to implementing advance care planning in na\u00efve contexts \u2013 Where to look when plowing new terrain?","volume":"23","year":"2023","journal-title":"BMC Geriatrics"},{"issue":"1","key":"key20251128164801_R43","doi-asserted-by":"crossref","first-page":"96","DOI":"10.1016\/j.outlook.2021.08.002","article-title":"A scoping review of nurse-led advance care planning","volume":"70","year":"2022","journal-title":"Nursing Outlook"},{"issue":"5","key":"key20251128164801_R44","doi-asserted-by":"crossref","first-page":"afac098","DOI":"10.1093\/ageing\/afac098","article-title":"Patterns of unplanned hospital admissions among people with dementia: from diagnosis to the end of life","volume":"51","year":"2022","journal-title":"Age and Ageing"},{"key":"key20251128164801_R45","article-title":"What are the barriers and facilitators to advance care planning with older people in long\u2010term care facilities? A qualitative study","year":"2024","journal-title":"Journal of Clinical Nursing"},{"key":"key20251128164801_R46","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1186\/s12904-023-01176-7","article-title":"Experiences and perspectives of healthcare professionals implementing advance care planning for people suffering from life-limiting illness: a systematic review and meta-synthesis of qualitative studies","volume":"22","year":"2023","journal-title":"BMC Palliative Care"}],"container-title":["Nursing Older People"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.rcni.com\/doi\/pdf\/10.7748\/nop.2025.e1521","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,12,1]],"date-time":"2025-12-01T08:21:32Z","timestamp":1764577292000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.rcni.com\/doi\/10.7748\/nop.2025.e1521"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,9,30]]},"references-count":47,"journal-issue":{"issue":"6","published-online":{"date-parts":[[2025,9,30]]},"published-print":{"date-parts":[[2025,12,1]]}},"alternative-id":["10.7748\/nop.2025.e1521"],"URL":"https:\/\/doi.org\/10.7748\/nop.2025.e1521","relation":{},"ISSN":["1472-0795","2047-8941"],"issn-type":[{"value":"1472-0795","type":"print"},{"value":"2047-8941","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,9,30]]}}}