{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T12:55:47Z","timestamp":1785761747938,"version":"3.56.0"},"reference-count":34,"publisher":"RCNi","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,8,3]]},"DOI":"10.7748\/nop.2026.e1542","type":"journal-article","created":{"date-parts":[[2026,6,10]],"date-time":"2026-06-10T06:40:09Z","timestamp":1781073609000},"page":"33-41","source":"Crossref","is-referenced-by-count":0,"title":["Supporting effective shared decision-making with people with dementia"],"prefix":"10.7748","volume":"38","author":[{"given":"Gill","family":"Maidens","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel Louise","family":"Daly","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"4499","published-online":{"date-parts":[[2026,6,10]]},"reference":[{"key":"key20260731115206_R1","unstructured":"Alzheimer\u2019s Research UK (2024) Prevalence and Incidence. dementiastatistics.org\/about-dementia\/prevalence-and-incidence (Last accessed: 7 May 2026.)"},{"issue":"2","key":"key20260731115206_R2","doi-asserted-by":"crossref","first-page":"e5884","DOI":"10.1002\/gps.5884","article-title":"A shared decision\u2010making model about care for people with severe dementia: a qualitative study based on nutrition and hydration decisions in acute hospitals","volume":"38","year":"2023","journal-title":"International Journal of Geriatric Psychiatry"},{"issue":"23-24","key":"key20260731115206_R3","doi-asserted-by":"crossref","first-page":"4276","DOI":"10.1111\/jocn.15049","article-title":"Barriers to advance care planning with patients as perceived by nurses and other healthcare professionals: a systematic review","volume":"28","year":"2019","journal-title":"Journal of Clinical Nursing"},{"issue":"5","key":"key20260731115206_R4","first-page":"e1651","article-title":"Factors affecting dementia care practitioners\u2019 decision\u2010making on moves to a care home for persons living with dementia: a factorial survey","volume":"30","year":"2022","journal-title":"Health & Social Care in the Community"},{"issue":"1","key":"key20260731115206_R5","doi-asserted-by":"crossref","first-page":"136","DOI":"10.1002\/gps.5405","article-title":"Professionals\u2019 views on the \u201coptimal time\u201d for people living with dementia to move to a care home","volume":"36","year":"2021","journal-title":"International Journal of Geriatric Psychiatry"},{"issue":"2","key":"key20260731115206_R6","doi-asserted-by":"crossref","first-page":"172","DOI":"10.1016\/j.gerinurse.2019.09.002","article-title":"A qualitative systematic review of factors affecting caregivers\u2019 decision-making for care setting placements for individuals with dementia","volume":"41","year":"2020","journal-title":"Geriatric Nursing"},{"key":"key20260731115206_R7","volume-title":"Doctoral thesis","year":"2020"},{"issue":"6","key":"key20260731115206_R8","doi-asserted-by":"crossref","first-page":"e018977","DOI":"10.1136\/bmjopen-2017-018977","article-title":"Shared decision-making for people living with dementia in extended care settings: a systematic review","volume":"8","year":"2018","journal-title":"BMJ Open"},{"key":"key20260731115206_R9","unstructured":"Dementia UK\n (2026a) Signs and Symptoms of Dementia. www.dementiauk.org\/information-and-support\/about-dementia\/signs-and-symptoms-of-dementia (Last accessed: 7 May 2026.)"},{"key":"key20260731115206_R10","unstructured":"Dementia UK\n (2026b) Mental Capacity and Decision-Making. www.dementiauk.org\/wp-content\/uploads\/dementia-uk-capacity.pdf (Last accessed: 7 May 2026.)"},{"key":"key20260731115206_R11","unstructured":"Dementia UK\n (2026c) What is Dementia? www.dementiauk.org\/information-and-support\/about-dementia\/what-is-dementia (Last accessed: 7 May 2026.)"},{"issue":"7-8","key":"key20260731115206_R12","doi-asserted-by":"crossref","first-page":"2985","DOI":"10.1177\/1471301218763180","article-title":"How are people with dementia involved in care-planning and decision-making? An Irish social work perspective","volume":"18","year":"2019","journal-title":"Dementia"},{"issue":"10","key":"key20260731115206_R13","doi-asserted-by":"crossref","first-page":"1361","DOI":"10.1007\/s11606-012-2077-6","article-title":"Shared decision making: a model for clinical practice","volume":"27","year":"2012","journal-title":"Journal of General Internal Medicine"},{"issue":"5","key":"key20260731115206_R14","doi-asserted-by":"crossref","first-page":"1601","DOI":"10.1177\/1471301217721862","article-title":"\u201cDid I make the right decision?\u201d: the difficult and unpredictable journey of being a surrogate decision maker for a person living with dementia","volume":"18","year":"2019","journal-title":"Dementia"},{"issue":"1","key":"key20260731115206_R15","doi-asserted-by":"crossref","first-page":"142","DOI":"10.1177\/1524839919884912","article-title":"Cultural competence or cultural humility? Moving beyond the debate","volume":"21","year":"2020","journal-title":"Health Promotion Practice"},{"key":"key20260731115206_R16","first-page":"9","article-title":"Time for more support? Stakeholder engagement for a long-term care planning dementia decision aid prototype","year":"2023","journal-title":"Gerontology and Geriatric Medicine"},{"issue":"6","key":"key20260731115206_R17","doi-asserted-by":"crossref","first-page":"707","DOI":"10.1017\/S1478951519000257","article-title":"Advance care planning in different settings for people with dementia: a systematic review and narrative synthesis","volume":"17","year":"2019","journal-title":"Palliative & Supportive Care"},{"key":"key20260731115206_R18","volume-title":"Rethinking Ageing Series","year":"1997"},{"key":"key20260731115206_R19","doi-asserted-by":"crossref","first-page":"158","DOI":"10.1186\/s12912-021-00684-2","article-title":"A literature-based study of patient-centered care and communication in nurse-patient interactions: barriers, facilitators, and the way forward","volume":"20","year":"2021","journal-title":"BMC Nursing"},{"issue":"3-4","key":"key20260731115206_R20","first-page":"124","article-title":"Changing practice: adapting to the Mental Capacity Act 2005","volume":"4","year":"2013","journal-title":"Social Care and Neurodisability"},{"issue":"4","key":"key20260731115206_R21","doi-asserted-by":"crossref","first-page":"875","DOI":"10.1177\/14713012231156976","article-title":"Shared decision-making in persons living with dementia: a scoping review","volume":"22","year":"2023","journal-title":"Dementia"},{"issue":"3","key":"key20260731115206_R22","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1308\/205016817821931006","article-title":"A person-centred approach to holistic assessment","volume":"6","year":"2017","journal-title":"Primary Dental Journal"},{"key":"key20260731115206_R23","doi-asserted-by":"crossref","first-page":"1137897","DOI":"10.3389\/frdem.2023.1137897","article-title":"Grand challenge of maintaining meaningful communication in dementia care","volume":"2","year":"2023","journal-title":"Frontiers in Dementia"},{"key":"key20260731115206_R24","volume-title":"NICE guideline No. 97","author":"National Institute for Health and Care Excellence","year":"2018"},{"key":"key20260731115206_R25","doi-asserted-by":"crossref","first-page":"106","DOI":"10.1186\/s12904-022-00982-9","article-title":"Cross-cultural conceptualization of a good end of life with dementia: a qualitative study","volume":"21","year":"2022","journal-title":"BMC Palliative Care"},{"key":"key20260731115206_R26","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1186\/s12904-024-01632-y","article-title":"A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study","volume":"24","year":"2025","journal-title":"BMC Palliative Care"},{"issue":"11","key":"key20260731115206_R27","doi-asserted-by":"crossref","first-page":"4654","DOI":"10.1111\/jan.16107","article-title":"Nurses\u2019 perspectives on shared decision-making in the daily care of hospitalized patients with dementia: an exploratory qualitative study","volume":"80","year":"2024","journal-title":"JAN"},{"issue":"12","key":"key20260731115206_R28","doi-asserted-by":"crossref","first-page":"1310","DOI":"10.1177\/10499091231155601","article-title":"Care setting transitions for people with dementia: qualitative perspectives of current and former care partners","volume":"40","year":"2023","journal-title":"American Journal of Hospice & Palliative Medicine"},{"issue":"9","key":"key20260731115206_R29","doi-asserted-by":"crossref","first-page":"1855","DOI":"10.1080\/13607863.2021.1947963","article-title":"\u2018The time has come\u2019: reflections on the \u2018tipping point\u2019 in deciding on a care home move","volume":"26","year":"2022","journal-title":"Aging & Mental Health"},{"issue":"12","key":"key20260731115206_R30","doi-asserted-by":"crossref","first-page":"3343","DOI":"10.1007\/s11136-021-02766-9","article-title":"Implications of response shift for micro-, meso-, and macro-level healthcare decision-making using results of patient-reported outcome measures","volume":"30","year":"2021","journal-title":"Quality of Life Research"},{"key":"key20260731115206_R31","unstructured":"Scope (2026) Social Model of Disability. www.scope.org.uk\/social-model-of-disability (Last accessed: 7 May 2026.)"},{"issue":"5","key":"key20260731115206_R32","doi-asserted-by":"crossref","first-page":"1563","DOI":"10.1111\/hsc.12456","article-title":"Providing support to surrogate decision-makers for people living with dementia: healthcare professional, organisational and community responsibilities","volume":"25","year":"2017","journal-title":"Health & Social Care in the Community"},{"key":"key20260731115206_R33","doi-asserted-by":"crossref","first-page":"142","DOI":"10.1186\/s12904-023-01249-7","article-title":"Interventions that may increase control at the end of life in persons with dementia: the cross-cultural CONT-END acceptability study protocol and pilot-testing","volume":"22","year":"2023","journal-title":"BMC Palliative Care"},{"key":"key20260731115206_R34","doi-asserted-by":"crossref","first-page":"104160","DOI":"10.1016\/j.archger.2020.104160","article-title":"Ethical frameworks for complex medical decision making in older patients: a narrative review","volume":"90","year":"2020","journal-title":"Archives of Gerontology and Geriatrics"}],"container-title":["Nursing Older People"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.rcni.com\/doi\/pdf\/10.7748\/nop.2026.e1542","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T12:30:13Z","timestamp":1785760213000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.rcni.com\/doi\/10.7748\/nop.2026.e1542"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,10]]},"references-count":34,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2026,6,10]]},"published-print":{"date-parts":[[2026,8,3]]}},"alternative-id":["10.7748\/nop.2026.e1542"],"URL":"https:\/\/doi.org\/10.7748\/nop.2026.e1542","relation":{},"ISSN":["1472-0795","2047-8941"],"issn-type":[{"value":"1472-0795","type":"print"},{"value":"2047-8941","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,10]]}}}