{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,11]],"date-time":"2026-08-11T12:32:10Z","timestamp":1786451530816,"version":"build-2736575974"},"reference-count":17,"publisher":"Springer Science and Business Media LLC","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2026,8,11]]},"DOI":"10.7759\/cureus.114338","type":"journal-article","created":{"date-parts":[[2026,8,11]],"date-time":"2026-08-11T11:37:52Z","timestamp":1786448272000},"source":"Crossref","is-referenced-by-count":0,"title":["Caregiver Burden and Support Needs in Families of Patients With Parkinson\u2019s Disease: A Mixed-Methods Investigation Combining Caregiver Strain Questionnaires and Focus Group Discussions"],"prefix":"10.7759","author":[{"given":"Misbah","family":"Shaikh","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John","family":"Hippon","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Neelima R","family":"Saoji","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mohit","family":"Agrawal","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","reference":[{"key":"ref1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare13010079","article-title":"Parkinson's disease and caregiving roles, demands, and support needs and experiences: a scoping review","volume":"13","author":"Longacre ML","year":"2025","unstructured":"Longacre ML, Roche L, Kueppers GC, Buurman B. Parkinson's disease and caregiving roles, demands, and support needs and experiences: a scoping review. Healthcare (Basel). 2025, 13:79. 10.3390\/healthcare13010079","journal-title":"Healthcare (Basel)"},{"key":"ref2","doi-asserted-by":"publisher","DOI":"10.1177\/01939459251327968","article-title":"Predictors of informal caregiver burden in Parkinson's disease: a systematic review","volume":"47","author":"Lesley R","year":"2025","unstructured":"Lesley R, Simpson J, Dale M, Eccles F, Lock S, Gunn S. Predictors of informal caregiver burden in Parkinson's disease: a systematic review. West J Nurs Res. 2025, 47:524-43. 10.1177\/01939459251327968","journal-title":"West J Nurs Res"},{"key":"ref3","doi-asserted-by":"publisher","DOI":"10.1155\/2014\/718527","article-title":"Understanding the burden on caregivers of people with Parkinson's: a scoping review of the literature","volume":"2014","author":"Bhimani R","year":"2014","unstructured":"Bhimani R. Understanding the burden on caregivers of people with Parkinson's: a scoping review of the literature. Rehabil Res Pract. 2014, 2014:718527. 10.1155\/2014\/718527","journal-title":"Rehabil Res Pract"},{"key":"ref4","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2015.03.024","article-title":"Neuropsychiatric symptoms and caregiver's burden in Parkinson's disease","volume":"21","author":"Martinez-Martin P","year":"2015","unstructured":"Martinez-Martin P, Rodriguez-Blazquez C, Forjaz MJ, et al.. Neuropsychiatric symptoms and caregiver's burden in Parkinson's disease. Parkinsonism Relat Disord. 2015, 21:629-34. 10.1016\/j.parkreldis.2015.03.024","journal-title":"Parkinsonism Relat Disord"},{"key":"ref5","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2024-093122","article-title":"Caregivers' challenges in engaging with the health system to optimise medication management of older care recipients: a qualitative study including home visits","volume":"15","author":"Kiiski A","year":"2025","unstructured":"Kiiski A, Luoma E, Airaksinen M, Pohjanoksa-M\u00e4ntyl\u00e4 M, Desselle S, Kivel\u00e4 SL. Caregivers' challenges in engaging with the health system to optimise medication management of older care recipients: a qualitative study including home visits. BMJ Open. 2025, 15:e093122. 10.1136\/bmjopen-2024-093122","journal-title":"BMJ Open"},{"key":"ref6","doi-asserted-by":"publisher","DOI":"10.2147\/CIA.S451833","article-title":"Understanding the support needs and challenges faced by family caregivers in the care of their older adults at home. A qualitative study","volume":"19","author":"Hailu GN","year":"2024","unstructured":"Hailu GN, Abdelkader M, Meles HA, Teklu T. Understanding the support needs and challenges faced by family caregivers in the care of their older adults at home. A qualitative study. Clin Interv Aging. 2024, 19:481-90. 10.2147\/CIA.S451833","journal-title":"Clin Interv Aging"},{"key":"ref7","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610219000206","article-title":"Validating the Parkinson's disease caregiver burden questionnaire (PDCB) in German caregivers of advanced Parkinson's disease patients","volume":"31","author":"Klietz M","year":"2019","unstructured":"Klietz M, Rippena L, Lange F, Tulke A, Paracka L, Dressler D, Wegner F. Validating the Parkinson's disease caregiver burden questionnaire (PDCB) in German caregivers of advanced Parkinson's disease patients. Int Psychogeriatr. 2019, 31:1791-800. 10.1017\/S1041610219000206","journal-title":"Int Psychogeriatr"},{"key":"ref8","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.09.007","article-title":"Assessment of burden among family caregivers of people with Parkinson's disease using the Zarit Burden Interview","volume":"53","author":"Hagell P","year":"2017","unstructured":"Hagell P, Alvariza A, Westergren A, \u00c5restedt K. Assessment of burden among family caregivers of people with Parkinson's disease using the Zarit Burden Interview. J Pain Symptom Manage. 2017, 53:272-8. 10.1016\/j.jpainsymman.2016.09.007","journal-title":"J Pain Symptom Manage"},{"key":"ref9","doi-asserted-by":"publisher","DOI":"10.1155\/2023\/4483517","article-title":"The lived experience of caregiving and perception of service provision among family-caregivers of people with late-stage Parkinson's: a qualitative study","volume":"2023","author":"Read J","year":"2023","unstructured":"Read J, Cable S, Bartl G, L\u00f6fqvist C, Iwarsson S, Schrag A. The lived experience of caregiving and perception of service provision among family-caregivers of people with late-stage Parkinson's: a qualitative study. Parkinsons Dis. 2023, 2023:4483517. 10.1155\/2023\/4483517","journal-title":"Parkinsons Dis"},{"key":"ref10","doi-asserted-by":"publisher","DOI":"10.3233\/JAD-201257","article-title":"Mixed-methods study on caregiver strain, quality of life, and perceived health","volume":"80","author":"Di Lorito C","year":"2021","unstructured":"Di Lorito C, Bosco A, Godfrey M, et al.. Mixed-methods study on caregiver strain, quality of life, and perceived health. J Alzheimers Dis. 2021, 80:799-811. 10.3233\/JAD-201257","journal-title":"J Alzheimers Dis"},{"key":"ref11","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun V","year":"2006","unstructured":"Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006, 3:77-101. 10.1191\/1478088706qp063oa","journal-title":"Qual Res Psychol"},{"key":"ref12","doi-asserted-by":"publisher","DOI":"10.1177\/08919887231195219","article-title":"Caregiver burden in Parkinson disease: a scoping review of the literature from 2017-2022","volume":"37","author":"Aamodt WW","year":"2024","unstructured":"Aamodt WW, Kluger BM, Mirham M, Job A, Lettenberger SE, Mosley PE, Seshadri S. Caregiver burden in Parkinson disease: a scoping review of the literature from 2017-2022. J Geriatr Psychiatry Neurol. 2024, 37:96-113. 10.1177\/08919887231195219","journal-title":"J Geriatr Psychiatry Neurol"},{"key":"ref13","doi-asserted-by":"publisher","DOI":"10.7759\/cureus.4358","article-title":"Severity of caregiver stress in relation to severity of disease in persons with Parkinson's","volume":"11","author":"Kumar H","year":"2019","unstructured":"Kumar H, Ansari S, Kumar V, Barry HD, Tahir A. Severity of caregiver stress in relation to severity of disease in persons with Parkinson's. Cureus. 2019, 11:e4358. 10.7759\/cureus.4358","journal-title":"Cureus"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.1016\/j.jns.2015.09.009","article-title":"Burden among Parkinson's disease care givers for a community based study from India","volume":"358","author":"Sanyal J","year":"2015","unstructured":"Sanyal J, Das S, Ghosh E, Banerjee TK, Bhaskar LV, Rao VR. Burden among Parkinson's disease care givers for a community based study from India. J Neurol Sci. 2015, 358:276-81. 10.1016\/j.jns.2015.09.009","journal-title":"J Neurol Sci"},{"key":"ref15","doi-asserted-by":"publisher","DOI":"10.1007\/s42087-023-00350-w","article-title":"Caregivers\u2019 burden in Parkinson\u2019s disease: a study on related features and attachment styles","volume":"8","author":"Carpinelli L","year":"2025","unstructured":"Carpinelli L, Savarese G, Russo C, et al.. Caregivers\u2019 burden in Parkinson\u2019s disease: a study on related features and attachment styles. Hu Arenas. 2025, 8:1085-98. 10.1007\/s42087-023-00350-w","journal-title":"Hu Arenas"},{"key":"ref16","doi-asserted-by":"publisher","DOI":"10.3390\/jcm15020674","article-title":"Caregiver burden and support for people with neurological disorders: findings from a Polish cross-sectional study","volume":"15","author":"Pasek M","year":"2026","unstructured":"Pasek M, Strzesak Z, Go\u017adzialska A, Jochymek M. Caregiver burden and support for people with neurological disorders: findings from a Polish cross-sectional study. J Clin Med. 2026, 15:674. 10.3390\/jcm15020674","journal-title":"J Clin Med"},{"key":"ref17","doi-asserted-by":"publisher","DOI":"10.1093\/geroni\/igaf122.2276","article-title":"Caregiving barriers in Parkinson\u2019s disease with cognitive impairment: a qualitative study","volume":"9","author":"Huang Y","year":"2025","unstructured":"Huang Y, Hua Y, Wang J, Wu B, Li J. Caregiving barriers in Parkinson\u2019s disease with cognitive impairment: a qualitative study. Innov Aging. 2025, 9:igaf122.2276. 10.1093\/geroni\/igaf122.2276","journal-title":"Innov Aging"}],"container-title":["Cureus"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.cureus.com\/articles\/499971-caregiver-burden-and-support-needs-in-families-of-patients-with-parkinsons-disease-a-mixed-methods-investigation-combining-caregiver-strain-questionnaires-and-focus-group-discussions","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,11]],"date-time":"2026-08-11T11:37:53Z","timestamp":1786448273000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.cureus.com\/articles\/499971-caregiver-burden-and-support-needs-in-families-of-patients-with-parkinsons-disease-a-mixed-methods-investigation-combining-caregiver-strain-questionnaires-and-focus-group-discussions"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8,11]]},"references-count":17,"URL":"https:\/\/doi.org\/10.7759\/cureus.114338","relation":{},"ISSN":["2168-8184"],"issn-type":[{"value":"2168-8184","type":"print"}],"subject":[],"published":{"date-parts":[[2026,8,11]]}}}